Premarital Screening and Genetic Counseling program: Knowledge, attitude, and satisfaction of attendees of governmental outpatient clinics in Jeddah

Ibrahim, Nahla Khamis; Bashawri, Jamil; Bar, Hussein Al; Ahmadi, Jawaher Al; Bar, Adnan Al; Qadi, Mahdi; Milaat, Waleed A.; Feda, Hashim

doi:10.1016/j.jiph.2012.05.001

Cited by 37 publications

(58 citation statements)

References 27 publications

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“…Another study reported that nearly one third of the participants' source of information on PMS was media 20 . Another study The most common source of knowledge was TV 21,22 . In a study of India it has been noted that the most common sources of information regarding thalassemia were health care professionals and electronic media i.e.…”

Section: Fig 2: Awareness About Thalassemia Prevention (N=130) 4 Discmentioning

confidence: 99%

Identification of Common Ways for Thalassemia Awareness in Medical and Non-medical Professionals

Ahmed

Zafar

Tauseef

et al. 2017

PBJ

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To identify the common ways of thalassemia awareness in medical and non-medical professions. A simple random sampling technique was used for 130 (N) participants. A designed questionnaire with multiple sections (Demographics, Awareness about Diagnosis, Management and Prevention) for the study was used. The data was analyzed for frequency in terms of percentages by using SPSS version 23. Participants that were asked about have they ever heard about thalassemia, 95% (n=123) of selected participants said yes while 5% (n=7) of selected participants said they had never heard about thalassemia before, in which non-medical employees and non-medical students were included. When those participants were asked where did they heard about thalassemia, participants that were related to medical profession either they were medical students and doctors or were from para-medical students and employees mostly heard about thalassemia from literature as thalassemia is present in their curriculum while for participants from non-medical profession either employees or students had mostly heard from Television, Friends and Social Media. When participants were asked about the kind of disease, majority 85% (n=110) knew that it is hereditary but some participants 5% (n=6) said thalassemia is caused due to dietary deficiency and 3% (n=4) said they do not have any information about its kind while remaining 2-3% of participants said that thalassemia is contagious or occurs due to an allergic reaction.The commonest information media was television, for spreading awareness regarding health related problems such as Thalassemia. Participants related to medical profession either doctors or para-medical staffs are well aware as compare to the participants from nonmedical profession.

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Section: Fig 2: Awareness About Thalassemia Prevention (N=130) 4 Discmentioning

confidence: 99%

Identification of Common Ways for Thalassemia Awareness in Medical and Non-medical Professionals

Ahmed

Zafar

Tauseef

et al. 2017

PBJ

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“…Of those at-risk couples who underwent premarital testing in Saudi Arabia, Ibrahim et al found that 40% subsequently cancelled their marriage plans. 11 In contrast, Al-Farsi et al found that 14.8% of surveyed Omanis would marry even if they found out their future spouse was a carrier; moreover, 37.5% stated that they would not be willing to change their decision to marry based on premarital screening results. 10 However, this issue could potentially be solved by increasing awareness of the importance of premarital screening and the consequences of passing on hereditary blood disorders.…”

Section: Mandating Premarital Carrier Screeningmentioning

confidence: 95%

“…11 Al-Farsi et al also suggested unifying counselling and educational efforts in order to develop protocols to standardise clinical practice at primary healthcare centres and encourage knowledge and awareness of premarital screening among Omani patients. 10 This recommendation might help to increase the effectiveness of the current premarital screening programme.…”

mentioning

confidence: 99%

Should Premarital Screening for Blood Disorders be an Obligatory Measure in Oman?

Balushi

Al-Hinai

2018

Sultan Qaboos Univ Med J

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Due to the high rate of consanguineous marriages in Oman, there is a correspondingly high prevalence of hereditary blood disorders, particularly sickle cell disease and β-thalassaemia. This article proposes the possibility of implementing mandatory premarital carrier screening for blood disorders in Oman, while giving due consideration to potential social and cultural obstacles. Although the implementation of such legislation would require collaboration between different sectors and may negatively affect the autonomy of certain individuals, mandatory premarital screening would help to alleviate the burden of hereditary blood disorders on the national healthcare system, as well as reduce avoidable suffering among carriers and their families. A s with many arab countries, consanguineous marriages are fairly common in Oman, accounting for 58% of all marriages. Keywords

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“…Previous findings regarding the high prevalence and uneven distribution of sickle cell disease in Saudi Arabia are supported by community based studies conducted by Al-Qurashi et al (2008), and more recently by Al-Suwaid et al (2015). What may be concluded therefore is that a high prevalence of genetic haemoglobin disorders has persisted in Saudi Arabia (Ibrahim et al, 2013;.…”

Section: Prevalence Of Sickle Cell Disorder In Saudi Arabia 23mentioning

confidence: 82%

“…More recently, it has been argued that a lack of knowledge still exists among Saudi parents with children with chronic illness and disability (Gharaibeh, 2009). It has also been established that knowledge among the Saudi population regarding premarital screening and genetic counselling programs remains poor (Ibrahim et al, 2013).…”

Section: 1mentioning

confidence: 99%

The Construction of Sickle Cell Disorder in Saudi Arabia: The Invisible Disease

Abunar¹

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Premarital Screening and Genetic Counseling program: Knowledge, attitude, and satisfaction of attendees of governmental outpatient clinics in Jeddah

Cited by 37 publications

References 27 publications

Identification of Common Ways for Thalassemia Awareness in Medical and Non-medical Professionals

Identification of Common Ways for Thalassemia Awareness in Medical and Non-medical Professionals

Should Premarital Screening for Blood Disorders be an Obligatory Measure in Oman?

The Construction of Sickle Cell Disorder in Saudi Arabia: The Invisible Disease

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