Principles and philosophies for speech and language therapists working with people with primary progressive aphasia: an international expert consensus

Volkmer, Anna; Cartwright, Jade; Ruggero, Leanne; Beales, Ashleigh; Grasso, Stephanie; Henry, Maya L.; Jokel, Regina; Kindell, Jacqueline; Khayum, Rebecca; Pozzebon, Margaret; Rochon, Elizabeth; Taylor-Rubin, Cathleen; Townsend, R.; Walker, Ffion; Beeke, Suzanne; Hersh, Deborah

doi:10.1080/09638288.2022.2051080

Cited by 31 publications

(31 citation statements)

References 49 publications

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“…At a routine clinical review (as is recommend for clinical management of progressive communication disorders; Volkmer et al, 2022 ), scheduled two months after completing the intervention, MM and GG reported ongoing benefit of the therapeutic strategies in their mutual communication. They rated both goals they had set as overachieved (see Table 2 ).…”

Section: Resultsmentioning

confidence: 99%

Better conversations: a language and communication intervention for aphasia in posterior cortical atrophy

et al. 2022

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Posterior cortical atrophy (PCA) describes a neurodegenerative syndrome characterized by progressive difficulties in cortical visual and other posterior cortical functions consistent with parieto-occipital and occipito-temporal involvement. It is increasingly recognized that many patients develop difficulties with other aspects of daily living, in particular, with language and communication. We present a case emphasizing how language difficulties may emerge in PCA. Difficulties are interpreted as arising from interacting effects of linguistic deficits and impaired detection of nonverbal (particularly, visual) turns that normally facilitate, schedule, and disambiguate the exchange of verbal messages between speakers. We propose that relatively simple speech and language therapy interventions may hold promise in addressing language and communication difficulties as secondary features of PCA by targeting the behaviors of both the person with PCA and their communication partners.

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Section: Resultsmentioning

confidence: 99%

Better conversations: a language and communication intervention for aphasia in posterior cortical atrophy

et al. 2022

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“…This philosophy is directly in line with the Life Participation Approach in Aphasia (LPAA), where enhancing a person's engagement and successful participation is the overarching aim of treatment outcomes (Volkmer, Cartwright, Ruggero et al, 2022;Chapey et al, 2000; Rogalski & Khayum, 2018; Ruggero et al 2019), as well as the AFROM (Kagan et al, 2008) and FOURC Model frameworks (Haley et al, 2018), where collaboration between the clinician and client is at the center for intervention in post-stroke aphasia. Moreover, consistent with these frameworks, a person's self-evaluation of their communicative success must be considered in order to contextualize their strengths and weaknesses, as well as to best form and scaffold treatment goals (Galletta & Barrett, 2014).…”

Section: Gallée Et Al In Press)mentioning

confidence: 96%

“…Functional communication and its success can be operationalized as a person's ability to successfully interact in various communicative environments with multimodal communication (Holland 1982;Crockford & Lesser, 1994;Clark, 1996). While easily defined, communicative success is complex to assess in a reliable, systematic manner that reflects real-world examples (Doedens & Meteyard, 2022) as well as client needs (Gallée & Volkmer, 2021; Volkmer, Cartwright, Ruggero et al, 2022). In response to this complexity, Gallée and Volkmer (2021) affirmed that all evaluation of speech and language abilities must consider "the use of language and how these aspects may impact functional communication" (p. 705).…”

Section: Introductionmentioning

confidence: 99%

The Communication Success Screener (COMSS): a pilot study of perceived communicative success across modalities, environments, and demands.

Tilton-Bolowsky¹,

Stark²

2022

Preprint

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Background: Behavioral intervention targeting speech, language, and communication concerns is an established therapeutic approach for patients with either acute or progressive communication concerns across a range of acquired neurogenic disorders. The multidimensional factors that contribute to a person’s self-identified communication challenges and strengths in their daily communication needs must be considered to provide functional and person-centered care. While many assessments grounded in clinician observation or client self-report have been developed to capture communication impairments, there is a direct need for a screening tool that comprehensively evaluates the roles of modality (verbal, text, gesture) and environment (in- person, virtual) on self-reported success across communicative demands.Aims: We describe and validate an approach to monitoring the progression of receptive and expressive communication skills in acquired neurogenic communication disorders in the context of communication practices of the 21st century, culminating in the development, implementation, and applications of a novel clinical instrument for this purpose: the Communication Success Screener (COMSS). Methods and Procedures: Thirty-three participants with acquired aphasia were recruited to complete and evaluate the COMSS via an online survey. Quantitative and open-ended participant feedback was used to validate and propose adaptations to the COMSS. Group level analyses and case presentations are used to highlight COMSS features and outcomes.Outcomes and Results: Participant responses to the COMSS questionnaire demonstrate that this screening tool creates differentiated communicative success profiles based on self-report. Participant feedback indicated that the COMSS appropriately evaluates self-reported success across modalities of verbal, written, and non-verbal expression in the context of in-person and virtual environments.Conclusions and Implications: Individuals with communication-led concerns often display heterogeneous language profiles with individualized functional communication concerns as a function of their daily activities of living and environmental supports. We introduce the COMSS as a valid tool to improve treatment goals and monitoring of functional change by evaluating self-reported communicative success as a function of form, modality, environment, and task demand.

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“…Principy péče orientované na pacienta jsou také oblastí, kde se prolínají témata a nápady doporučené pro praxi logopedů pracujících s pacienty s PPA ve studii Volkmer et al (2022). Ti na základě rozhovorů se zkušenými logopedy vytvořili souhrn několika doporučení pro praxi.…”

Section: Péče Zaměřená Na Pacientaunclassified

“…V roce 2021 se na klinické afaziologické konferenci rozsáhle diskutovalo o udržení a generalizaci u pacientů s PPA (Jokel, 2022). Zatímco efektivita terapie je prokázána pro (limitované) zachování lexikonu, generalizace většinou součástí terapeutických protokolů nebývá.…”

Section: Generalizace V Terapii Primární Progresivní Afázieunclassified

Therapy of Primary Progressive Aphasia in Current Research

Hlaváčová¹

2022

LKL

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Primární progresivní afázie je neurodegenerativní klinický syndrom s predominantní poruchou v oblasti řeči a jazyka. V současné době neexistuje léčebná ani symptomatická farmakologická terapie. Logopedická intervence představuje pro pacienty s primární progresivní afázií optimální terapii pro maximalizaci komunikačních schopností po co nejdelší možnou dobu. Klinický logoped má k dispozici několik terapeutických strategií zaměřených na konkrétní deficity nebo strategie orientované funkcionálně. Následující článek podává přehled o terapeutických přístupech k primární progresivní afázii a specifikách generalizace terapie u pacientů s tímto syndromem v obraze aktuálního výzkumu. Vzhledem k jeho slibným závěrům poukazujícím na efektivitu logopedické terapie je tak zdůrazněna nezbytnost odeslání pacientů s diagnostikovanou primární progresivní afázií do péče klinického logopeda v co nejkratší možné době po stanovení diagnózy.

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Principles and philosophies for speech and language therapists working with people with primary progressive aphasia: an international expert consensus

Cited by 31 publications

References 49 publications

Better conversations: a language and communication intervention for aphasia in posterior cortical atrophy

Better conversations: a language and communication intervention for aphasia in posterior cortical atrophy

The Communication Success Screener (COMSS): a pilot study of perceived communicative success across modalities, environments, and demands.

Therapy of Primary Progressive Aphasia in Current Research

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