Prevalence and nature of survivorship needs in patients with head and neck cancer

Giuliani, Meredith; McQuestion, Maurene; Jones, Jennifer; Papadakos, Janet; Le, Lisa W.; Alkazaz, Nour; Cheng, Terry; Waldron, John; Catton, Pamela; Ringash, Jolie

doi:10.1002/hed.24411

Cited by 73 publications

(69 citation statements)

References 19 publications

(45 reference statements)

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“…[1][2][3][4] Clear comparison of our findings with previous studies on unmet supportive care needs in patients with head and neck cancer is, however, limited. In addition, the association of sociodemographic, clinical and lifestyle factors, and HR-QOL with unmet needs was investigated.…”

Section: Discussionmentioning

confidence: 46%

“…[1][2][3][4] This is higher than the 25% found among Dutch mixed patients with cancer. [1][2][3][4] This is higher than the 25% found among Dutch mixed patients with cancer.…”

Section: Introductionmentioning

confidence: 56%

“…[1][2][3][4] This is higher than the 25% found among Dutch mixed patients with cancer. [2][3][4][6][7][8][9][10][11][12][13] In addition, head and neck cancer-specific supportive care needs are often reported, for instance, dry mouth, dental health, eating, and speech problems. [2][3][4][6][7][8][9][10][11][12][13] In addition, head and neck cancer-specific supportive care needs are often reported, for instance, dry mouth, dental health, eating, and speech problems.…”

Section: Introductionmentioning

confidence: 56%

“…In addition, the association of sociodemographic, clinical and lifestyle factors, and health-related quality of life (HR-QOL) with unmet needs was investigated. Age, 2,9,19 sex, [2][3][4]7,19 having children, 3 education level, 2 smoking status, 2,4,10 and alcohol consumption 2,4 were not expected to be associated with unmet needs. In addition, living alone, 4 being unemployed, 10 and more intensive types of treatment 2,10,19 were hypothesized to be associated with a higher prevalence of unmet needs.…”

Section: Introductionmentioning

confidence: 90%

“…Based on previous studies among patients with head and neck cancer, it was hypothesized that a shorter time since diagnosis or treatment 2,8,10,19 and a lower HR-QOL 2,3 would be associated with a higher prevalence of unmet needs. In addition, the association of sociodemographic, clinical and lifestyle factors, and health-related quality of life (HR-QOL) with unmet needs was investigated.…”

Section: Introductionmentioning

confidence: 99%

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Unmet supportive care needs in patients treated with total laryngectomy and its associated factors

et al. 2018

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Background The purpose of this study was to investigate unmet supportive care needs in patients treated with total laryngectomy and its associated factors. Methods In this cross‐sectional study, 283 patients who underwent total laryngectomy completed questions on supportive care needs (Supportive Care Needs Survey [SCNS]). Median time since total laryngectomy surgery was 7 years (range 0‐37 years). The prevalence of unmet supportive care needs and its associated factors were investigated using logistic regression analyses. Results Unmet supportive care needs were highest for the head and neck cancer‐specific functioning domain (53%), followed by the psychological (39%), physical and daily living (37%), health system, information, and patient support (35%), sexuality (23%), and lifestyle (5%) domains. Seventy‐one percent reported at least one low, moderate, or high unmet need. Female sex, living alone, and having a voice prosthesis were positively associated with unmet needs on 1 domain (P < .05). A worse health‐related quality of life was associated with unmet needs on all domains. Conclusion The majority of patients who underwent total laryngectomy report at least one low, moderate, or high unmet supportive care need.

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Section: Discussionmentioning

confidence: 46%

“…[1][2][3][4] This is higher than the 25% found among Dutch mixed patients with cancer. [1][2][3][4] This is higher than the 25% found among Dutch mixed patients with cancer.…”

Section: Introductionmentioning

confidence: 56%

Section: Introductionmentioning

confidence: 56%

Section: Introductionmentioning

confidence: 90%

Section: Introductionmentioning

confidence: 99%

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Unmet supportive care needs in patients treated with total laryngectomy and its associated factors

et al. 2018

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Characterizing head and neck cancer survivors' discontinuation of survivorship care

Seaman

Seligman

Nguyen

et al. 2021

Cancer

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BACKGROUND:Little is known about cancer survivors who discontinue survivorship care. The objective of this study was to characterize patients with head and neck cancer who discontinue survivorship care with their treating institution and identify factors associated with discontinuation. METHODS: This was a retrospective cohort study of patients diagnosed with head and neck cancer between January 1, 2014, and December 31, 2016, who received cancer-directed therapy at the University of Iowa Hospitals and Clinics (UIHC). Eligible patients achieved a cancer-free status after curative-intent treatment and made at least 1 visit 90+ days after treatment completion. The primary outcome was discontinuation of survivorship care, which was defined as a still living survivor who had not returned to a UIHC cancer clinic for twice the expected interval. Demographic and oncologic factors were examined to identify associations with discontinuation. RESULTS: Ninety-seven of the 426 eligible patients (22.8%) discontinued survivorship care at UIHC during the study period. The mean time in follow-up for those who discontinued treatment was 15.4 months. Factors associated with discontinuation of care included an unmarried status (P = .036), a longer driving distance to the facility (P = .0031), and a single-modality cancer treatment (P < .0001). Rurality was not associated with discontinuation (24.3% vs 21.6% for urban residence; P = .52), nor was age, gender, or payor status. CONCLUSIONS: The study results indicate that a sizeable percentage of head and neck cancer survivors discontinue care with their treating institution. Both demographic and oncologic factors were associated with discontinuation at the treating institution, and this points to potential clinical and care delivery interventions.

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Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world

et al. 2019

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Background:The aim was to collate and contrast patient concerns from a range of different head and neck cancer follow-up clinics around the world.Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL). Methods: Nineteen units participated with intention of including 100 patients per site as close to a consecutive series as possible in order to minimize selection bias.Results: There were 2136 patients with a median total number of PCI items selected of 5 (2-10). "Fear of the cancer returning" (39%) and "dry mouth" (37%) were most common. Twenty-five percent (524) reported less than good QOL.Conclusion: There was considerable variation between units in the number of items selected and in overall QOL, even after allowing for case-mix variables.There was a strong progressive association between the number of PCI items and QOL. K E Y W O R D Shead and neck cancer, patient concerns inventory, patient prompt list, quality of life

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Prevalence and nature of survivorship needs in patients with head and neck cancer

Abstract: A high proportion of patients with head and neck cancer have unmet needs. These data can guide the development of head and neck survivorship programs. © 2016 Wiley Periodicals, Inc. Head Neck 38: 1097-1103, 2016.

Cited by 73 publications

References 19 publications

Unmet supportive care needs in patients treated with total laryngectomy and its associated factors

Unmet supportive care needs in patients treated with total laryngectomy and its associated factors

Characterizing head and neck cancer survivors' discontinuation of survivorship care

Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world

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