Problems which address health related quality of life (HRQOL) in inflammatory bowel disease (IBD)

Irvine, EJ; Grace, Eileen M.; Kerr, GD; Lyrenäs, Ebbe; Bolin, T. D.; O’Moráin, Colm; Korman, Mustafa; Zhou, Qian

doi:10.1016/s0016-5085(98)84079-1

Cited by 2 publications

(2 citation statements)

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“…Pediatric studies clearly demonstrate that IBD has a negative impact on growth velocity, weight gain, bone mineral density and pubertal development (127), with some of these effects reversed with early intervention and treatment. In adults, the negative impact of IBD on the quality of life has been found to improve with disease control (128).…”

Section: Suspected Ibdmentioning

confidence: 99%

Canadian Consensus on Medically Acceptable Wait Times for Digestive Health Care

Paterson

Depew

Paré

et al. 2006

Canadian Journal of Gastroenterology

119

116

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Section: Suspected Ibdmentioning

confidence: 99%

Canadian Consensus on Medically Acceptable Wait Times for Digestive Health Care

Paterson

Depew

Paré

et al. 2006

Canadian Journal of Gastroenterology

119

116

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“…Indeed, the health‐related quality of life scores correlate strongly with disease severity in both ulcerative colitis and Crohn's disease, with Pearson coefficients of between 0.5 and 0.7, explaining approximately 45% of the variance in multivariate regression analysis 2 ,. 10 , 11 Moreover, effective treatments in clinical trials of both short‐ and long‐term duration, including 5‐aminosalicylates, corticosteroids (prednisone or budesonide), infliximab, methotrexate and natalizumab, have demonstrated significant improvement in such quality of life scores 2 …”

Section: Common Patient Concernsmentioning

confidence: 99%

Patients' fears and unmet needs in inflammatory bowel disease

Irvine

2004

Aliment Pharmacol Ther

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Summary The management of chronic illness is becoming increasingly patient‐centred. Although patients with inflammatory bowel disease have a normal life expectancy, most individuals experience an impact of inflammatory bowel disease on their daily lives as well as on their attitudes, fears and beliefs. Although currently available therapies for ulcerative colitis and Crohn's disease are becoming increasingly effective, there are still many unmet needs to address in this patient population. Physicians and patients' spouses or significant others underestimate the type and severity of problems reported by inflammatory bowel disease patients. Physical problems are frequently measured using disease activity indices. Emotional and social problems are reported using quality of life questionnaires and other specific measurement tools pertinent to the question of interest. Studies have indicated a poorer physical and emotional function in inflammatory bowel disease patients than in the general population. Effective therapies, both medical and surgical, produce significant improvements in the general and disease‐specific quality of life. The quality of life is worse when the disease is more severe. Concomitant anxiety or depression appears to impair the quality of life even further. Common fears include the possibility of unanticipated flares, the need for surgery, poor energy levels and the side‐effects of medication. Recent studies have suggested that more prominent patient participation in management has the potential for greater patient satisfaction, better outcomes and more efficient health resource utilization. Thus, future studies should focus not only on ensuring the wider availability of effective therapies, but on increasing access to health care that is tailored to individuals — more structure for some and more independence and self‐management for others, with health provider supervision.

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Problems which address health related quality of life (HRQOL) in inflammatory bowel disease (IBD)

Cited by 2 publications

References 0 publications

Canadian Consensus on Medically Acceptable Wait Times for Digestive Health Care

Canadian Consensus on Medically Acceptable Wait Times for Digestive Health Care

Patients' fears and unmet needs in inflammatory bowel disease

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