Pregnancy termination at a viable stage in daily clinical practice: A nationwide mortality follow‐back study in Flanders, Belgium

Abstract

Objective: Congenital malformations are frequently diagnosed prenatally even at a viable stage. No adequate registration of incidence and characteristics of late termination of pregnancy (TOP) or abortion for medical reasons exists in Flanders. Methods: Nationwide mortality follow-back survey sent to physicians signing death certificates of all stillbirths for 22 weeks gestation onward (September 2016-December 2017) in Flanders, Belgium. Questions measured whether late TOP preceded stillbirth, and which clinical and sociodemographic characteristics were indicated. Questionnaire data were linked with sociodemographic information from death certificates. Results: Response rate was 56% (203/366). 38% of stillbirths (77/203) concerned late TOP. In 88.3% of late TOPs, physicians classified congenital anomalies of the foetus as serious or very serious (incompatibility with life outside the womb or severe neurological or physical impairment). In 26% of cases, late TOP was first suggested by the physician rather than spontaneously requested by parents (73%). 88% of late TOPs were discussed in open team meetings. Conclusions: 2/5 stillbirths were preceded by late TOP, indicating severe underreportation by existing registrations and a dire need for adequate registration methods. Although late TOP was most often explicitly requested by parents, in ¼ cases termination was suggested first by physicians. Parents are sometimes hesitant to bring up late TOP themselves, indicating that TOP should always be counselled as an equivalent option. Key pointsWhat is already known about this topic? � Congenital malformations are more frequently diagnosed prenatally, possibly at a viable stage. This may lead to decisions resulting in the (late) termination of pregnancy (late TOP).� No adequate registration of incidence, indication, the decision-making process and medical acts of late TOP on the population level in Flanders exists.Ellen Roets and Kim Beernaert contributed equally to this work. Kristien Roelens and Laure Dombrecht contributed equally to this work.