Prevalence of Norwegian patients diagnosed with childhood cancer, their working ability and need of health insurance benefits

Johannesen, Tom Børge; Langmark, Frøydis; Wesenberg, Finn; Lote, Knut

doi:10.1080/02841860600774026

Cited by 28 publications

(35 citation statements)

References 30 publications

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“…However, survivors of CNS tumours had the highest risk of disability pension uptake compared with the cancer-free population, which indicates the significant consequences of this type of cancer among the survivors. The Norwegian study by Johannesen et al (2007), of cancer survivors diagnosed before 15 years of age and during the years 1970–1997, showed that uptake of any social security benefit was more frequent among survivors of CNS tumours compared with survivors of the malignancies of the Haematopoietic system, and this was in line with our findings. Another Norwegian study by Thorsen et al (2011), which was based on collected data from questionnaires, indicated an increased need for rehabilitation services due to cancer.…”

Section: Discussionsupporting

confidence: 91%

“…Studies from Norway and Sweden have reported a reduced working ability, an increased need for financial support and consequently a greater need for uptake of social security benefit of various kinds compared with the reference population (Hjern et al , 2007; Johannesen et al , 2007; Thorsen et al , 2011). …”

mentioning

confidence: 99%

“…To our knowledge, there are only a few population-based cohort studies on the uptake of social security benefits among cancer survivors (Hjern et al , 2007; Johannesen et al , 2007). The National Insurance Scheme (NIS) in Norway provides disability benefits for all individuals residing in Norway whose health conditions are of sufficient severity to create a serious economic problem (The Norwegian Labour and Welfare Administration, 2012).…”

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confidence: 99%

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Increased uptake of social security benefits among long-term survivors of cancer in childhood, adolescence and young adulthood: a Norwegian population-based cohort study

et al. 2013

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Background:As the number of cancer survivors increases, their health and welfare have come into focus. Thus, long-term medical consequences of cancer at a young age (<25 years), obtained from social security benefit records, were studied.Methods:Standardised incidence ratios (SIRs) of long-term medical consequences for 5-year cancer survivors, born during 1965–1985, were explored by linking population-based registries in Norway.Results:Among the 5-year cancer survivors (4031 individuals), 29.7% received social security benefits. The survivors had an overall 4.4 times (95% confidence interval (95% CI): 4.1–4.6) higher risk of social security benefit uptake than the cancer-free population. Survivors of malignancies of bone and connective tissues (SIR: 10.8; 95% CI: 9.1–12.9), CNS tumours (SIR: 7.7; 95% CI: 6.9–8.6) and malignancies of the haematopoietic system (SIR: 6.1; 95% CI: 5.3–7.0) had the highest risks of social security benefits uptake. The most notified causes of social security benefit uptake were diseases of the nervous system, and injury and poisoning.Conclusion:The uptake of social security benefits among 5-year cancer survivors increased substantially and it may represent a solid outcome measure for the burden of the most severe late effects, especially in countries with comparable social welfare systems.

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Section: Discussionsupporting

confidence: 91%

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confidence: 99%

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confidence: 99%

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Increased uptake of social security benefits among long-term survivors of cancer in childhood, adolescence and young adulthood: a Norwegian population-based cohort study

et al. 2013

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“…Similar results were reported in Sweden, where CNS tumour survivors had a 10 times higher risk than the general population for having received at least one social security benefit (handicap allowance, disability assistance or sickness pension) (RR: 10.7, 95% CI: 9.3–12.8) . Factors associated with a particular risk for receiving any social security benefit included a CNS tumour diagnosis, younger age at diagnosis and treatment with CRT …”

Section: Resultsmentioning

confidence: 99%

Surviving childhood cancer: a systematic review of studies on risk and determinants of adverse socioeconomic outcomes

