Preferences for models of peer support in the digital era: A cross‐sectional survey of people with cancer

Boyes, Allison; Turon, Heidi; Hall, Alix; Watson, Rochelle; Proietto, Anthony; Sanson‐Fisher, Rob

doi:10.1002/pon.4781

Cited by 17 publications

(12 citation statements)

References 33 publications

(71 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…However, it is possible to develop coping strategies such as pragmatism, self-awareness and reliance on others that can enable psychological well-being to be managed or regained [37,46]. Whilst information about coping with cancer from healthcare professionals is valued, people with cancer often want to learn about developing effective coping strategies from their peers [2,5,46].…”

Section: Introductionmentioning

confidence: 99%

Peer Mentors for People with Advanced Cancer: Lessons Learnt from Recruiting and Training Peer Mentors for a Feasibility Randomized Controlled Trial

et al. 2020

View full text Add to dashboard Cite

Peer mentors may offer distinctive forms of support to people with advanced cancer. Whilst peer mentor programmes are known, little is understood about recruiting and training peer mentors to support those with advanced cancer. The purpose of this study is to determine the feasibility of recruiting and training peer mentors for a novel peer mentor intervention to promote well-being in people with advanced cancer. Feasibility study testing proactive introduction to a trained peer mentor for 12 weeks in the context of a randomized controlled two-arm trial and nested qualitative process evaluation was used. Peer mentors have/had cancer, recruited via an open call. Two-day training included a new bespoke module on coping with cancer. Descriptive recruitment and training data were captured, supplemented by qualitative interviews, analysed thematically. Forty-eight people expressed interest, mostly female (69%), with breast cancer (32%), and recruited via social media (49%). Twelve people completed training, with attrition often due to availability or mentors' own health; many had advanced cancer themselves. They wanted to 'give something back', but also formed supportive bonds with fellow mentors. It is feasible to recruit and train people with lived experience of cancer to be peer mentors, but those with particular characteristics may predominate. Broad social media based recruitment may have merit in widening the pool of potential peer mentors.

show abstract

Section: Introductionmentioning

confidence: 99%

Peer Mentors for People with Advanced Cancer: Lessons Learnt from Recruiting and Training Peer Mentors for a Feasibility Randomized Controlled Trial

et al. 2020

View full text Add to dashboard Cite

show abstract

“…In a sample of 177 adult cancer patients, Boyes et al show a patient preference for face-to-face (53%) peer support, as compared to online (13%). 43 Of note, 1/3 of their sample did not have internet access at home. Word-based text analysis software has been used to compare transcripts from online and face-to-face support groups for adolescent and young cancer patients.…”

Section: Perceived Psychosocial Benefitsmentioning

confidence: 98%

An Exploration of Online Support Community Participation Among Patients With Vestibular Disorders

et al. 2021

View full text Add to dashboard Cite

Objectives/Hypothesis: To formally document online support community (OSC) use among patients with vestibular symptoms and gain an appreciation for the perceived influence of participation on psychosocial outcomes and the impact on medical decision-making.Study Design: Self reported internet-based questionnaire.Methods: The Facebook search function was paired with a comprehensive list of vestibular diagnoses to systematically collect publicly available information on vestibular OSCs. Next, a survey was designed to gather clinicodemographic information, OSC characteristics, participation measures, perceived outcomes, and influence on medical decision-making. The anonymous instrument was posted to two OSCs that provide support for patients with general vestibular symptoms.Results: Seventy-three OSCs were identified with >250,000 cumulative members and >10,000 posts per month. The survey was completed by 549 participants, a cohort of primarily educated middle-aged (median = 50, interquartile range 40-60), non-Hispanic white (84%), and female (89%) participants. The participants' most cited initial motivation and achieved goal of participants was to hear from others with the same diagnosis (89% and 88%, respectively). Daily users and those who reported seeing ≥5 providers before receiving a diagnosis indicated that OSC utilization significantly influenced their requested medical treatments (72% daily vs. 61% nondaily, P = .012; 61% <5 providers vs. 71% ≥5 providers P = .019, respectively). Most participants agreed that OSC engagement provides emotional support (74%) and helps to develop coping strategies (68%). Membership of ≥1 year was associated with a higher rate of learned coping skills (61% membership <1-year vs. 71% ≥1-year P = .016).Conclusions: The use of OSCs is widespread among vestibular diagnoses. A survey of two OSCs suggests these groups provide a significant source of peer support and can influence users' ability to interface with the medical system.

show abstract

“…The statement items on the peer support scale (PSS) are used as many as 17 items. This item used refers to previously developed PSS items that can reveal problems faced by a person through peers (Boyes et al, 2018). The statement items in the lecturer agreeableness personality perception scale (LAPPS) section were used as many as 27 items.…”

Section: Data Collection Instrumentsmentioning

confidence: 99%

How are the Parents Involvement, Peers and Agreeableness Personality of Lecturers Related to Self-Regulated Learning?

Latipah¹,

Kistoro²,

Putranta³

2021

EUROPEAN J ED RES

View full text Add to dashboard Cite

Student learning in higher education is influenced by parental involvement, peer support, and lecturers' perceptions of agreeableness. This research aims to examine the correlation between parental involvement, peer support, and the perception of personality agreeableness of lecturers on self-regulated learning (SRL) students. This research is a correlational field research model with a quantitative approach. The respondents of this research were 250 students of Yogyakarta State Islamic University who were obtained using a purposive random sampling technique. Data collection uses a scale of SRL, parent involvement, peer support, and perception of the agreeableness personality of the lecturer. Regression analysis is used as a data analysis technique. The results showed that there was a positive and significant correlation between parental involvement with SRL, peer support with SRL, personality perception agreeableness lecturers with SRL, and parental involvement, peer support, and perceptual personality agreeableness of lecturers together with SRL with an effective contribution (R2) of 15.1%. It was concluded that the involvement of parents, peer support, and perception of personality agreeableness of lecturers related to SRL of students. Therefore, to see student SRL can be seen based on the involvement of parents, peer support, and students' perceptions of the personality agreeableness of their lecturers.

show abstract

Preferences for models of peer support in the digital era: A cross‐sectional survey of people with cancer

Cited by 17 publications

References 33 publications

Peer Mentors for People with Advanced Cancer: Lessons Learnt from Recruiting and Training Peer Mentors for a Feasibility Randomized Controlled Trial

Peer Mentors for People with Advanced Cancer: Lessons Learnt from Recruiting and Training Peer Mentors for a Feasibility Randomized Controlled Trial

An Exploration of Online Support Community Participation Among Patients With Vestibular Disorders

How are the Parents Involvement, Peers and Agreeableness Personality of Lecturers Related to Self-Regulated Learning?

Contact Info

Product

Resources

About