Prevalence, morbidity and service need among South Asian and white adults with intellectual disability in Leicestershire, UK

McGrother, Cath; Bhaumik, Sabyasachi; Thorp, C.; Watson, Janet; Taub, Nicholas

doi:10.1046/j.1365-2788.2002.00391.x

Cited by 48 publications

(70 citation statements)

References 16 publications

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“…Prevalence rates of ID between South Asians and whites were comparable in a population study of the Leicestershire Learning Disabilities register for 1991. However, South Asian families used significantly fewer psychiatry, residential care, and respite care services and reported more unmet needs for day care, home help, and sitting services [McGrother et al, 2002]. Race of the person with ID also appeared as a significant variable in predicting services received and services needed in the United States [Pruchno and McMullen, 2004].…”

Section: Culture and Service Usementioning

confidence: 98%

A cascade of disparities: Health and health care access for people with intellectual disabilities

Krahn

Hammond

Turner

2006

Ment. Retard. Dev. Disabil. Res. Rev.

631

539

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People with ID represent approximately 2% of the population and, as a group, experience poorer health than the general population. This article presents recent conceptualizations that begin to disentangle health from disability, summarizes the literature from 1999 to 2005 in terms of the cascade of disparities, reviews intervention issues and promising practices, and provides recommendations for future action and research. The reconceptualization of health and disability examines health disparity in terms of the determinants of health (genetic, social circumstances, environment, individual behaviors, health care access) and types of health conditions (associated, comorbid, secondary). The literature is summarized in terms of a cascade of disparities experienced by people with ID, including a higher prevalence of adverse conditions, inadequate attention to care needs, inadequate focus on health promotion, and inadequate access to quality health care services. Promising practices are reviewed from the perspective of persons with ID, providers of care and services, and policies that influence systems of care. Recommendations across multiple countries and organizations are synthesized as guidelines to direct future action. They call for promoting principles of early identification, inclusion, and self-determination of people with ID; reducing the occurrence and impact of associated, comorbid, and secondary conditions; empowering caregivers and family members; promoting healthy behaviors in people with ID; and ensuring equitable access to quality health care by people with ID. Their broadscale implementations would begin to reduce the health disparity experienced by people with ID.

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Section: Culture and Service Usementioning

confidence: 98%

A cascade of disparities: Health and health care access for people with intellectual disabilities

Krahn

Hammond

Turner

2006

Ment. Retard. Dev. Disabil. Res. Rev.

631

539

View full text Add to dashboard Cite

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“…Fatimilehin & Nadirshaw (1994) found the variations in attitude between Asian and White British families to be related to cultural and religious differences rather than to any descriptive characteristics of the parent or their child (Box 2). Some would argue that South Asian cultures are more accommodating of people with disabilities (McGrother et al, 2002) Many non-Western medical systems do not differentiate between physical and mental states, and the spiritual and supernatural elements are intertwined. The Hindu belief in the concept of karma -the cycle of reward and punishment for all deeds and thoughts as the immortal spirit is reborn into another body -may provide an understanding for what has happened and lead to a sense of resignation or acceptance.…”

Section: Cultural and Religious Attitudesmentioning

confidence: 99%

“…There is evidence that general practitioner (GP) consultation rates in minority ethnic communities are significantly higher than in the majority community, but that these patients are less aware of the existence of specialist services (e.g. Katbamna et al, 2002;McGrother et al, 2002). Psychological and emotional distress may not be recognised, as patients from ethnic minorities tend to present to their GP with somatic symptoms (Nadirshaw, 1997).…”

Section: Carers In Ethnic Minority Communitiesmentioning

confidence: 99%

Learning disabilities and ethnicity: achieving cultural competence

O'Hara¹

2003

Adv. psychiatr. treat

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Despite the higher prevalence of learning disabilities among some minority ethnic communities and the greater burden of care, families from minority ethnic communities with a member who has learning disabilities are doubly disadvantaged as a result of racial discrimination and culturally inappropriate forms of care and service provision. This paper looks at the issue of discrimination, as well as the generally negative attitudes towards people with learning disabilities, and synthesises these into the concept of ‘double jeopardy’. It concludes by proposing ways of developing cultural competence in the delivery of care to this population.

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“…Patients with learning disabilities present an increased risk because of their high prevalence of mental health problems and/or behaviour disorders (Corbett, 1979;Lund, 1985;McGrother et al, 2002). However, mental health problems are often unrecognised because of linguistic and other communication problems (Bhaumik et al, 1995).…”

Section: Discussionmentioning

confidence: 99%

Service innovations: risk assessment in learning disability

Bhaumik¹,

Nadkarni²,

Biswas

et al. 2005

Psychiatr. bull.

Self Cite

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Aims and MethodThe aim of the study was to evaluate the effectiveness of the care programme approach (CPA) in adults with learning disabilities in a specialist treatment unit by auditing all in-patient records over a 6-month period. A multidisciplinary team set CPA standards. Staff on the unit completed questionnaires about patients, including CPA screening and risk assessment/management, and carers completed questionnaires about their perceptions of risk and information sharing.ResultsOf the 15 patients whose records were reviewed, 13 had CPA screening on admission and 12 on discharge. Before discharge, 9 patients had a CPA planning meeting and only 4 patients had a demonstrable risk management plan. Carers of 9 patients perceived that information was shared.Clinical ImplicationsMajor deficiencies identified in risk assessment and management and in information sharing may potentially jeopardise successful treatment and after-care.

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Prevalence, morbidity and service need among South Asian and white adults with intellectual disability in Leicestershire, UK

Abstract: South Asian and white populations have similar prevalences of ID and related psychological morbidity. Culturally appropriate services for South Asian adults may need to focus on skill development and community care.

Cited by 48 publications

References 16 publications

A cascade of disparities: Health and health care access for people with intellectual disabilities

A cascade of disparities: Health and health care access for people with intellectual disabilities

Learning disabilities and ethnicity: achieving cultural competence

Service innovations: risk assessment in learning disability

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