Prioritizing and Promoting Hernia Awareness Month: A Call for Action

Malhotra, Kashish; Bawa, Ashvind

doi:10.1007/s00268-022-06553-6

Cited by 11 publications

(8 citation statements)

References 8 publications

(7 reference statements)

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“…We note the top influencers led support for the PCOS Awareness Month year-on-year sustaining the conversations related to PCOS. This finding is contrasting to the evaluation of other similar initiatives where the awareness months had limited reach with declining trends (22,25). Therefore, there is an opportunity for potential collaborations between these key players and organisations so a collective effort can amplify the efforts to reach a larger and more diverse audience.…”

Section: Discussioncontrasting

confidence: 62%

“…An overall upward trend in PCOS awareness suggests the effectiveness of active involvement from various stakeholders and legal recognition of the cause. However, legal recognition may not always lead to increased impact as seen in the case of Hernia Awareness Month (22). Furthermore, increased engagement may not ultimately lead to increased positive impact due to various limitations such as misinformation spread and stigmatising online coverage.…”

Section: Discussionmentioning

confidence: 99%

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Identifying the challenges and opportunities of PCOS awareness month by analysing its global digital impact

Malhotra

Pan²,

Davitadze³

et al. 2023

Front. Endocrinol.

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Background and objectiveAlthough significant resources are invested each September for PCOS Awareness Month campaign, there are no studies measuring its impact. We evaluated the digital impact of PCOS Awareness Month, common themes and associated topics, top influencers, and global equity of influence during the PCOS Awareness month.MethodsIn this serial cross-sectional analysis, we studied the outputs from Symplur® to study the total impressions of #PCOS on Twitter®. We tracked the hashtags—#PCOS, #PCOSawarenessmonth, #PCOSawareness—and a search query— “#PCOS OR #PCOSawarenessmonth OR #PCOSawareness”—using Sproutsocial® to study the total number of tweets related to PCOS Awareness Month. Network analysis was done using SocioViz® to identify common themes and associated topics. Using SymplurRank® machine learning algorithm, the top 10 #PCOS influencers were identified based on the number of mentions received. Google® Trends was used to study the web and news search popularity over the last 10 years beyond social media platforms.ResultsAn overall upward trend in the digital impact of PCOS awareness was noted since 2017. While the top themes associated with PCOS (insulin resistance, depression, anxiety, menopause, hormones, infertility) remained the same in 2021 and 2022, newer themes emerged in the latter year suggesting the need for ongoing review. News outlets were the most influential organisations during PCOS Awareness Month in both years of study. Seven of the top 10 users were the same in both years. Limited engagement from African, Asian, South American, and non-English speaking European countries was seen on Google Trends analysis.ConclusionActive involvement from various stakeholders of PCOS Awareness Month has shaped it into an effective strategy to raise awareness with social media playing a crucial role in amplifying the message. Our findings also provide an opportunity to understand the current perceptions and expectations amongst the public, which can influence future healthcare investment and research.

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Section: Discussioncontrasting

confidence: 62%

Section: Discussionmentioning

confidence: 99%

Identifying the challenges and opportunities of PCOS awareness month by analysing its global digital impact

Malhotra

Pan²,

Davitadze³

et al. 2023

Front. Endocrinol.

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“…Though the limited digital participation of African countries was also seen in other similar articles evaluating the impact of Hernia Awareness Month [20] and Polycystic Ovary Awareness Month [21], improving representation from less privileged communities may help to bridge the gap between economic and social disparities in stroke awareness.…”

Section: Discussionmentioning

confidence: 95%

Evaluating the Global Impact of Stroke Awareness Month: A Serial Cross-Sectional Analysis

