Problems in using birth certificate files in the capture‐recapture model to estimate the completeness of case ascertainment in a population‐based birth defects registry in New York State

Wang, Ying; Druschel, Charlotte M.; Cross, Philip K.; Hwang, Syni‐An; Gensburg, Lenore

doi:10.1002/bdra.20293

Cited by 14 publications

(7 citation statements)

References 34 publications

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“…First, documentation of birth defects on birth certificates can be inconsistent, with variable sensitivities reported in existing literature. 37,38 However, the abdominal wall defect rate in this study is comparable to recent national estimates, 18,20,34 suggesting our data provide a reasonable representation of abdominal wall defect rates. Second, the vast majority of states used the 1989 version of the birth certificate in which omphalocele and gastroschisis were identified by the same code, making separation of the two conditions impossible.…”

Section: Discussionsupporting

confidence: 85%

Abdominal Wall Defects Among Mexican American Infants: The Effect of Maternal Nativity

Hibbs¹,

Bennett

Castro³

et al. 2016

Ethn Dis

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Background: US-born Mexican American women have greater rates of preterm birth and consequent overall infant mortality than their Mexico-born peers. However, the relation of Mexican American women’s nativity to rates of congenital anomalies is poorly understood. Hispanic ethnicity and young maternal age are well-known risk factors for gastroschisis. Objective: To determine the extent to which nativity of Mexican American women is associated with abdominal wall defects.Methods: Stratified and multivariable logistic regression analyses were performed on the 2003-2004 National Center for Health Statistics linked live birth-infant death cohort. Only Mexican American infants were studied. Maternal variables examined included nativity, age, education, marital status, parity, and prenatal care usage.Results: Infants with US-born Mexican American mothers (n=451,272) had an abdominal wall defect rate of 3.9/10,000 compared with 2.0/10,000 for those with Mexico-born mothers (n=786,878), RR=1.9 (1.5-2.4). Though a greater percentage of US-born (compared wtih Mexico-born) Mexican American mothers were teens, the nativity disparity was actually widest among women in their 20s. The adjusted (controlling for maternal age, education, marital status, parity, and prenatal care) odds ratio of abdominal wall defects among infants of US-born (compared with Mexico-born) Mexican American mothers was 1.6 (1.2-2.0).Conclusions: US-born Mexican American women have nearly a two-fold greater rate of delivering an infant with an abdominal wall defect than their Mexico-born counterparts. This phenomenon is only partially explained by traditional risk factors and highlights a detrimental impact of lifelong residence in the United States, or something closely related to it, on the pregnancy outcome of Mexican American women. Ethn Dis; 2016;26(2):165-170; doi:10.18865/ed.26.2.165

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Section: Discussionsupporting

confidence: 85%

Abdominal Wall Defects Among Mexican American Infants: The Effect of Maternal Nativity

Hibbs¹,

Bennett

Castro³

et al. 2016

Ethn Dis

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“…Similar results were observed in other studies 15,16,17 . Wang et al 20 observed reporting of 88.7% in multiple cases and 69.5% in cases with single defects. Olsen et al 18 however, analyzing the cases registered in the Birth Certificate, showed that these had a higher chance of having a single and minor anomaly, which was not verified in the CMR.…”

Section: Discussionmentioning

confidence: 95%

“…The underreporting for major birth defects, in studies performed in the USA with the Birth Certificate, which is similar to the Brazilian, varied from 55% to 88% 14,15,16,17,18,19,20,21 . In our study, even if it was a high percentage it was better than in the USA, although similar to a study made in Birmingham, England, where underreporting was 32% 22 .…”

Section: Discussionmentioning

confidence: 98%

“…Studies performed with the North-American Birth Certificate have demonstrated low completeness, a high number of false positive and negative cases and, in the reported cases, birth defects were inadequately described 14,15,16,17,18,19,20,21 . Watkins et al 21 , in a comparative analysis between the Birth Certificate and data from the Metropolitan Atlanta Congenital Defects Program (MACPD), in 1989, observed a sensitivity of 28% and positive predictive value of 77% for birth defects diagnosed at birth.…”

