Preliminary development of recommendations for the inclusion of patient-reported outcome measures in clinical quality registries

Ruseckaite, Rasa; Maharaj, Ashika; Dean, J.; Krysińska, Karolina; Ackerman, Ilana N.; Brennan, A.; Busija, Ljoudmila; Carter, Helen; Earnest, Arul; Forrest, Christopher B.; Harris, Ian; Sansoni, Janet; Ahern, Susannah

doi:10.1186/s12913-022-07657-4

Cited by 14 publications

(17 citation statements)

References 30 publications

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“…However, many studies have suggested that the less-invasive and safe interventional therapy for patients with severe carotid stenosis fails to effectively reduce the recurrence rate and still leaves adverse outcomes in some patients [ 5 , 6 ]. Scholars Ruseckaite et al have found that although stent implantation for the occluded offending vessels causing cerebral infarction can effectively restore blood flow and achieve partial or complete recanalization of vessels, there is a lack of evidence on the long-term effect and stability of this treatment [ 7 ], that is, the impact of interventional therapy on the recurrence rate remains unclear. It is worth noting that stroke is a behavior-related disease, that is, healthy life behaviors are closely related to stroke prevention [ 8 ].…”

Section: Introductionmentioning

confidence: 99%

Risk Factors of Recurrent Stroke in Young and Middle-Aged Stroke Patients after Interventional Therapy

Dai

Wang

et al. 2022

Computational and Mathematical Methods in Medicine

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Objective. To explore the risk factors of recurrent stroke in young and middle-aged stroke patients after interventional therapy. Methods. Retrospective analysis was conducted on the data of 300 young and middle-aged stroke patients treated in our hospital (February 2015–February 2017). All patients received interventional therapy. They were followed up continuously after the interventional therapy, with recurrent stroke as the only endpoint event, and those who did not have the endpoint events were followed up for 5 years. Then, the patients were divided into the occurrence group and the nonoccurrence group according to whether there was a stroke. The social demographic data and clinical examination data of all patients were collected to analyze the differences between the groups. Logistic regression analysis was performed on the factors with statistically significant differences to verify the factors affecting recurrent stroke in young and middle-aged stroke patients after interventional therapy. Results. Among the 300 patients, 69 (23.0%) had recurrent stroke and 231 (77.0%) had no recurrent stroke. The occurrence group ( n = 69 ) had 12 cases (17.4%) of massive cerebral infarction, 18 cases (26.1%) of cerebral watershed infarction, 5 cases (7.2%) of multiple cerebral infarction, 25 cases (36.2%) of lacunar infarction, and 9 cases (13.0%) of TIA. Notable differences were observed in age, drinking history, marital status, body weight, diastolic pressure, systolic pressure, fasting blood glucose, glycosylated hemoglobin, cholesterol, and fibrinogen between the occurrence group and the nonoccurrence group ( P < 0.05 ). The binary logistic regression analysis showed that age, drinking history, diastolic pressure, fasting blood glucose, glycosylated hemoglobin, cholesterol, and fibrinogen were the influencing factors of recurrent stroke in young and middle-aged stroke patients after interventional therapy. Conclusion. Blood glucose, blood lipid, blood pressure, age, and living habits have an impact on recurrent stroke in young and middle-aged patients after interventional therapy. Therefore, while strictly controlling blood glucose, blood lipid, and blood pressure, patients should improve their living habits and enhance the awareness of prevention after interventional therapy.

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Section: Introductionmentioning

confidence: 99%

Risk Factors of Recurrent Stroke in Young and Middle-Aged Stroke Patients after Interventional Therapy

Dai

Wang

et al. 2022

Computational and Mathematical Methods in Medicine

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“…Hundreds of PROMs are available for use in the evaluation and screening of pelvic floor disorders and to measure the results of treatment [ 6 ]. PROMs in registries are becoming more widely available and increasingly being used for benchmarking purposes [ 4 , 17 , 18 ]. A number of gynecological surgery registries worldwide capture HRQoL data [ 7 , 19 – 23 ].…”

