Preferences for Participation in Decision Making Among Ethnically Diverse Patients with Anxiety and Depression

Patel, Sapana R.; Bakken, Suzanne

doi:10.1007/s10597-010-9323-3

Cited by 59 publications

(48 citation statements)

References 56 publications

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“…Some of them could be applied to our findings. First, patients' health worldview, including health belief models, treatment preferences, involvement of family, greater trust in their physician and attitude may vary and influence a patient's preference for participation (influence by cultural attitudes and tradition) [37][38][39][40]. Second, perceived lack of knowledge, lack of self-efficacy or a learned response influenced by cultural attitudes may contribute to this as well [38][39][40].…”

Section: Discussionmentioning

confidence: 99%

Participation in medical decision-making across Europe: An international longitudinal multicenter study

et al. 2016

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Background: The purpose of this paper was to examine national differences in the desire to participate in decision-making of people with severe mental illness in six European countries. Methods:The data was taken from a European longitudinal observational study (CEDAR; ISRCTN75841675). A sample of 514 patients with severe mental illness from the study centers in Ulm, Germany, London, England, Naples, Italy, Debrecen, Hungary, Aalborg, Denmark and Zurich, Switzerland were assessed as to desire to participate in medical decision-making. Associations between desire for participation in decision-making and center location were analyzed with generalized estimating equations. Results:We found large cross-national differences in patients' desire to participate in decision-making, with the center explaining 40% of total variance in the desire for participation (p<0.001). Averaged over time and independent of patient characteristics, London (mean=2.27), Ulm (mean=2.13) and Zurich (mean=2.14) showed significantly higher scores in desire for participation, followed by Aalborg (mean=1.97), where scores were in turn significantly higher than in Debrecen (mean=1.56). The lowest scores were reported in Naples (mean=1.14). Over time, desire for participation in decision-making increased significantly in Zurich (b=0.23) and decreased in Naples (b=-0.14). In all other centers, values remained stable.Conclusions: This study demonstrates that patients' desire for participation in decisionmaking varies by location. We suggest that more research attention be focused on identifying specific cultural and social factors in each country to further explain observed differences across Europe.

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Section: Discussionmentioning

confidence: 99%

Participation in medical decision-making across Europe: An international longitudinal multicenter study

et al. 2016

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“…Minority patients, particularly African-Americans are less likely to seek health information, ask questions of their providers, and prepare for their healthcare visits. (McGinnis et al, 2003;Patel & Bakken, 2010). They are less likely to seek mental health services (Atdjian & Vega, 2005) and once they are in mental health care, they are more likely to discontinue treatment early (Cook, Reeves, Teufel, & Postolache, 2015;Fortuna, Alegria, & Gao, 2010).…”

Section: Introductionmentioning

confidence: 99%

The Relationship Between Race, Patient Activation, and Working Alliance: Implications for Patient Engagement in Mental Health Care

Eliacin

Coffing

Matthias

et al. 2016

Adm Policy Ment Health

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This study explored the relationship between race and two key aspects of patient engagementpatient activation and working alliance -among a sample of African-American and White veterans (N=152) seeking medication management for mental health conditions. After adjusting for demographics, race was significantly associated with patient activation, working alliance, and medication adherence scores. Patient activation was also associated with working alliance. These results provide support for the consideration of race and ethnicity in facilitating patient engagement and patient activation in mental healthcare. Minority patients may benefit from targeted efforts to improve their active engagement in mental healthcare.

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“…For example, a number of researchers have examined racial differences in beliefs about mental health (e.g., seriousness of illness), help seeking (what help would be appropriate), and treatment effectiveness with vignettes depicting different forms of mental health illnesses, such as major depressive disorder or schizophrenia (Anglin et al 2008) or conduct disorder (Pottick et al 2007) or social anxiety disorder (Coles et al 2016). With comparisons of vignettes representing other mental health illnesses, physical illnesses (Patel and Bakken 2010), marital and family problems (Uomoto and Gorsuch 1984), or no clinically significant diagnosis (Thurston et al 2015), vignette studies can uncover how individuals of different races or ethnicities view mental health and helping processes. Yap and Jorm (2012) have found that responses to vignettes predicted later mental health service use in congruent ways, suggesting that vignettes may be a useful tool to identify important aspects of service utilization and barriers to it.…”

Section: Discussionmentioning

confidence: 99%

Conceptualizing Culturally Infused Engagement and Its Measurement for Ethnic Minority and Immigrant Children and Families

Yasui

Pottick

Chen

2017

Clin Child Fam Psychol Rev

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Despite the central role culture plays in racial and ethnic disparities in mental health among ethnic minority and immigrant children and families, existing measures of engagement in mental health services have failed to integrate culturally specific factors that shape these families' engagement with mental health services. To illustrate this gap, the authors systematically review 119 existing instruments that measure the multi-dimensional and developmental process of engagement for ethnic minority and immigrant children and families. The review is anchored in a new integrated conceptualization of engagement, the culturally infused engagement model. The review assesses culturally relevant cognitive, attitudinal, and behavioral mechanisms of engagement from the stages of problem recognition and help seeking to treatment participation that can help illuminate the gaps. Existing measures examined four central domains pertinent to the process of engagement for ethnic minority and immigrant children and families: (a) expressions of mental distress and illness, (b) causal explanations of mental distress and illness, (c) beliefs about mental distress and illness, and (d) beliefs and experiences of seeking help. The findings highlight the variety of tools that are used to measure behavioral and attitudinal dimensions of engagement, showing the limitations of their application for ethnic minority and immigrant children and families. The review proposes directions for promising research methodologies to help intervention scientists and clinicians improve engagement and service delivery and reduce disparities among ethnic minority and immigrant children and families at large, and recommends practical applications for training, program planning, and policymaking.

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Preferences for Participation in Decision Making Among Ethnically Diverse Patients with Anxiety and Depression

Cited by 59 publications

References 56 publications

Participation in medical decision-making across Europe: An international longitudinal multicenter study

Participation in medical decision-making across Europe: An international longitudinal multicenter study

The Relationship Between Race, Patient Activation, and Working Alliance: Implications for Patient Engagement in Mental Health Care

Conceptualizing Culturally Infused Engagement and Its Measurement for Ethnic Minority and Immigrant Children and Families

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