Goyal¹,

Nafri²,

Marwah³

et al. 2022

Cureus

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Introduction: Stroke is the second-leading cause of mortality in the world and ranks fifth in terms of causes of death in the United States. "Time is brain" when it comes to the detection and treatment of a stroke as it can reduce morbidity and disability in the long run. May is recognized as Stroke Awareness Month to involve the concerned stakeholders. The goal of this month is to raise public awareness of the risk factors for stroke and to minimize its occurrence. We, for the first time, evaluated the actual impact of this awareness campaign to formulate evidence-based recommendations to promote stroke awareness.Methods: The total number of tweets posted in the month of May from 2014 to 2022 were extracted. The search queries used were "stroke awareness month OR stroke month OR #strokemonth OR #strokewarenessmonth" and "stroke OR #stroke". Social network analysis of the tweets was done to understand the context of posts. Network analysis provides the capacity to estimate complex patterns of relationships and gives insights into useful information about impact, reach, and interactions in an environment. The top 100 related hashtags, influencers, and keywords were extracted. Beyond social media usage, Google Trends web search analysis was done for the search term 'stroke awareness month' for interest by region of the last five years to get an overall idea of the internet search trends globally.Results: Out of the total 989,935 tweets about stroke posted in May 2022, only 1.07% of the tweets were specific to Stroke Awareness Month. The mean and standard deviation of the percentage of targeted action from 2014 to 2022 have been 3.14% and 1.35%, respectively. Forty-five percent of the top users never collaborated with each other. On Google Trends analysis, the event had primary involvement from the United States and the United Kingdom. The event had very limited reach in other continents, especially in Asian and African countries. Conclusion: Our estimates highlight the limited digital impact of Stroke Awareness Month globally. The use of social media should be promoted, particularly in developing countries, to provide reliable information and generate user involvement on a global scale. Findings from this study can be leveraged to inform future policies for stroke awareness campaigns that improve public and global health.

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“…This also has been used in similar studies in other specialties like cardiology ( 12 ) and critical care medicine ( 13 ). Recently, some of the authors of this article have applied this methodology to study the global impact of stroke awareness month ( 14 ), deep vein thrombosis awareness month ( 15 ), hernia awareness Month ( 16 ) and world hypertension day ( 17 ). The alternative forms of the term “Polycystic Ovary syndrome” that were included in the search query on Cronycle were- polycystic ovary, sindrome de ovario poliquistico, pco-syndrom, hyperandrogenic anovulation, syndrome des ovaires polykystiques, polycystic ovarian syndrome, pos, stein-leventhal syndrome, síndrome dos ovários policísticos, pcos, polycystic ovary syndrome (japanese), syndrome delle ovaie policistiche, polycystic ovary disorder, Polycystic Ovary Syndrome (chinese).…”

Section: Methodsmentioning

confidence: 99%

Top 100 #PCOS influencers: Understanding who, why and how online content for PCOS is influenced

et al. 2022

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BackgroundWith the exponential increase in digital space of social media platforms, a new group called social media influencers are driving online content of polycystic ovary syndrome (PCOS) which eventually influences behaviour and decision-making process. The objective of this study was to identify the top 100 social media (Twitter) influencers and organizations from across the globe who are advocating for PCOS. We further explored the origin and journey of these social media influencers.MethodsWe identified the top 100 PCOS influencers and organizations between July and August 2022 using three social network analysis tools- Cronycle, Symplur and SocioViz. These influencers were invited to a semi-structured interview to explore why they chose to become an influencer and the support they have to deliver their online content. Two independent authors coded the anonymised transcripts from these interviews and broad themes were identified by thematic inductive analysis.Results95.0% of individual influencers and 80% of organisations are from high-income countries. Most influencers in our study agree that social media is an essential tool in the present day to raise awareness of PCOS. However, they reiterated social media also has significant disadvantages that require consideration and caution. Most influencers were driven by poor personal experience and worked voluntarily to reduce misinformation and improve the experiences of women diagnosed with PCOS in the future. Although there is an interest in working together, there is currently minimal collaborative work between influencers.ConclusionThere is a global inequity of #PCOS influencers online. Establishing standards and support based on evidence may help develop more influencers, especially in low- and middle-income countries, so we can counter misinformation and provide locally acceptable guidance.

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Prioritizing and Promoting Hernia Awareness Month: A Call for Action

Cited by 11 publications

References 8 publications

Identifying the challenges and opportunities of PCOS awareness month by analysing its global digital impact

Identifying the challenges and opportunities of PCOS awareness month by analysing its global digital impact

Evaluating the Global Impact of Stroke Awareness Month: A Serial Cross-Sectional Analysis

Top 100 #PCOS influencers: Understanding who, why and how online content for PCOS is influenced

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