Priorities and Understanding of Pregnancy Among Women With Congenital Heart Disease: A Mixed-Methods Study

Herrick, Nicole L.; Stone, Jordan; Easwar, Neela; Dehghan, Yalda; El‐Said, Howaida; Casas, Maria Moceri; Alshawabkeh, Laith

doi:10.1016/s0735-1097(19)31205-7

Cited by 1 publication

(9 citation statements)

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“…Like previous CHD researchers, the findings of this study support the notion that health providers should initiate childbearing discussions early and often. 10,13,14,[16][17][18] Interestingly, participants in this study described being pregnant as frightening and traumatic. After a first pregnancy, some women in this study decided the experience was too traumatic and decided not to bear any more children.…”

Section: Discussionmentioning

confidence: 72%

“…This finding is consistent with the literature where, regardless of the risks associated with CHD, emotions can be a motivator for making childbearing decisions. 13,30 Overall, this area is understudied, and further research is needed.…”

Section: Discussionmentioning

confidence: 99%

“…Health providers have an opportunity to provide unbiased expert clinical information to empower women with CHD with the knowledge to make well-informed decisions. 13,31,35 Frequent, open, honest conversations between health providers and women with CHD are important to facilitate thoughtful childbearing decisions.…”

Section: Implications For Practice and Researchmentioning

confidence: 99%

“…14 Yet, when studying the motivation of women with CHD to bear a child, researchers 15 found that women with CHD underestimate the consequences of pregnancy on their cardiovascular health. Although investigators previously examined many aspects of childbearing counseling, 10,13,14,[16][17][18] only a handful of investigators have examined the childbearing experiences of women with CHD. 9,13 A better understanding of the childbearing decision-making experiences of women with CHD and the emotional, relational, and interactional adaptation to that decision is needed.…”

mentioning

confidence: 99%

“…Although investigators previously examined many aspects of childbearing counseling, 10,13,14,[16][17][18] only a handful of investigators have examined the childbearing experiences of women with CHD. 9,13 A better understanding of the childbearing decision-making experiences of women with CHD and the emotional, relational, and interactional adaptation to that decision is needed.…”

mentioning

confidence: 99%

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We Have to Really Decide

Osteen,

Tucker,

Meraz

2023

J Cardiovasc Nurs

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Background Medical management and surgical improvement techniques permit persons with congenital heart conditions to live longer. Adults with congenital heart disease (CHD) have more childbearing options than previously available to them. However, there is an increased childbearing risk associated with certain types of CHD. Minimal investigation has been given to the childbearing decision-making experiences and adaptation of women with CHD. Objective The aim of this study was to gain insight into the childbearing decision-making and adaptation experiences of women with CHD. Methods Using a narrative inquiry approach, 17 adult women with CHD of any severity, of childbearing age, who had, within the last 5 years, made a decision regarding childbearing, were interviewed. In this study, we applied the key components of the Roy Adaptation Model to understand childbearing decision-making experiences and their adaptation. Data were analyzed using thematic analysis. Results Data analysis revealed 5 stages of childbearing decision making: (1) prologue: stimulus to consider childbearing; (2) exploring childbearing options; (3) considering childbearing options; (4) choosing to bear or not to bear a child; and (5) epilogue: adapting to the childbearing decision. Adaptation occurred in the areas of self-concept (ie, emotional adaptation), role function (ie, relational adaptation), and interdependence (ie, interactional adaptation). Conclusion Childbearing decision making is a complex personal decision that is carefully and deliberately made. Women with CHD long for children and seek childbearing information from various resources and may experience grief regarding the inability to bear children. A greater understanding of childbearing decision making can be useful in addressing women's childbearing emotions and assist with adaptation to childbearing needs.

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