Preventive Intervention for Children with Cancer and Their Families at the End-of-Life

Tadmor, Ciporah S.

doi:10.1023/b:jopp.0000018056.51429.c7

Cited by 8 publications

(10 citation statements)

References 20 publications

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“…77,79 Of included editorials, two authors referred to specific theory as Family Management Style Framework 12 and Perceived Personal Control Crisis Model. 69 …”

Section: Resultsmentioning

confidence: 99%

“…For expert opinion/commentary papers, two manuscripts included author mention of potential personal bias or how personal perspective may influence writing. 61,69 …”

Section: Resultsmentioning

confidence: 99%

“…Publication types included 36 original research articles, 2,3,12–45 31 editorial or expert opinion papers, 4,5,46–74 1 consensus report, 75 and 4 reviews. 76–79 Of the original research articles, 7 were mixed method, 7 were qualitative design, and 22 were quantitative design (supplementary Table 1).…”

Section: Resultsmentioning

confidence: 99%

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Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review

et al. 2015

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Background: Despite standardization in disease assessments and curative interventions for childhood cancer, palliative assessments and psychosocial interventions remain diverse and disparate. Aim: Identify current approaches to palliative care in the pediatric oncology setting to inform development of comprehensive psychosocial palliative care standards for pediatric and adolescent patients with cancer and their families. Analyze barriers to implementation and enabling factors. Design: Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines framed the search strategy and reporting. Data analysis followed integrative review methodology. Data sources: Four databases were searched in May 2014 with date restrictions from 2000 to 2014: PubMed, Cochrane, PsycINFO, and Scopus. A total of 182 studies were included for synthesis. Types of studies included randomized and non-randomized trials with or without comparison groups, qualitative research, prior reviews, expert opinion, and consensus report. Results: Integration of patient, parent, and clinician perspectives on end-of-life needs as gathered from primary manuscripts (using NVivo coding for first-order constructs) revealed mutual themes across stakeholders: holding to hope, communicating honestly, striving for relief from symptom burden, and caring for one another. Integration of themes from primary author palliative care outcome reports (second-order constructs) revealed the following shared priorities in cancer settings: care access; cost analysis; social support to include primary caregiver support, sibling care, bereavement outreach; symptom assessment and interventions to include both physical and psychological symptoms; communication approaches to include decision-making; and overall care quality. Conclusion: The study team coordinated landmark psychosocial palliative care papers into an informed conceptual model (third-order construct) for approaching pediatric palliative care and psychosocial support in oncology settings.

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“…77,79 Of included editorials, two authors referred to specific theory as Family Management Style Framework 12 and Perceived Personal Control Crisis Model. 69 …”

Section: Resultsmentioning

confidence: 99%

“…For expert opinion/commentary papers, two manuscripts included author mention of potential personal bias or how personal perspective may influence writing. 61,69 …”

Section: Resultsmentioning

confidence: 99%

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Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review

et al. 2015

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“…31 Parents and siblings show signs of grief while awaiting a child's imminent death. 4,20,28,32 Psychological suffering is further aggravated when the family's social networks are disrupted during a child's end-of-life care 30,31,[33][34][35] when a family or some of its members relocate in order for the seriously ill child to receive specialized care. 20 Future research needs to address the stability of social support for the patient and family from diagnosis through bereavement 35 and the mechanisms by which social support relieves suffering 33 in order to best develop and refine relational (supportive) interventions.…”

Section: Psychological and Spiritual Sufferingmentioning

confidence: 99%

Key Factors Affecting Dying Children and Their Families

Hinds

Schum

Baker

et al. 2005

Journal of Palliative Medicine

118

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The death of a child alters the life and health of others immediately and for the rest of their lives. How a child dies influences parents' abilities to continue their role functions as well as siblings' abilities to make and maintain friendships, and may be the basis for health care providers' decisions to exit direct care roles. Thus, facilitating a "good death"-an obvious care priority for all involved with the dying child-ought also to be a priority for the health of bereaved families and affected health care providers. Making this a care priority is complicated by a serious lack of data, as details of the last hours or weeks of a dying child or adolescent's life are largely unknown. The purpose of this paper is to identify key factors that affect the course of dying children and adolescents and that of their bereaved survivors, and to link those key factors to needed research that could produce clinically relevant findings to improve the care of these patients. Key factors described here include suffering (physical, psychological, and spiritual), communication, decision making, prognostic ambiguities, ability of the seriously ill child to give assent to research participation, and educational preparation of health care providers to give competent end-of-life care.

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“…Maintaining hope through adversity and loss is a dynamic process that often indicates adaptive coping. 50,51 Nurses can acknowledge a family's hope by sharing a commitment to the child's well-being with a wish-worry statement, rather than discounting the family's feelings. 26,39,48,52 For example, a nurse may say, "I also wish for Jamie to get better, but I worry that her condition is very serious.…”

Section: Rationale and Recommendationsmentioning

confidence: 99%

Caring for Pediatric Patients’ Families at the Child’s End of Life

Mullen

Reynolds

Larson

2015

Critical Care Nurse

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Nurses play an important role in supporting families who are faced with the critical illness and death of their child. Grieving families desire compassionate, sensitive care that respects their wishes and meets their needs. 1-5 Some nurses feel anxiety related to the experience of death and are inadequately prepared to provide end-of-life care. 3,6,7 We begin by presenting a case that illustrates a family's response when faced with such a life-altering event and the challenges nurses face in caring for and communicating with the family throughout the end-of-life experience. Next, we review practical strategies that nurses can use to communicate with patients' families at the end of a child's life. We also provide additional strategies to provide compassionate, sensitive care that respects a family's wishes and attends to the needs of the family. Finally, we describe a bereavement program designed to facilitate lasting communication with the grieving family. This article has been designated for CE credit. A closed-book, multiple-choice examination follows this article, which tests your knowledge of the following objectives:1. Describe the challenges nurses face in caring for and communicating with the family throughout the end-of-life experience 2. Discuss strategies to provide compassionate care that respects a family's wishes and attends to the needs of the family throughout the end-of-life experience 3. Identify strategies that nurses can use to communicate with patients' families at the end of a child's life CE Continuing Education 46

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Preventive Intervention for Children with Cancer and Their Families at the End-of-Life

Cited by 8 publications

References 20 publications

Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review

Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review

Key Factors Affecting Dying Children and Their Families

Caring for Pediatric Patients’ Families at the Child’s End of Life

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