Frederiksen

Mader

Feychting

et al. 2018

Intl Journal of Cancer

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Substantial improvements in childhood cancer survival have resulted in a steadily increasing population of childhood cancer survivors. Whereas somatic late effects have been assessed in many studies, less is known about the impact of childhood cancer on socioeconomic outcomes in survivors. The aim of this article was to evaluate and summarise the evidence on the socioeconomic conditions of childhood cancer survivors and to identify survivors at particular risk of adverse socioeconomic outcomes. An extensive literature search of three electronic databases was conducted. Of 419 articles identified, 52 met the inclusion criteria. All the selected articles were appraised for quality, and findings were summarised in a narrative synthesis. Childhood cancer survivors were at higher risk of adverse socioeconomic outcomes with regard to educational achievement, income and social security benefits than the general population or a sibling comparison group. The risks for unemployment and a lower occupational position were significantly increased only for survivors of a central nervous system tumour. Notably, survivors of central nervous system tumours, survivors treated with cranial radiotherapy and those diagnosed at younger age independent of cancer type were determinants of particular adverse socioeconomic outcomes. Given the increasing population of childhood cancer survivors, targeted follow-up interventions and support strategies addressing not only the somatic and psychiatric late effects but also the socioeconomic difficulties that some childhood cancer survivors face is of high importance to reduce social inequity, and ensure a high quality of life after childhood cancer.

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“…27 To the best of our knowledge, such outcomes have rarely been studied, but a Norwegian study found that lower mean income was reported among young adult CNS tumor survivors. 28 Large-scale studies on social consequences of childhood cancer are indispensable to inform a strategy for targeting preventive measures, remedial measures, or both, to diminish the impact of illness and treatment-related disability on social outcomes in adult life. Yet, to our knowledge, very few large studies outside the North American continent have included multiple social outcomes or ascertained such in adult survivors at an age when they are old enough for final outcomes to be reliably evaluated.…”

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confidence: 99%

Long‐term outcomes of childhood cancer survivors in Sweden: A population‐based study of education, employment, and income

Boman

Lindblad

Hjern

2010

Cancer

100

113

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BACKGROUND: Studies of different national populations were indispensable for estimating the impact of illnessrelated disability on social outcomes in adult childhood cancer survivors. The effects of childhood cancer on educational attainment, employment, and income in adulthood in a Swedish setting were studied. METHODS: The study population was a national cohort of 1.46 million Swedish residents, including 1716 survivors of childhood cancer diagnosed before their 16th birthday, followed up in 2002 in registries at >25 years of age. Main outcomes were educational attainment, employment, and net income. Markers of persistent disability were considered, and outcomes were analyzed with multivariate linear and logistic regression models adjusted for age, sex, and socioeconomic indicators of the childhood households. RESULTS: Non-central nervous system (CNS) cancer survivors had similar education, employment, and income as the general population in adjusted models, whereas survivors of CNS tumors more often had no more than basic ( 9 years) education (relative risk [RR], 1.80 [95% confidence interval (95% CI), 1.45-2.23]), less often attained education beyond secondary school (RR, 0.69 [95% CI, 0.58-0.81]), and less often were employed (RR, 0.85 [95% CI, 0.77-0.94]). Predicted net income from work was lower in CNS tumor survivors (P <.001) than in the general population, even after the exclusion of individuals who received economic disability compensation. CON-CLUSIONS: CNS tumor survivors had poorer social outcomes compared with the general population, whereas outcomes for survivors of other childhood cancers were similar to the general population. Established late effects highlighted the importance of improved, safer pediatric CNS tumor treatment protocols and surveillance that identified individual needs for preventive and remedial measures. Cancer 2010;116:1385-91.

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Prevalence of Norwegian patients diagnosed with childhood cancer, their working ability and need of health insurance benefits

Cited by 28 publications

References 30 publications

Increased uptake of social security benefits among long-term survivors of cancer in childhood, adolescence and young adulthood: a Norwegian population-based cohort study

Increased uptake of social security benefits among long-term survivors of cancer in childhood, adolescence and young adulthood: a Norwegian population-based cohort study

Surviving childhood cancer: a systematic review of studies on risk and determinants of adverse socioeconomic outcomes

Long‐term outcomes of childhood cancer survivors in Sweden: A population‐based study of education, employment, and income

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