Section: Discussionmentioning

confidence: 99%

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Quality of reporting on birth defects in birth certificates: case study from a Brazilian reference hospital

Luquetti

Koifman

2009

Cad. Saúde Pública

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The aim of this study was to evaluate the coverage, validity and reliability of Brazil's Information System on Live Births (SINASC) for birth defects in a hospital in the city of Campinas (São Paulo State). The study population consisted of 2,823 newborn infants delivered in 2004 at the Women's Integrated Health Care Center (CAISM). A birth defect registry (ECLAMC) was used as the gold-standard. All birth defect cases reported at CAISM in 2004 (92 cases) were selected from SINASC data files. All 168 birth defect cases from the same city and year registered at ECLAMC were also retrieved. An underreporting of 46.8% was observed for all birth defects, and 36.4% when considering only the major birth defects. The ascertained sensitivity and specificity were, respectively, 54.2% and 99.8%. The reliability of three and four-digit ICD-10 coding for birth defects was 0.77 and 0.55 respectively (kappa statistic). These results suggest that information provided by birth certificates in Campinas still presents limitations when seeking to ascertain accurate estimates of the prevalence of birth defects, hence indicating the need for improvements in the SINASC database to enable it to portray birth defect prevalence at birth in this city.

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“…By relying on birth certificate data, some children with Down syndrome were not identified, because recording of this at birth is known to be incomplete 38. As Down syndrome predisposes mainly to leukemia, however, residual confounding would not have affected other cancer types 39.…”

Section: Discussionmentioning

confidence: 99%

Parental Age and Risk of Childhood Cancer

et al. 2009

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Background Few risk factors for childhood cancer are well-established. We investigated whether advancing parental age increases childhood cancer risk. Methods We assessed the relationship between parental age and childhood cancer in a case-control study using pooled population-based data. Our pooling was based on linked cancer and birth registry records from New York, Washington, Minnesota, Texas, and California. Subjects included 17,672 cancer cases diagnosed at ages 0–14 years during 1980–2004 and 57,966 controls born during 1970–2004. Persons with Down syndrome were excluded. Odds ratios and 95% confidence intervals were calculated by logistic regression for the association between parental age and childhood cancer after adjustment for sex, birth weight, gestational age, birth order, plurality, maternal race, birth year, and state. Results Positive linear trends per 5-year maternal age increase were –observed for childhood cancers overall (odds ratio = 1.08 [95% confidence interval = 1.06–1.10]) and 7 of the 10 most frequent diagnostic groups: leukemia (1.08 [1.05–1.11]), lymphoma (1.06 [1.01–1.12]), central nervous system tumors (1.07 [1.03–1.10]), neuroblastoma (1.09 [1.04–1.15]), Wilms’ tumor (1.16 [1.09–1.22]), bone tumors (1.10 [ 1.00–1.20]), and soft tissue sarcomas (1.10 [1.04–1.17]). No maternal age effect was noted for retinoblastoma, germ cell tumors, or hepatoblastoma. Paternal age was not independently associated with most childhood cancers after adjustment for maternal age. Conclusions Our results suggest that older maternal age increases risk for most common childhood cancers. Investigation into possible mechanisms for this association is warranted.

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Problems in using birth certificate files in the capture‐recapture model to estimate the completeness of case ascertainment in a population‐based birth defects registry in New York State

Cited by 14 publications

References 34 publications

Abdominal Wall Defects Among Mexican American Infants: The Effect of Maternal Nativity

Abdominal Wall Defects Among Mexican American Infants: The Effect of Maternal Nativity

Quality of reporting on birth defects in birth certificates: case study from a Brazilian reference hospital

Parental Age and Risk of Childhood Cancer

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