Primary and Secondary Caregivers of People with Dementia (PwD): Differential Patterns and Implications for Psychological Support

Gorostiaga, Arantxa; Etxeberría, Igone; Salaberría, Karmele; Kortabitarte, Iñigo

doi:10.3390/healthcare10061102

Cited by 6 publications

(6 citation statements)

References 52 publications

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“…This gender profile is consistent with many studies on dementia in which the caregivers are mainly female (i.e. [20,[78][79][80][81]). Doss et al [82,83] also showed that women are the initiators of couple therapy in 73.2% of cases and that they are more prone to seek conjugal therapy when they are distressed.…”

Section: Acceptability Of Interventionsupporting

confidence: 90%

Hypnosis Intervention for Couples Confronted with Alzheimer’s Disease: Promising Results of a First Exploratory Study

Wawrziczny

Picard

Buquet

et al. 2022

JAD

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Background: Dementia has a negative impact on the quality of life of the person with dementia and their spouse caregivers, as well as on the couple’s relationship, which can lead to high levels of distress for both partners. Hypnosis has been shown to be effective in managing distress and increasing the quality of the relationship. Objective: The aim was to develop a standardized hypnosis intervention for couples confronted with Alzheimer’s disease and evaluate its feasibility, acceptability, and helpfulness in managing the distress of both partners and increasing the quality of the relationship. Methods: In a single-arm study, sixteen couples received the 8-week intervention. Qualitative and quantitative assessments were conducted pre- and post-intervention as well as three months after. Results: 88.9% of couples (n = 16) of the final sample (n = 18) completed the intervention. Despite the negative representations of hypnosis, several factors led couples to accept to participate in this study: positive expectations, professional endorsement, medical application, non-drug approach, home-based, free, flexible, and couple-based intervention. The results showed a significant decrease in distress for both partners. These effects were maintained three months after the intervention. Couples felt more relaxed, had fewer negative emotions, accepted difficulties more easily, were more patient, and reported better communication and more affection in the relationship. Conclusion: Overall, this pilot study shows the feasibility and acceptability of hypnosis with couples confronted with Alzheimer’s disease. Although measures of the preliminary pre- and post-intervention effects are encouraging, confirmatory testing with a randomized controlled trial is needed.

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Section: Acceptability Of Interventionsupporting

confidence: 90%

Hypnosis Intervention for Couples Confronted with Alzheimer’s Disease: Promising Results of a First Exploratory Study

Wawrziczny

Picard

Buquet

et al. 2022

JAD

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“…Most of the family caregivers were women, and they had higher dementia grief scores than men. This may be caused because women are also often involved in other tasks, such as child and household care [28,29]. In addition, these caregivers lack free time and often limit their employment to part-time work or even sacrifice their job and opportunities for advancement, affecting family income and financial stability.…”

Section: Discussionmentioning

confidence: 99%

Relationship between Depressive Symptoms, Caregiver Strain, and Social Support with Dementia Grief in Family Caregivers

Sánchez-Alcón,

Garrido-Fernández,

Cano-Rojas

et al. 2024

Medicina

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Background and Objectives: Dementia grief in family caregivers of people with dementia refers to grieving prior to the death of the care recipient. It is related to psychosocial risk factors that may have a negative impact on the health of these family caregivers. This study aimed to describe the relationship between depressive symptoms, caregiver strain, and social support with dementia grief in family caregivers of people with dementia. Materials and Methods: A descriptive correlational cross-sectional study was conducted. A total of 250 family caregivers of people with dementia participated. Dementia grief was the main variable, and depressive symptoms, caregiver strain, and social support were assessed. Additionally, socio-demographic data were collected. Descriptive statistics were calculated, and a bivariate correlation analysis and a multiple linear regression analysis were performed for dementia grief. Results: Higher scores for dementia grief were found in women, in family caregivers of patients at advanced stages of dementia, and in family caregivers with a low level of education. High levels of depressive symptoms and caregiver strain and low levels of social support indicated greater intensity of dementia grief. Depressive symptomatology was the variable with the greatest influence on dementia grief. Caregiver strain and social support also related to dementia grief, but to a lesser extent. Conclusions: In family caregivers, depressive symptoms, caregiver strain, and social support are related to the intensity of dementia grief, with a greater influence of depressive symptoms. Moreover, being female, having a low level of education, and caring for a care recipient at an advanced stage of dementia are factors associated with increased dementia grief. Concerning study limitations, the sample was restricted, belonging to a specific region of Spain and to a Provincial Federation of associations. It is necessary to exercise caution in generalizing results due to the sociodemographic and geographical characteristics of the sample.

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“…Carers should therefore be considered essential partners in the planning and provision of care in all settings according to the wishes and needs of the person with dementia, and they should have access to the support and services tailored to their needs to effectively respond to and manage the physical, mental, and social demands of their caring role. Listening to the voices of the next-of-kin carers as informal carers of dementia sufferers—and increasing, improving, and adapting community-based services—will contribute to reducing the burden [ 53 , 54 ].…”

Section: Discussionmentioning

confidence: 99%

The Burden of Next-of-Kin Carers of Dementia Sufferers in the Home Environment

Tokovská

Šolcová

2022

Healthcare

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The role and responsibilities of next-of-kin carers are significant, filling several years of their lives and causing them to experience a burden of care. This study was conducted to investigate the burden of next-of-kin carers for dementia sufferers in Slovakia. Data were compiled via the Relatives’ Stress Scale (RSS) screening instrument through a survey of 112 primary next-of-kin carers and analysed using the statistical tests of descriptive statistics, means, scores and significance differences (Wilcoxon test). This is one of the few scales which provides: (a) specific measures of caregiver stress, and (b) is standardised for a population of informal carers in the home environment. The profiles of Slovak next-of-kin carers were identified with statistically significant characteristics (gender, age of carers). The study identified a high level of caregiving stress (82.15%), and selected factors were found to be significant in all burden dimensions: emotional stress (p = 0.001), social stress (p = 0.003), and negative feelings (p = 0.002). The results emphasise the need for coordination of healthcare and social services, possibly by expanding the network of social support groups, operating a counselling hotline/chat, and introducing national educational programmes for the next-of-kin carers of dementia sufferers. The results are also a source of reference for the umbrella organisation ‘the Slovak Alzheimer’s Society’ to access when implementing changes at a national level.

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Primary and Secondary Caregivers of People with Dementia (PwD): Differential Patterns and Implications for Psychological Support

Cited by 6 publications

References 52 publications

Hypnosis Intervention for Couples Confronted with Alzheimer’s Disease: Promising Results of a First Exploratory Study

Hypnosis Intervention for Couples Confronted with Alzheimer’s Disease: Promising Results of a First Exploratory Study

Relationship between Depressive Symptoms, Caregiver Strain, and Social Support with Dementia Grief in Family Caregivers

The Burden of Next-of-Kin Carers of Dementia Sufferers in the Home Environment

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