Prevalence of Dysphagia in People With Intellectual Disability: A Systematic Review

Robertson, Janet; Chadwick, Darren; Baines, Susannah; Emerson, Eric; Hatton, Chris

doi:10.1352/1934-9556-55.6.377

Cited by 43 publications

(39 citation statements)

References 46 publications

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“…Strikingly, there are studies that have reported that people with IDs have died from disease, such as aspiration pneumonia, urinary tract infections, and sepsis which could have been treated through the provision of good quality equitable healthcare (Glover, Williams, Heslop, Oyinlola, & Grey, 2017;Heslop et al, 2014;Hosking et al, 2016;O'Leary et al, 2018; The Learning Disability Mortality Review (LeDeR) Programme, 2019). Furthermore, a number of people with IDs will have difficulties with dysphagia (Robertson, Chadwick, Baines, Emerson, & Hatton, 2017), and this may in turn increase the risk of aspiration pneumonia. Prompt and proactive identification of physical health concerns can be a challenge with people with IDs because of diagnostic overshadowing (Reiss, Levitan, & Szyszko, 1982), which has an impact upon the correct recognition of both mental and physical health problems leading to difficulties with accessing high quality and appropriate healthcare within primary healthcare (Beange, McElduff, & Baker, 1995;Nocon, Sayce, & Nadirshaw, 2008).…”

Section: Introductionmentioning

confidence: 99%

Guidance for the Treatment and Management of COVID‐19 Among People with Intellectual Disabilities

Alexander

Ravi

Barclay

et al. 2020

Policy Practice Intel Disabi

114

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The current COVID‐19 pandemic is a pressing world crisis and people with intellectual disabilities (IDs) are vulnerable due to disparity in healthcare provision and physical and mental health multimorbidity. While most people will develop mild symptoms upon contracting severe acute respiratory syndrome coronavirus‐2 (SARS‐CoV‐2), some will develop serious complications. The aim of this study is to present guidelines for the care and treatment of people with IDs during the COVID‐19 pandemic for both community teams providing care to people with IDs and inpatient psychiatric settings. The guidelines cover specific issues associated with hospital passports, individual COVID‐19 care plans, the important role of families and carers, capacity to make decisions, issues associated with social distancing, ceiling of care/treatment escalation plans, mental health and challenging behavior, and caring for someone suspected of contracting or who has contracted SARS‐CoV‐2 within community or inpatient psychiatric settings. We have proposed that the included conditions recommended by Public Health England to categorize someone as high risk of severe illness due to COVID‐19 should also include mental health and challenging behavior. There are specific issues associated with providing care to people with IDs and appropriate action must be taken by care providers to ensure that disparity of healthcare is addressed during the COVID‐19 pandemic. We recognize that our guidance is focused upon healthcare delivery in England and invite others to augment our guidance for use in other jurisdictions.

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Section: Introductionmentioning

confidence: 99%

Guidance for the Treatment and Management of COVID‐19 Among People with Intellectual Disabilities

Alexander

Ravi

Barclay

et al. 2020

Policy Practice Intel Disabi

114

View full text Add to dashboard Cite

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“…These should consider potentially underlying causes, such as dysphagia, that is, difficulties in eating, drinking, or swallowing. Dysphagia affects many older persons because of degenerative processes in mouth, throat, and nerves (Sura, Madhavan, Carnaby, & Crary, 2012), and is also a common condition among people with ID (Chadwick & Jolliffe, 2009;Robertson, Chadwick, Baines, Emerson, & Hatton, 2017). Consequently, it is not an unlikely contributing cause for the increased risk of healthcare episodes due to effects of foreign body entering through natural orifice, specifically those with foreign body in the digestive or respiratory tract.…”

Section: Discussionmentioning

confidence: 99%

Incidents resulting in health care among older people with intellectual disability in comparison with the general population: A national register study

Axmon

Ekwall

Ahlström

2019

Journal of Intellectual & Developmental Disability

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Background: Older people with intellectual disability (ID) are at high risk of incidents leading to hospital visits. Method: Through national registers, 7936 people with ID, aged 55+ years in 2012, and a same-aged referent cohort from the general population were identified. Information on diagnoses made in inpatient and outpatient specialist health care during 2002-2012 was collected. Results: Compared to their age-peers in the general population, people with ID were 41% more likely to seek care for effects of foreign body entering through natural orifice, and 92% more for poisoning by drugs, medicaments and biological substances. Conclusions: There is a need to develop and evaluate evidence-based interventions to prevent unnecessary suffering and early death related to poisoning or respiratory diseases among older people with ID. To do this, implementation of risk assessments and increased knowledge of the consequences of poisoning and incidents of foreign bodies entering the respiratory organs are necessary.

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“…A high percentage of patients with CP suffer from dysphagia, which can have serious consequences if not detected or properly managed. 21 It is essential to assess if caregivers know that, even though their child may not be fed by mouth, it is important to maintain adequate oral hygiene to reduce the development of periodontal and bronchopulmonary pathologies (see questions 2, 11 and 14, Figure 1).…”

Section: Discussionmentioning

confidence: 99%

Design and validation of appearance and content of an oral health questionnaire for parents or caregivers of children with cerebral palsy

et al. 2018

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Introduction: Cerebral palsy is a syndrome that involves a large number of childhood movement and posture disorders, resulting in activity limitation. It is attributed to non-progressive alterations in the fetal or infant brain. This disorder can also be accompanied by oral alterations, some of which can be prevented if the caretaker knows how to manage them. An adequate knowledge of oral health on the part of the caregivers has a positive impact on the oral status of their patients. Objective: To design and validate a questionnaire to assess the oral health knowledge of caregivers of children with cerebral palsy. Methods: A literature search was conducted to identify published questionnaires on oral health knowledge related to people with disabilities. In the absence of questionnaires in Spanish, the search was focused on other surveys aimed at parents of healthy children. Validation of appearance and content was carried out by a panel of experts and a group representing the target population. Subsequently, two pilot studies were carried out to determine the questions that would make up the final instrument, analyze the need to modify its wording and establish alternative answers. Results: The designed questionnaire was approved by the panel of experts and by the representatives of the population at whom the instrument is aimed. After two pilot studies, a Cronbach's alpha of 0.83 was obtained. Conclusion: The designed and validated questionnaire has good internal consistency. It is necessary to evaluate its reliability so that it can be used clinically and in research studies.

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Prevalence of Dysphagia in People With Intellectual Disability: A Systematic Review

Cited by 43 publications

References 46 publications

Guidance for the Treatment and Management of COVID‐19 Among People with Intellectual Disabilities

Guidance for the Treatment and Management of COVID‐19 Among People with Intellectual Disabilities

Incidents resulting in health care among older people with intellectual disability in comparison with the general population: A national register study

Design and validation of appearance and content of an oral health questionnaire for parents or caregivers of children with cerebral palsy

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