Prevalence of Psoriasis and Psoriatic Arthritis and Patient Perceptions of Severity in Sweden, Norway and Denmark: Results from the Nordic Patient Survey of Psoriasis and Psoriatic Arthritis

Danielsen, Kjersti; Duvetorp, Albert; Iversen, Lars; Østergaard, Mikkel; Seifert, Oliver; Tveit, Kåre Steinar; Skov, Lone

doi:10.2340/00015555-3017

Cited by 24 publications

(38 citation statements)

References 21 publications

(28 reference statements)

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“…Population demographics have been reported previously . There were approximately equal proportions of males (48.9%) and females (51.1%), and just over half of the respondents were in the older age group (55.1% aged 45–74 vs 44.9% aged 18–44).…”

Section: Resultssupporting

confidence: 52%

“…About three‐quarters of the respondents (74.6%) were diagnosed with PsO alone, and in the remaining quarter, respondents were diagnosed with PsA alone (15.1%) or PsA with PsO (10.3%). Most respondents (72.7%) with PsO alone considered their condition to be non‐severe; 26.9% considered their condition to be severe . Fewer respondents reporting PsA with or without PsO (PsA ± PsO) considered their condition to be non‐severe (38.9%); 58.7% considered their condition to be severe.…”

Section: Resultsmentioning

confidence: 99%

“…Psoriasis (PsO) is a chronic inflammatory skin disease associated with significant physical and psychosocial burden. The global prevalence of PsO in adults is around 3%; however, estimates from studies in Norway, Sweden and Denmark are consistent with a relatively high prevalence in the Scandinavian region (3.9–11.5%) . Up to 35% of individuals with PsO will develop psoriatic arthritis (PsA), which is associated with decreased physical function, increased comorbidities and a substantial reduction in quality of life .…”

Section: Introductionmentioning

confidence: 99%

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Treatment use and satisfaction among patients with psoriasis and psoriatic arthritis: results from the NORdic PAtient survey of Psoriasis and Psoriatic arthritis (NORPAPP)

Tveit

Duvetorp

Østergaard

et al. 2018

Acad Dermatol Venereol

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Background There are scarce data in Scandinavia about treatment satisfaction among patients with psoriasis (PsO) and/or psoriatic arthritis (PsA). The number of patients receiving systemic treatment is unknown. Objective To describe patients’ experience of treatments for PsO/PsA in Sweden, Denmark and Norway, addressing communication with physicians, satisfaction with treatment and concerns regarding treatment options. Methods The NOR dic PA tient survey of Psoriasis and Psoriatic arthritis ( NORPAPP ) asked 22 050 adults (randomly selected from the YouGov panels in Sweden, Denmark and Norway) whether they had PsO/PsA. A total of 1264 individuals who reported physician‐diagnosed PsO/PsA were invited to participate in the full survey; 96.6% responded positively. Results Systemic treatment use was reported by 14.6% (biologic: 8.1%) of respondents with PsO only and by 58.5% (biologic: 31.8%) of respondents with PsA. Biologic treatments were more frequently reported by respondents considering their disease severe (26.8% vs 6.7% non‐severe) and those who were members of patient organizations (40.7% vs 6.9% non‐members). Discussing systemic treatments with their physician was reported significantly more frequently by respondents with PsA, those perceiving their disease as severe (although 35.2% had never discussed systemic treatment with their physician) and those reporting being a member of a patient organization ( P < 0.05). Many respondents reported health risk concerns and dissatisfaction with their treatment. Of special interest was that respondents aged 45–75 years reported less experience with biologics (8.1%) than those aged 18–44 years (21.5%). The older respondents also reported more uncertainty regarding long‐term health risks related to systemic treatments (most [66.7–72.9%] responded ‘do not know’ when asked about the risk of systemic options). Conclusion It appears likely that substantial numbers of Scandinavians suffering from severe PsO/PsA are not receiving optimal treatment from a patient perspective, particularly older patients. Also, one‐third of respondents with severe symptoms had never discussed systemic treatment with a physician.

