Preferences for attributes of long-term care in dementia: a scoping review of multi-criteria decision analyses

Speckemeier, Christian

doi:10.1007/s10389-022-01743-x

Cited by 2 publications

(3 citation statements)

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“…Attributes and levels were developed following the recommendations by Helter and Boehler [ 40 ], namely raw data collection, data reduction, removing inappropriate attributes, and wording. A scoping review was conducted to collate published studies in which preferences for living and care concepts for persons with dementia are determined [ 14 ], and a systematic review identified studies assessing innovative forms of housing for persons with dementia [ 41 ]. Based on the results of these reviews, focus groups with participants from the general public aged 50 years and older aimed to identify important aspects of care arrangements.…”

Section: Methodsmentioning

confidence: 99%

“…Small-scale homelike living units usually offer group living for 5–15 residents with dementia and put an emphasis on residents’ choices, autonomy and independence [ 10 , 13 ]. A number of studies have shown that compared with more traditional settings, small-scale homelike living units may encourage social behaviour, preserve activity performance and positively influence emotional status, while other studies have failed to show these effects [ 14 ].…”

Section: Introductionmentioning

confidence: 99%

“…In the majority of these studies, the general population or caregivers of persons with dementia have been surveyed. Although objectives differ, strong preferences for care by the same person, caregiver expertise, and organizational aspects were found [ 14 ].…”

Section: Introductionmentioning

confidence: 99%

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Preferences for Living Arrangements in Dementia: A Discrete Choice Experiment

Speckemeier,

Abels,

Höfer

et al. 2023

PharmacoEconomics Open

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Background Dementia affects about 55 million people worldwide. Demographic change and shifting lifestyles challenge the organization of dementia care. A discrete choice experiment (DCE) was conducted to elicit preferences for living arrangements in dementia in urban and rural regions of Germany. Methods Preliminary work included review of previous literature and focus groups. The DCE consists of seven attributes (group size, staff qualifications, organization of care, activities offered, support of religious practice, access to garden, consideration of food preferences) with three levels each. Individuals from the general population between the ages of 50 and 65 years were identified through population registration offices in three rural municipalities and one urban area, and 4390 individuals were approached via postal survey. A hierarchical Bayesian mixed logit model was estimated and interactions with sociodemographic characteristics were investigated. Results A total of 428 and 412 questionnaires were returned by rural and urban respondents, respectively. Access to a garden was perceived as the most important attribute (average importance 36.0% in the rural sample and 33.4% in the urban sample), followed by consideration of food preferences (15.8%, 17.8%), staff qualification (14.6%, 15.3%), care organization (11.4%, 12.3%), group size (12.2%, 11.1%), and range of activities (8.0%, 10.1%). The attribute relating to religious practice was given the least importance (2.1%, 0%). Preferences vary according to gender, age, religious beliefs, experience as an informal caregiver, and migrant background. Conclusion Heterogeneous preferences for living arrangements for people with dementia were identified. The expansion of concepts with access to natural environments for persons with dementia might be a viable option for the formal care market in Germany. Further research is needed to meet the challenges of setting up and designing innovative living arrangements for people with dementia. Preferences vary by gender, age, religious beliefs, experience as an informal caregiver, and migrant background. Supplementary Information The online version contains supplementary material available at 10.1007/s41669-023-00452-9.

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Section: Methodsmentioning

confidence: 99%