Primary health care: applying the principles within a community-based participatory health research project that began in a Canadian women’s prison

Martin, Ruth Elwood; Murphy, Kelly; Chan, Rene; Ramsden, Vivian R.; Granger-Brown, Alison; Macaulay, Ann C.; Kahlon, Roopjeet; Hislop, T. Gregory

doi:10.1177/1757975909348114

Cited by 27 publications

(20 citation statements)

References 20 publications

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“…During a previous community-based participatory health research study, 17 incarcerated women proposed a peer health mentoring program to support women to achieve their health goals during the days immediately after release, when women report feeling most vulnerable and are most at risk for adverse health outcomes. 2,3,18,19 We implemented this idea by training and employing women with incarceration experience as peer health mentors.…”

Section: Interventionmentioning

confidence: 99%

Supporting women leaving prison through peer health mentoring: a participatory health research study

McLeod¹,

Korchinski²,

Young³

et al. 2020

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Section: Interventionmentioning

confidence: 99%

Supporting women leaving prison through peer health mentoring: a participatory health research study

McLeod¹,

Korchinski²,

Young³

et al. 2020

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“…18 The inclusion of community members in the research team as partners helps to protect the target population from harm and exploitation. 19 Martin et al 20 engaged incarcerated women in a study involving community-based participatory research. Female inmates, correctional center staff, and academic researchers participated collaboratively.…”

Section: Research On the Health Of Incarcerated Womenmentioning

confidence: 99%

“…In-depth interviews were conducted with 16 incarcerated women and, in-depth group interviews were facilitated with 16 correctional center staff. 20 In an extension of the study, up to 15 women worked each day as prison research team members; between November 2005 and August 2007, a total of 190 women participated at some time in the project. 21 The researchers used an ethnographic multi-method approach for data collection and analysis.…”

Section: Research On the Health Of Incarcerated Womenmentioning

confidence: 99%

Ethical and Social Issues in Health Research Involving Incarcerated People

Coughlin¹,

Lewis²,

Smith³

2016

hpu

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The use of inmates in research in the U.S. was restricted by the recommendations of the National Commission and by federal regulations and guidelines that followed. By the 1980s, many health care officials became concerned about the exclusion of inmates from experimental treatments for human immunodeficiency virus infection (HIV). These developments in ethics occurred in the context of racial/ethnic disparities in health. In this article, ethical considerations in clinical and public health research on HIV in prison and jail settings are considered. Ethical considerations in mental health research are summarized as well as issues pertaining to research involving female inmates. Issues related to oversight of research involving incarcerated people are considered along with the ethics of public health research. The ethics of research involving incarcerated people extends beyond traditional issues in human subjects ethics to include issues within the domains of bioethics and public health ethics.

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“…Our rationale for applying a realist approach to this topic is described elsewhere [13]. Described here are the tools and procedures we developed and used for identification, selection, appraisal, and synthesis.…”

Section: Introductionmentioning

confidence: 99%

Assessing the outcomes of participatory research: protocol for identifying, selecting, appraising and synthesizing the literature for realist review

et al. 2011

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BackgroundParticipatory Research (PR) entails the co-governance of research by academic researchers and end-users. End-users are those who are affected by issues under study (e.g., community groups or populations affected by illness), or those positioned to act on the knowledge generated by research (e.g., clinicians, community leaders, health managers, patients, and policy makers). Systematic reviews assessing the generalizable benefits of PR must address: the diversity of research topics, methods, and intervention designs that involve a PR approach; varying degrees of end-user involvement in research co-governance, both within and between projects; and the complexity of outcomes arising from long-term partnerships.MethodsWe addressed the above mentioned challenges by adapting realist review methodology to PR assessment, specifically by developing inductively-driven identification, selection, appraisal, and synthesis procedures. This approach allowed us to address the non-uniformity and complexity of the PR literature. Each stage of the review involved two independent reviewers and followed a reproducible, systematic coding and retention procedure. Retained studies were completed participatory health interventions, demonstrated high levels of participation by non-academic stakeholders (i.e., excluding studies in which end-users were not involved in co-governing throughout the stages of research) and contained detailed descriptions of the participatory process and context. Retained sets are being mapped and analyzed using realist review methods.ResultsThe librarian-guided search string yielded 7,167 citations. A total of 594 citations were retained after the identification process. Eighty-three papers remained after selection. Principle Investigators (PIs) were contacted to solicit all companion papers. Twenty-three sets of papers (23 PR studies), comprising 276 publications, passed appraisal and are being synthesized using realist review methods.DiscussionThe systematic and stage-based procedure addressed challenges to PR assessment and generated our robust understanding of complex and heterogeneous PR practices. To date, realist reviews have focussed on evaluations of relatively uniform interventions. In contrast our PR search yielded a wide diversity of partnerships and research topics. We therefore developed tools to achieve conceptual clarity on the PR field, as a beneficial precursor to our theoretically-driven synthesis using realist methods. Findings from the ongoing review will be provided in forthcoming publications.

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Primary health care: applying the principles within a community-based participatory health research project that began in a Canadian women’s prison

Cited by 27 publications

References 20 publications

Supporting women leaving prison through peer health mentoring: a participatory health research study

Supporting women leaving prison through peer health mentoring: a participatory health research study

Ethical and Social Issues in Health Research Involving Incarcerated People

Assessing the outcomes of participatory research: protocol for identifying, selecting, appraising and synthesizing the literature for realist review

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