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Section: Resultssupporting

confidence: 52%

Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Treatment use and satisfaction among patients with psoriasis and psoriatic arthritis: results from the NORdic PAtient survey of Psoriasis and Psoriatic arthritis (NORPAPP)

Tveit

Duvetorp

Østergaard

et al. 2018

Acad Dermatol Venereol

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“…In the Tromsø study, 10% of the participants reported ever experiencing psoriasis with a mainly mild course. It is well known that the Scandinavian region has one of the highest psoriasis prevalences in the world . In the following, our results will primarily be discussed in comparison with the results of Danielsen et al …”

Section: Discussionmentioning

confidence: 52%

Psoriasis, cardiovascular risk factors and metabolic disorders: sex‐specific findings of a population‐based study

Sondermann

Deudjui

Körber³

et al. 2019

Acad Dermatol Venereol

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Background Scientific evidence suggests an association between psoriasis and cardiovascular and metabolic diseases. However, there are hardly any sex‐specific results from population‐based studies reporting the prevalence of cardiovascular risk factors in patients with psoriasis and point estimates of the association between psoriasis and cardiovascular and metabolic disorders. Objective Aims are to evaluate the sex‐specific prevalence of psoriasis and cardiovascular risk factors, and to estimate sex‐specific associations between psoriasis and diabetes type 2 (DM) and metabolic syndrome (MetS). Methods We used data of 3723 participants (45–75 years, 54.1% women) without coronary heart disease and missing data (psoriasis, DM, MetS) from the Heinz Nixdorf Recall study. Standardized information on health outcomes and risk factors was assessed. We performed descriptive statistics and multiple regression analyses to calculate prevalence rate ratios (PR) and 95% confidence intervals (95% CI). Results The prevalence of psoriasis was 3.8% (n = 143), with no differences between sex. We observed more often metabolic and cardiovascular risk factors in women with psoriasis compared to women without psoriasis. Interestingly, in men, this pattern was partly reversed. Multiple regression analyses revealed distinctly elevated PRs for DM for both women and men with psoriasis (fully adjusted PR: 2.43; 95% CI: 1.17–5.07, resp. 2.09; 1.16–3.76). Regarding the MetS, the results were inconsistent, showing a positive association between psoriasis and MetS in women (1.84; 1.14–2.98), but a negative association in men, even though with a wide 95% CI (0.69; 0.42–1.12). Conclusion The results of our cross‐sectional, population‐based analysis show a distinct association between psoriasis and DM, whereas for the MetS the results contrasted between men and women, translating in women with MetS showing a higher and in men a lower chance to be psoriatic. Our results emphasize the urgent need for sex‐specific research, studying the effects of psoriasis on metabolic disorders as well as effective sex tailored prevention measures.

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“…The worldwide prevalence of psoriasis ranges between 0.09% and 11.9%, making psoriasis a substantial global problem. Psoriasis leads to disfiguration, disability and marked loss of productivity, according to the World Health Organization's global report on psoriasis .…”

mentioning

confidence: 99%

Health literacy: a new piece of the puzzle in psoriasis care? A cross‐sectional study

Larsen¹,

Strumse

Borge³

et al. 2019

Br J Dermatol

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Summary Background Health literacy (HL) – the ability to seek, understand and utilize health information – is important for good health. Suboptimal HL has been associated with poorer health outcomes in other chronic conditions, although this has not previously been studied in patients with psoriasis. Objectives To investigate the HL strengths and weaknesses of a cohort of patients with moderate‐to‐severe psoriasis. Another aim was to examine possible associations between patients’ quality of life, their demographic, clinical and self‐management characteristics, and dimensions of HL. Methods A cross‐sectional study was conducted. Data were collected from a cohort of patients with psoriasis who had received climate helio therapy from 2011 to 2016 (n = 825). HL was assessed by the Health Literacy Questionnaire (HLQ). The association between HL domains, demographic, clinical and self‐management variables were analysed using bivariate correlation and a four‐step linear multiple regression model. Results The scores on all HLQ dimensions indicated lower health literacy than other populations. The linear regression models showed a significant association between HL, quality of life and self‐management variables, with higher HL predicting higher quality of life, self‐efficacy and psoriasis knowledge. Sex, educational attainment, age and disease severity had less influence on health literacy. Conclusions Improving HL may be a useful strategy for reducing disparities in self‐management skills for patients with psoriasis. Interventions that aim to reduce disease severity and increase psoriasis knowledge, self‐efficacy and quality of life may positively increase HL.

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Prevalence of Psoriasis and Psoriatic Arthritis and Patient Perceptions of Severity in Sweden, Norway and Denmark: Results from the Nordic Patient Survey of Psoriasis and Psoriatic Arthritis

Cited by 24 publications

References 21 publications

Treatment use and satisfaction among patients with psoriasis and psoriatic arthritis: results from the NORdic PAtient survey of Psoriasis and Psoriatic arthritis (NORPAPP)

Treatment use and satisfaction among patients with psoriasis and psoriatic arthritis: results from the NORdic PAtient survey of Psoriasis and Psoriatic arthritis (NORPAPP)

Psoriasis, cardiovascular risk factors and metabolic disorders: sex‐specific findings of a population‐based study

Health literacy: a new piece of the puzzle in psoriasis care? A cross‐sectional study

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