Preserving the Voice of the Witness

Ryan, Vera; Hartigan, Marianne

doi:10.2307/20632903

Cited by 2 publications

(2 citation statements)

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“…coded interviews independently to reach consensus, using a post-positivist methodology by looking for indications of how the participants viewed their world before, during, and after a spouse or partner's death; examining their coping mechanisms; and examining how understanding their experiences may inform change in the world. 39…”

Section: Discussionmentioning

confidence: 99%

“By the time she got sick it was just kind of too late”: A qualitative study on advanced care planning among bereaved lesbian, gay, and bisexual older women

Valenti¹,

Janssen

Enguídanos

et al. 2021

Palliat Med

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Background: Lesbian, gay, and bisexual (LGB) older women have unmet communication needs around palliative and end-of-life care. Past research has found communication differences for LGB women patients. Consequently, older LGB women may experience healthcare communication barriers around advance care planning. Aim: To explore experiences of bereaved LGB older women to understand perspectives regarding advance care planning communication between clinicians, patients, and dyads. Design: Guided by queer gerontology as a theoretical framework, this qualitative descriptive study employed individual interviews with purposively recruited participants. Interviews were conducted in person using a semi structured protocol and analyzed using inductive thematic analysis. Setting/participants: Sixteen LGB women, age 60 years or older from across the United States who had lost a spouse/partner within the past 5 years. Results: Four main themes emerged from the transcripts, LGB older women: (1) experience unclear advance care planning communication and end-of-life care support from clinicians, (2) often avoid advance care planning discussions with spouse or partners, (3) lack of knowledge about palliative or end-of-life care, and (4) have more positive experiences when there is consistent communication with spouse or partner and clinicians during a spouse/partner’s illness and end-of-life. Discussion: While certain experiences and opinions may reflect those of non-LGB older adults, novel advance care planning barriers exist for LGB older women. Greater understanding among clinicians is needed regarding advance care planning conversations with LGB dyads. We recommend four improvements in training, recognition, acceptance, and dyad-based communication interventions.

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Section: Discussionmentioning

confidence: 99%

“By the time she got sick it was just kind of too late”: A qualitative study on advanced care planning among bereaved lesbian, gay, and bisexual older women

Valenti¹,

Janssen

Enguídanos

et al. 2021

Palliat Med

View full text Add to dashboard Cite

show abstract

“…The aim is to encourage risk-taking to move out of Entitlement (the comfort zone) towards Earning without going too far and reaching Fear. These have been renamed as Comfort, Stretch and Panic zones (Ryan, 2006), modeled as concentric circles moving outwards from the central comfort zone. The main theme is that “Comfort is the enemy of progress”, an aphorism attributed to P. T. Barnum.…”

Section: The Comfort Zone In Managementmentioning

confidence: 99%

Comfort: Beyond HFE to Patient Outcomes and Comfort Zones

Drury,

Barnes

2023

Proceedings of the Human Factors and Ergonomics Society Annual

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Comfort has been a staple of outcome measures in Human Factors / Ergonomics (HFE) for generations. We have theories of comfort and validated measures. But HFE is not alone in studying comfort. Here we review two adjacent applications of comfort: In patient outcomes and in management’s idea of comfort zones. We find some but not much overlap between these three fields and the ability for HFE to learn positive and negative lessons from each.

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Preserving the Voice of the Witness

Cited by 2 publications

References 0 publications

“By the time she got sick it was just kind of too late”: A qualitative study on advanced care planning among bereaved lesbian, gay, and bisexual older women

“By the time she got sick it was just kind of too late”: A qualitative study on advanced care planning among bereaved lesbian, gay, and bisexual older women

Comfort: Beyond HFE to Patient Outcomes and Comfort Zones

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