Section: Discussionmentioning

confidence: 99%

“…Capturing HRQoL data in the APFPR is very important for adding valuable information on safety and effectiveness of mesh-related procedures from a consumer perspective. However, a careful consideration is required for PROMs inclusion in the registry setting [ 4 ]. The length of the instruments and potential time burden should be considered [ 5 ].…”

Section: Introductionmentioning

confidence: 99%

Evaluation and acceptability of patient-reported outcome measures in women following pelvic organ prolapse procedures

Ruseckaite

Jayasinghe

Bavor

et al. 2023

BMC Health Serv Res

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Background The Australasian Pelvic Floor Procedure Registry (APFPR) captures clinical and surgical data in women undergoing pelvic floor procedures. The inclusion of patient reported outcome measures (PROMs) in the APFPR is a critical activity providing the additional patient perspective of their condition prior to surgery as well as monitoring beyond the usual post-surgical follow-up time. This study aimed to evaluate the acceptability of seven PROMs for women with pelvic organ prolapse (POP) and to determine the most suitable instrument for the APFPR. Methods Semi-structured qualitative interviews were conducted with women with POP (n = 15) and their treating clinicians (n = 11) in Victoria, Australia. Interview topics covered appropriateness, content, and acceptability of seven POP-specific instruments identified through the literature to determine their suitability and acceptability for inclusion in the APFPR. We analysed the interview data using conventional content analysis. Results All study participants agreed that PROMs were needed for the APFPR. Both women and clinicians suggested that some of the instruments were ambiguous, too long and confusing. The Australian Pelvic Floor Questionnaire was accepted widely amongst women and clinicians and recommended for inclusion in the APFPR. All participants agreed it would be appropriate to capture PROMs before surgery, and then followed up post-surgically. Email, phone call or postal mail-out were the preferred options for PROMs data collection. Conclusion Most women and clinicians supported incorporating PROMs in the APFPR. Study participants believed that capturing PROMs would have potential use in individual care and improve outcomes of women with POP.

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“…PROMs in registries are becoming more widely available and used for benchmarking purposes [4,16,17].…”

Section: Discussionmentioning

confidence: 99%

Evaluation and acceptability of patient-reported outcome measures in women following pelvic organ prolapse procedures

Ruseckaite

Jayasinghe

Bavor

et al. 2022

Preprint

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Background: The Australasian Pelvic Floor Procedure Registry (APFPR) captures clinical and surgical data in women undergoing pelvic floor procedures. The inclusion of patient reported outcome measures (PROMs) in the APFPR is a critical activity providing the additional patient perspective of their condition prior to surgery as well as monitoring beyond the usual post-surgical follow-up time. This study aimed to evaluate the acceptability of seven PROMs for women with pelvic organ prolapse (POP) and to determine the most suitable instrument for the APFPR. Methods: Semi-structured qualitative interviews were conducted with women with POP (n = 15) and their treating clinicians (n = 11) in Victoria, Australia. Interview topics covered appropriateness, content, and acceptability of seven POP-specific instruments identified through the literature to determine their suitability and acceptability for inclusion in the APFPR. We analysed the interview data using conventional content analysis. Results: All study participants agreed that PROMs were needed for the APFPR. Both women and clinicians suggested that some of the instruments were ambiguous, too long and confusing. The Australian Pelvic Floor Questionnaire was accepted widely amongst women and clinicians and recommended for inclusion in the APFPR. All participants agreed it would be appropriate to capture PROMs before surgery, and then followed up post-surgically. Email, phone call or postal mail-out were the preferred options for PROMs data collection. Conclusion: Most women and clinicians supported incorporating PROMs in the APFPR. Study participants believed that capturing PROMs would have potential use in individual care and improve outcomes of women with POP.

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Preliminary development of recommendations for the inclusion of patient-reported outcome measures in clinical quality registries

Cited by 14 publications

References 30 publications

Risk Factors of Recurrent Stroke in Young and Middle-Aged Stroke Patients after Interventional Therapy

Risk Factors of Recurrent Stroke in Young and Middle-Aged Stroke Patients after Interventional Therapy

Evaluation and acceptability of patient-reported outcome measures in women following pelvic organ prolapse procedures

Evaluation and acceptability of patient-reported outcome measures in women following pelvic organ prolapse procedures

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