Preference, Choice, and Self-Determination in the Healthcare Context

Abery, Brian H.; Anderson, Lynda

doi:10.1007/978-3-030-35683-5_8

Cited by 1 publication

(1 citation statement)

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“…A hinderance for equality on macro-, meso-and micro-levels Our data has revealed that persons with intellectual disabilities were inflicted far heavier restrictions both formally and practically, based on instructions from both national, municipal, and residential regulations (macro-, meso-and micro-levels), resulting in limited selfdetermination within health protection. Hence, our study reveals how, as stressed by Abery and Anderson (2020), opportunities for selfdetermination within the healthcare context depends on relationships with both large and small systems, and individuals. Norwegian national health authorities introduced a total lockdown 12th of March 2020, stricter in health-and care residential settings than for citizens in general.…”

Section: "Othering"mentioning

confidence: 87%

With the best intentions: Implications on self‐determination during Covid‐19 restrictions

Melbøe,

Kane

2024

Research Intellect Disabil

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BackgroundIn times of crisis, the interests of the individual might be sacrificed for the health and safety of others. The aim of this study was to explore the situation under Covid‐19 for persons with intellectual disabilities, focusing on implications on the right to self‐determination within health protection.MethodTo understand how the relevant legal framework was governed by authorities and service providers during the Covid‐19 pandemic, we have performed semi‐structured interviews with 19 service providers in municipal home care services.ResultsMany residents were provided adequate and adapted information about Covid‐19, but very few were involved in the introduction and implementation of infection control measures.ConclusionsOur study has revealed how a crisis such as the pandemic not only puts the health of people with intellectual disabilities at risk, but also challenges their right to self‐determination.

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Section: "Othering"mentioning

confidence: 87%