Prevalence of reported physical health problems in people with severe or profound intellectual and motor disabilities: a cross‐sectional study of medical records and care plans

Timmeren, E.A. van; Putten, Annette van der; Valk, H.M.J. van Schrojenstein Lantman-de; Schans, Cees P. van der; Waninge, Aly

doi:10.1111/jir.12298

Cited by 72 publications

(86 citation statements)

References 37 publications

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“…challenging behavior), and health problems [4][5][6]. Research by Van Timmeren, Van der Putten, Van Schrojenstein Lantman-de Valk, Van der Schans, and Waninge [6] has shown that an individual with VSPID has on average 12 health problems; in more than 50% epilepsy, spasticity, constipation, incontinence, deformations, and reflux has been reported. These problems of adults with VSPID are interrelated.…”

Section: Introductionmentioning

confidence: 99%

Improving the participation of adults with visual and severe or profound intellectual disabilities: a process evaluation of a new intervention

Hanzen

Nispen

Vlaskamp

et al. 2020

BMC Health Serv Res

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Background: While the participation of adults with visual and severe or profound intellectual disabilities (VSPID) in society and community life is important, evidence-based interventions to improve their participation are lacking. We conducted a process evaluation of the implementation of 'Care for Participation+' (CFP+), a new intervention targeting the attitudes of direct support professionals (DSPs) toward the participation of adults with VSPID, within a residential facility in the Netherlands. Methods: CFP+ was inspired by the Boston Psychiatric Rehabilitation Approach and adapted by adopting a new definition and operationalization of the concept of participation for adults with VSPID. Following systematic training, 16 DSPs of adults with VSPID were able to apply key elements of CFP+ to explore diverse roles and activities for this population, facilitating their self-management, teaching them necessary skills for participation, and organizing support. Our process evaluation entailed an investigation of the delivered dose, reach, fidelity, and adaptation of CFP+ during and after the CFP+ intervention. We also evaluated the mechanisms of impact and context using questionnaires, assignments, documentation, interviews, and a logbook. Results: The intended dose, reach, and fidelity relating to the implementation of CFP+ were not achieved. Despite this fact, an assessment of the mechanisms of impact indicated that assignments of CFP+ were well (75%) or reasonably well (17%) understood by DSPs. CFP+ was applied by DSPs to stimulate self-management (83% of DSPs), new activities (100%), enhanced involvement in existing activities (67%) and to explore new roles (50%) for adults with VSPID. A negative contextual factor mentioned by the trainer and manager was the DSPs' lack of commitment to the training program. Another negative contextual factor mentioned by DSPs was the lack of time for implementing CFP+.

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Section: Introductionmentioning

confidence: 99%

Improving the participation of adults with visual and severe or profound intellectual disabilities: a process evaluation of a new intervention

Hanzen

Nispen

Vlaskamp

et al. 2020

BMC Health Serv Res

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“…Constipation was more common in those with cerebral palsy and profound intellectual disability, and associated with immobility but not age, suggesting that constipation is a significant issue for people with intellectual disability across the life course. In a further recent study, of 99 people with severe or profound intellectual and motor disabilities, 94% had constipation (van Timmeren, van der Putten, Lantman‐de Valk, van der Schans, & Waninge, ).…”

Section: Introductionmentioning

confidence: 95%

Constipation management in people with intellectual disability: A systematic review

Robertson

Baines

Emerson

et al. 2017

Research Intellect Disabil

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“…People with intellectual disability tend to experience more health problems, but poorer access to medical health services (Alborz, McNally, & Glendinning, 2005; Backer, Chapman, & Mitchell, 2009; Krahn et al, 2006; Williamson et al, 2017). As a consequence, they are more likely than others to live their lives with unrecognised and unmet health needs (van Timmeren, van der Putten, van Schrojenstein Lantman‐de Valk, van der Schans, & Waninge, 2016). Regular health screening in primary care is seen as an efficient means to identify unmet health needs (Baxter et al, 2006; Robertson, Hatton, Emerson, & Baines, 2014).…”

Section: Introductionmentioning

confidence: 99%

Mediating the interface between voluntariness and coercion: A qualitative study of learning disability nurses’ work in medical examinations of people with intellectual disability

Sparby

Olsvold

Obstfelder

2020

Journal of Clinical Nursing

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Aims and Objectives:To gain knowledge of prevention and use of restraints in provision of medical care to people with intellectual disability. To this end, we explore how learning disability nurses in community services support the individual through medical examinations when facing resistance.Background: Despite increased focus on limiting restraints, there is a lack of knowledge of how restraints are prevented and used in the delivery of physical health care to people with intellectual disability. Design:We used an ethnographic comparative case design (n = 6). Methods:The study was carried out in Norway. The analysis is based on data from semi-structured interviews, participant observation and document studies, in addition to health sociological perspectives on how to support individuals to make their body available for medical examination and intervention. The SRQR checklist was used.Results: Learning disability nurses strove to ensure that examinations were carried out on the individual's terms, supporting the individual in three phases: preparing for the examination, facilitating the examination and, when facing resistance, intervening to ensure safe and compassionate completion of the examination. Conclusions:Supporting the person was a precarious process where professionals had to balance considerations of voluntariness and coercion, progress and breakdown, safety and risk of injury, and dignity and violation. Through their support, learning disability nurses helped to constitute the "resistant" individual as "a cooperative patient," whose body could be examined within the knowledge and methods of medicine, but who could also be safeguarded as a human being through the strain of undergoing examination.Relevance to clinical practice: The article sheds light on how restraints are used in the medical examination and treatment of people with intellectual disabilities and demonstrates the significance of professional support workers' contributions, both

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Prevalence of reported physical health problems in people with severe or profound intellectual and motor disabilities: a cross‐sectional study of medical records and care plans

Cited by 72 publications

References 37 publications

Improving the participation of adults with visual and severe or profound intellectual disabilities: a process evaluation of a new intervention

Improving the participation of adults with visual and severe or profound intellectual disabilities: a process evaluation of a new intervention

Constipation management in people with intellectual disability: A systematic review

Mediating the interface between voluntariness and coercion: A qualitative study of learning disability nurses’ work in medical examinations of people with intellectual disability

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