Privacy Concerns in a Remote Monitoring and Social Networking Platform for Assisted Living

Rothenpieler, Peter; Becker, Claudia; Fischer, Stefan

doi:10.1007/978-3-642-20769-3_18

Cited by 10 publications

(12 citation statements)

References 7 publications

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“…going to a day care centre or care home (Department of Health 2005; Dewsbury and Linskill 2011;Schikof et al 2010). They are not incompatible with respect for privacy concerns (Rothernpieler et al 2011). Medical data gained from some of the devices may also be able to offer a more accurate day-to-day assessment of users' health than those gained via complex and expensive clinic based assessment.…”

Section: Health Technology Decision-making Capacity and Dementiamentioning

confidence: 98%

“…Membership of appropriate SNS can assist those with neurodegenerative conditions to maintain social participation (Williams et al 2010). Moreover, healthcare for those with chronic conditions will increasingly be delivered via E-health technologies (Mackenzie and Sakel 2011), including data transmission via SNS (Rothernpieler et al 2011), enabling users to avoid or postpone moves to care homes. Given that using SNS offers these users, their family/carers and the wider society significant benefits, the resolution of the ethicolegal issues we now describe is crucial.…”

Section: Introductionmentioning

confidence: 99%

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Challenges of ethical and legal responsibilities when technologies’ uses and users change: social networking sites, decision-making capacity and dementia

et al. 2012

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Successful technologies' ubiquity changes uses, users and ethicolegal responsibilities and duties of care. We focus on dementia to review critically ethicolegal implications of increasing use of social networking sites (SNS) by those with compromised decision-making capacity, assessing concerned parties' responsibilities. Although SNS contracts assume ongoing decision-making capacity, many users' may be compromised or declining. Resulting ethicolegal issues include capacity to give informed consent to contracts, protection of online privacy including sharing and controlling data, data leaks between different digital platforms, and management of digital identities and footprints. SNS uses in healthcare raise additional issues. Online materials acting as archives of 'the self' bolster present and future identities for users with compromised capacity. E-health involves actual and potential intersection of data gathered for the purpose of delivering health technological support with data used for social networking purposes. Ethicolegal guidance is limited on the implications of SNS usage in contexts where users have impaired/reduced capacity to understand and/or consent to sharing personal data about their health, medication or location. Vulnerable adults and family/carers face uncertainty in regard to consent, data protection, online identity and legal liabilities. Ethicolegal responsibilities and duties of care of technology providers, healthcare professionals, regulatory bodies and policymakers need clarification.

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Section: Health Technology Decision-making Capacity and Dementiamentioning

confidence: 98%

Section: Introductionmentioning

confidence: 99%

Challenges of ethical and legal responsibilities when technologies’ uses and users change: social networking sites, decision-making capacity and dementia

et al. 2012

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“…Some of the studies mention the security of technologies for telemedicine (Kaplan and Litewka, 2008) and in support of an independent life at home, as in the so-called ambient assisted living (AAL) systems (Ikonen and Kaasinen, 2008;Rothenpieler et al, 2011;Spitalewsky et al, 2013). Demographic change and its impact on the age structure of society, the availability of labor and the increase in healthcare costs will contribute to the future availability and deployment of AAL systems.…”

Section: Cybersecurity As a Means To Information And Communication Tementioning

confidence: 99%

Cybersecurity in health – disentangling value tensions

Loi

Christen

Kleine

et al. 2019

JICES

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Purpose Cybersecurity in healthcare has become an urgent matter in recent years due to various malicious attacks on hospitals and other parts of the healthcare infrastructure. The purpose of this paper is to provide an outline of how core values of the health systems, such as the principles of biomedical ethics, are in a supportive or conflicting relation to cybersecurity. Design/methodology/approach This paper claims that it is possible to map the desiderata relevant to cybersecurity onto the four principles of medical ethics, i.e. beneficence, non-maleficence, autonomy and justice, and explore value conflicts in that way. Findings With respect to the question of how these principles should be balanced, there are reasons to think that the priority of autonomy relative to beneficence and non-maleficence in contemporary medical ethics could be extended to value conflicts in health-related cybersecurity. Research limitations/implications However, the tension between autonomy and justice, which relates to the desideratum of usability of information and communication technology systems, cannot be ignored even if one assumes that respect for autonomy should take priority over other moral concerns. Originality/value In terms of value conflicts, most discussions in healthcare deal with the conflict of balancing efficiency and privacy given the sensible nature of health information. In this paper, the authors provide a broader and more detailed outline.

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“…To address security and privacy concerns, recent debates have been stressing the need to shift the choices and domain over data usage from developers and service providers to users, entitling those users to take control over their data, to enjoy their right to informational self-determination [24] [26]. This perspective is of utmost importance to empower the users in the identification of their sensitive data and recognition of risks associated with its transmission and storage [24].…”

Section: Introductionmentioning

confidence: 99%

“…This perspective is of utmost importance to empower the users in the identification of their sensitive data and recognition of risks associated with its transmission and storage [24]. Communication aspects are of importance in this equation: the user interface must allow a proper understanding and manipulation of personal information being processed, i.e., must provide the user with information about the accessible data and offer means to control the access rights to the private information [26]. Moreover, all this must be displayed in an accessible and usable way for older adults or, if we prefer, 'for all'.…”

Section: Introductionmentioning

confidence: 99%

SoTRAACE for active security in Ambient Assisted Living

Ferreira¹,

Teles²,

Vieira‐Marques³

2018

Preprint

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Background: Ambient Assisted Living (AAL) solutions have been conquering an important place among strategies to promote ageing in place and address the societal challenges of population ageing. AAL is deeply rooted on the computing paradigm of Ambient Intelligence which strongly impacts the technological phenomenon of Internet of Things (IoT), currently covering a plethora of ageing related application areas. The pervasiveness of IoT raise, however, security challenges and require more flexible and better adapted availability and privacy measures. Still, IoT devices and services are frequently described in the literature without any reference to privacy and security issues they may integrate and the few works in the Ambient Assisted Living (AAL) field focus mostly on authentication or physical access control. Objective: This paper describes the SoTRAACE -Socio-Technical Risk-Adaptable Access Control -model, designed to better adapt users' access control needs to each AAL security context. The model is applied to use cases based on AAL for mental health personas and scenarios. Methods: SoTRAACE architecture takes into account contextual, technological and user's interaction profiling functionalities to act in each AAL situation/request and perform a quantitative and qualitative risk assessment analysis. The risk analysis supports decision-making on the most secure, private and usable way to access and display information. Results: SoTRAACE unique advantages for improved availability and privacy are discussed in contrast with existing access control models. The model is showcased and discussed within two AAL for mental health use case scenarios. SoTRAACE new and reused components are varied and versatile enough to adapt to different situations and user's goals, whether these are patient or caregiver oriented. Conclusions: SoTRAACE is an innovative and complete proposal for secure and adaptable access control in AAL or similar environments.

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Privacy Concerns in a Remote Monitoring and Social Networking Platform for Assisted Living

Cited by 10 publications

References 7 publications

Challenges of ethical and legal responsibilities when technologies’ uses and users change: social networking sites, decision-making capacity and dementia

Challenges of ethical and legal responsibilities when technologies’ uses and users change: social networking sites, decision-making capacity and dementia

Cybersecurity in health – disentangling value tensions

SoTRAACE for active security in Ambient Assisted Living

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