Principles and Recommendations for the Provision of Healthcare in Canada to Adolescent and Young Adult–Aged Cancer Patients and Survivors

Fernandez, Conrad V.; Fraser, Graeme; Freeman, Carolyn R.; Grunfeld, Eva; Gupta, Abha; Mery, Les; Pauw, Sonja De; Schacter, for the Canadian Task For Brent

doi:10.1089/jayao.2010.0008

Cited by 103 publications

(87 citation statements)

References 31 publications

(33 reference statements)

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“…During a workshop organized by the Canadian Task Force on Adolescent and Young Adult Cancer, issues similar to the ones identified in our study were described, specifically the medical and psychological care needs; however, our findings also highlight specific social care and system care needs that are rarely discussed (if at all) in the literature 35 . Ramphal et al 11 described a new model of cancer care with a focus on medical care, psychosocial support, and physical environment (related to treatment).…”

Section: Discussionsupporting

confidence: 65%

Do Current Cancer Follow-Up Care Practices Meet the Needs of Young Adult Cancer Survivors in Canada? A Aualitative Inquiry

2013

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Purpose: The purpose of the present study was to assess whether current cancer follow-up care practices meet the needs of young adult cancer survivors in Canada. Methods: This qualitative study used a constructivist grounded theory framework to analyze telephone interviews with cancer survivors from across Canada diagnosed between the ages of 18 and 39 years. The focus was specifically on cancer follow-up care (cfc). Results: Interviews were conducted with 55 participants, and 53 interviews were used for the analysis. The overall theme that emerged from the data was the lack of age-specific cfc. Some of the subthemes that emerged were the absence or inadequacy of fertility and infertility treatment options; of psychological services such as family, couples, and sexuality counseling; of social supports such as assistance with entry or re-entry into the education system or workplace; of access to supplemental health insurance; and of survivorship care plans. Based on the data resulting from the interviews, we developed a conceptual model of young-adult cfc incorporating the major themes and subthemes that emerged from our study. The proposed model aims to ensure a more age-appropriate and comprehensive approach to cfc for this group of cancer patients. Conclusions: Current Canadian cfc practices are inadequate and do not provide comprehensive care for young adult cancer survivors in Canada. The conceptual model presented here aims to ensure a more comprehensive approach to cfc that meets the needs of this unique cancer population and reduces further possible physical, psychological, or social cancer sequelae.

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Section: Discussionsupporting

confidence: 65%

Do Current Cancer Follow-Up Care Practices Meet the Needs of Young Adult Cancer Survivors in Canada? A Aualitative Inquiry

2013

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“…These issues include body-image concerns, difficulties in tolerating treatment side-effects, lack of compliance, social isolation, and lack of emotional support -all of which can directly hamper re-assimilation of survivors in society as productive members. [33,34] The BPSI program that clearly impacted QoL by 1 year post intervention in the current report has several advantages: First, it is based on the predictable sequence of feelings, thoughts, and behaviors that are universal to all humans going through a life-changing event. Second, it provides a structured program incorporating audio, visual, and kinesthetic learning styles, which is reproducible in a variety of healthcare settings.…”

Section: Discussionmentioning

confidence: 99%

A bio-psychosocial intervention program for improving quality of life in breast cancer survivors: Results of a prospective randomized trial

Pettiford

Felts

Wischkaemper

et al. 2016

JST

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Background: Given the 3.1 million breast cancer survivors in America, quality of life (QoL) is a vital issue. Bio-psychosocial milieu of survivorship is increasingly important. This study assesses the impact of bio-psychosocial intervention (BPSI) on the QoL of breast cancer survivors utilizing Functional Assessment of Cancer Therapy -Breast (FACT-B) instrument. Methods: A prospective randomized trial was designed; intervention arm included a 4-hour BPSI coping skills class; control arm received standard of cancer (SOC) and follow up care. Women diagnosed within 2 years of study initiation were eligible. Sample size was based on 8-point difference in FACT-B score, 90% power, 5% type I error, and 20% attrition. FACT-B questionnaire was administered to all patients at baseline and at 6-month intervals. SAS 9.3 software was used to analyze data using Chi-square test for categorical and Wilcoxon rank sum for ordinal data; linear mixed modeling was used for longitudinal analysis. Results: One hundred and three of 120 (86%) patients were available for analysis. Forty-seven patients were in BSPI arm, and 56 received SOC. For BPSI arm vs. SOC arm, the median (interquartile) age [60 (52, 68) vs. 58 (52, 68)yrs. P = .9135], cancer-stage (0: 1: 2: 3 = 11%: 41%: 35%: 13% vs. 18%: 46%: 22%: 15%, P = .4645), and biology (triple-negative: HER2+ : ER+ = 9%: 74%: 17% vs. 8%: 72%: 20%, P = .8454), respectively, was similar. Mean (SE) FACT-B scores in BPSI vs. SOC arms at 6 months and 1 year were 115.1 (2.2) vs. 114.6 (2.0) (P = .8731) and 124.7(2.8) vs. 101.4 (2.4) (P = .0001). The inter-group difference significantly expanded at 1 year (P = .0001). The 12-month difference persisted when confounding baseline variables were adjusted for in in multivariate modeling. Conclusion: BPSI coping skills class significantly improved the QoL of breast cancer survivors by one year post-intervention time point.

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“…The lower bound is uncontested, given that the international registration of children with cancer encompasses the group 0-14 years of age. Furthermore, there is growing acceptance that, for this purpose, "adolescence" comprises the teenage (15)(16)(17)(18)(19) years. Much less agreement exists on the upper bound for ayas.…”

Section: Importance Of Cancer Clinical Trialsmentioning

confidence: 99%

“…In Canada, early interest in aya oncology was driven by the Pediatric Oncology Group of Ontario 14 and the C 17 Council (http://www.c17.ca), a consortium of all pediatric cancer centres in Canada. The Canadian Task Force on Adolescents and Young Adults with Cancer was established in 2008, funded by the Canadian Partnership Against Cancer.…”

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confidence: 99%

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Accrual of Adolescents and Young Adults with Cancer to Clinical Trials

et al. 2016

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Principles and Recommendations for the Provision of Healthcare in Canada to Adolescent and Young Adult–Aged Cancer Patients and Survivors

Cited by 103 publications

References 31 publications

Do Current Cancer Follow-Up Care Practices Meet the Needs of Young Adult Cancer Survivors in Canada? A Aualitative Inquiry

Do Current Cancer Follow-Up Care Practices Meet the Needs of Young Adult Cancer Survivors in Canada? A Aualitative Inquiry

A bio-psychosocial intervention program for improving quality of life in breast cancer survivors: Results of a prospective randomized trial

Accrual of Adolescents and Young Adults with Cancer to Clinical Trials

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