Prevalence and effects of caregiving on children

Nagl‐Cupal, Martin; Daniel, Maria Beatriz Nanni; Köller, M.; Mayer, Hanna

doi:10.1111/jan.12388

Cited by 68 publications

(148 citation statements)

References 26 publications

(39 reference statements)

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“…Study findings also confirm that care is provided for chronically ill mothers in the majority of cases [5,15]; the results on this aspect vary between 67 and 75% [12,13,[16][17][18][19][20]. Apart from the mothers, it is often the grandmother who receives care from young carers, followed by chronically ill siblings.…”

Section: Characteristic Values Of Young Carerssupporting

confidence: 67%

“…In a qualitative study, 50 children between the ages of nine and 22 stated that they were involved in helping in their family for "7-10 years", "more than 10 years" or "all the time" [22]. The results presented by Nagl-Cupal et al [5] also show the enormous amount of time that young carers spend on supporting their families; they identified great differences between non-caregiving and caregiving children in [17,23]. The amount of these tasks depends on the care and support needed, and varies according to the course of the disease and the stress involved [13,15,19,24].…”

Section: Characteristic Values Of Young Carersmentioning

confidence: 85%

“…Apart from the mothers, it is often the grandmother who receives care from young carers, followed by chronically ill siblings. Less often do young carers care for male members of the family [5,15,21].…”

Section: Characteristic Values Of Young Carersmentioning

confidence: 99%

“…However, the basic population in these surveys varied considerably according to the age of participants, which again makes comparisons difficult. A representative Austrian survey with school pupils identified a prevalence rate of 4.5% for children between ten and 14 years [5]. Projections for the age span between five and 18 years for Austria indicated a rate of 3.5%.…”

Section: Introductionmentioning

confidence: 99%

“…Nagl-Cupal et al [5] also identified relevant extrapolations from the USA, Australia and New Zealand, in which the (estimated) prevalence rates range from 3.2% up to 4.2%. However, the basic population in these surveys varied considerably according to the age of participants, which again makes comparisons difficult.…”

Section: Introductionmentioning

confidence: 99%

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Young carers: growing up with chronic illness in the family - a systematic review 2007-2017

Chikhradze

Knecht

Metzing

2017

J of Compassionate Health Care

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Background: Young carers are children or young people who look after family members who are ill or have disabilities. They take over similar caregiving responsibilities to those of adult family carers and need special support. The purpose of this literature review was to summarize the body of knowledge about young carers' lives with a special focus on their personal experiences, impact of caring, needs and coping behaviors. Method: A systematic review was carried out, including quantitative and qualitative studies as well as reviews published in English or German. The following databases were searched: Cinahl, Embase®, PubMed®, Gesis sowiport, ERIC®, Cochrane Library, Pubpsych, PsychArticles (1/2007 to 6/2017). The Critical Appraisal Skills Programme (CASP) and the methodology checklist NICE were used to assess the literature. Results: After appraisal, 25 studies which considered young carers between four and 25 years of age were included. Studies reported that many children in families with chronically ill members are highly involved in caring. Due to this responsibility, they spend most of their time at home. Although the caregiving experiences are pervasive, the children conceal the conditions of their relatives from others. They also do not want to be identified as young carers. Thus, their social experiences are limited. These children or adolescents would like to live a "normal live". They prioritize their family member's needs over their own. They would like professional support, which recognizes the real needs of their family members.Conclusions: This systematic review shows that since 2007 the situation of affected children and adolescents has achieved an important place in international research and also in German-language countries. Based on the included studies, it has been possible to identify theoretical models that help to describe and explain the phenomenon of young carers. In order to provide appropriate support and interventions, it is of importance for the professionals to know and consider that a family-oriented perspective is vital.

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Section: Characteristic Values Of Young Carerssupporting

confidence: 67%

Section: Characteristic Values Of Young Carersmentioning

confidence: 85%

Section: Characteristic Values Of Young Carersmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Young carers: growing up with chronic illness in the family - a systematic review 2007-2017

Chikhradze

Knecht

Metzing

2017

J of Compassionate Health Care

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Growing Up with Parents with Disabilities

McConnell

Hahn

2020

The Encyclopedia of Child and Adolescent Development

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Negative attitudes toward parents and parenting with disabilities are widespread. In the public mind, parental disability has long been associated with child misfortune. Research in this area, however, reveals tremendous variability in the experiences of children brought up by parents with disabilities, with many faring well by comparison with age peers with the same socioeconomic backgrounds. Moreover, the research, although limited in a number of important respects, suggests that the problems or hardships faced by many children brought up by parents with disabilities owe more to exclusionary and disabling social processes than to parental disability per se. This entry reviews the current state of knowledge about parents with disabilities and the developmental health of their children. The review, which is more illustrative than exhaustive, is organized around four topics. These are the epidemiology of parents with disabilities, cultural antipathy to parents and parenting with disabilities, the entanglement of parental disability with adverse life conditions, and the lived experience of growing up with a parent with disabilities.

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Invisible population: Understanding recruitment barriers of a nurse‐led support programme for families with caregiving children in Austria

Nagl‐Cupal

Hauprich

2020

Nursing Open

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Aims To evaluate why no families could be recruited for a nurse‐led and family‐centred support programme in Austria which aimed to prevent an age‐inappropriate caring role for young carers. Design A qualitative study incorporating qualitative e‐interviews and telephone interviews. Method Twenty‐one interviews were conducted with statistically significant project stakeholders (N = 17) and with adult family members of children with caring responsibilities (N = 4). Data collection and analysis were guided by the “Social Marketing Framework.” Relevant statements were assigned to the main categories: product; price; promotion; place; and working with partners. Results The lack of awareness towards young carers, the unfamiliar, open outcome approach of the intervention, the inappropriate language used in promotional materials and the families' fear of stigma while seeking support were identified as central obstacles for successful recruitment of families and implementation of the support programme.

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Prevalence and effects of caregiving on children

Abstract: Data on national level are essential preconditions to initiate support for young carers. Nurses can promote children's health and well-being through prevention of an inappropriate caregiving role.

Cited by 68 publications

References 26 publications

Young carers: growing up with chronic illness in the family - a systematic review 2007-2017

Young carers: growing up with chronic illness in the family - a systematic review 2007-2017

Growing Up with Parents with Disabilities

Invisible population: Understanding recruitment barriers of a nurse‐led support programme for families with caregiving children in Austria

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