Predictors of successful relationships in a peer support program for Alzheimer's caregivers

Sabir, Myra; Pillemer, Karl; Suitor, J. Jill; Patterson, Michael

doi:10.1177/153331750301800211

Cited by 29 publications

(49 citation statements)

References 22 publications

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“…As suggested by previous research (Sabir, et al, 2003), we expected engagement in peer activity to affect care-specific outcomes, but no significant effects were seen in our sample. Nevertheless, because caregivers who feel more burdened or depressed might be more likely to seek out formal peer support activities, longitudinal research will be needed to determine whether engagement in peer support is ultimately beneficial for those at risk of psychological distress.…”

Section: Discussionsupporting

confidence: 49%

“…Social activity also is an important means of coping with caregiving stress (Haley, Levine, Brown, & Bartolucci, 1987; Pearlin, Mullan, Semple, & Skaff, 1990; Thompson, Futterman, Gallagher-Thompson, Rose, & Lovett, 1993). It allows caregivers to temporarily escape the responsibilities of caregiving (Barusch, 1988; Bedini & Guinan, 1996) and participate in peer support activities, which provide important opportunities for sharing both stressful and rewarding experiences (Sabir, Pillemer, Suitor, & Patterson, 2003). Social ties and leisure activity appear to mediate the effect of care demands on depression--the effect of caregiving on depression is reduced when activity restriction is taken into account (Cannuscio et al, 2004; Mausbach, Patterson, et al, 2008; Nieboer et al, 1998; Williamson, Shaffer, & Schulz, 1998).…”

Section: Introductionmentioning

confidence: 99%

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Effects of home, outside leisure, social, and peer activity on psychological health among Japanese family caregivers

Wakui¹,

Saito²,

Agree³

et al. 2012

Aging & Mental Health

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Objective Previous research has indicated that informal caregivers’ personal activities are disrupted by their caregiving role, leading to psychological stress and lower life satisfaction. However, the extent to which engagement in personal activities affects caregivers’ psychological health remains unclear. This study examines the relationship between different types and frequencies of activities and both positive and negative parameters of the psychological health of caregivers. Methods A mail survey was conducted with 727 family caregivers of older persons using adult day care services in the Tokyo metropolitan area. Perceived caregiver burden, care satisfaction, life satisfaction, and depression were used as psychological health outcomes. Engagement in home, outside leisure, social, and peer activities, as well as caregiver and care-recipient characteristics and caregiving situations, were assessed using a multivariate regression analysis. Results Engagement in home activities was related to lower scores on burden and depression and greater care satisfaction after controlling for care needs and caregiver characteristics, and social and peer activities were associated with greater life satisfaction. More frequent engagement was also associated with better psychological health, but a moderate involvement in home activities was most strongly associated with better care satisfaction. The amount of outside leisure activity was not significantly related with any of the outcomes. Conclusion This study shows that activity type and frequency are associated with caregivers’ psychological health, extending previous findings and providing practical implications for the support of family caregivers through programs to improve their participation in specific types of activities.

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Section: Discussionsupporting

confidence: 49%

Section: Introductionmentioning

confidence: 99%

Effects of home, outside leisure, social, and peer activity on psychological health among Japanese family caregivers

Wakui¹,

Saito²,

Agree³

et al. 2012

Aging & Mental Health

View full text Add to dashboard Cite

show abstract

“…We match pairs to encourage longer and more satisfying peer support relationships [26]. The role of the CS is to provide emotional and informational support to the family carer, offer family carers a listening ear, and signpost them to local services and other useful contacts and resources.…”

Section: Designmentioning

confidence: 99%

Peer support for family carers of people with dementia, alone or in combination with group reminiscence in a factorial design: study protocol for a randomised controlled trial

Charlesworth

Burnell

Beecham

et al. 2011

Trials

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BackgroundPeer support interventions can improve carer wellbeing and interventions that engage both the carer and person with dementia can have significant mutual benefits. Existing research has been criticised for inadequate rigour of design or reporting. This paper describes the protocol for a complex trial that evaluates one-to-one peer support and a group reminiscence programme, both separately and together, in a factorial design.DesignA 2 × 2 factorial multi-site randomised controlled trial of individual peer support and group reminiscence interventions for family carers and people with dementia in community settings in England, addressing both effectiveness and cost-effectiveness.DiscussionThe methods described in this protocol have implications for research into psychosocial interventions, particularly complex interventions seeking to test both individual and group approaches.Trial RegistrationISRCTN37956201

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“…There was no main effect of face‐to‐face peer support on depression or self‐esteem, but support did reduce the depressive effect of disruptive behaviour, suggesting a buffering effect (Pillemer & Suitor , Sabir et al . ).…”

Section: Introductionmentioning

confidence: 97%

The impact of volunteering on the volunteer: findings from a peer support programme for family carers of people with dementia

Charlesworth

Sinclair

Brooks

et al. 2016

Health Soc Care Community

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With an ageing population, there are increasing numbers of experienced family carers (FCs) who could provide peer support to newer carers in a similar care situation. The aims of this paper are to: (i) use a cross-sectional study design to compare characteristics of volunteers and recipients of a peer support programme for FCs of people with dementia, in terms of demographic background, social networks and psychological well-being; and (ii) use a longitudinal study design to explore the overall impact of the programme on the volunteers in terms of psychological well-being. Data were collected from programmes run in Norfolk, Northamptonshire, Berkshire and four London boroughs between October 2009 and March 2013. The volunteer role entailed empathic listening and encouragement over a 10-month period. Both carer support volunteers (N = 87) and recipient FCs (N = 109) provided baseline demographic information. Data on social networks, personal growth, self-efficacy, service use and well-being (SF-12; EuroQol Visual Analogue Scale; Hospital Anxiety and Depression Scale; Control, Autonomy, Self-Realisation, Pleasure-19) were collected prior to the start of the intervention (N = 43) and at either 3- to 5 month or 10 month follow-up (N = 21). Volunteers were more likely than recipients of support to be female and to have cared for a parent/grandparent rather than spouse. Volunteers were also more psychologically well than support recipients in terms of personal growth, depression and perceived well-being. The longitudinal analysis identified small but significant declines in personal growth and autonomy and a positive correlation between the volunteers' duration of involvement and perceived well-being. These findings suggest that carers who volunteer for emotional support roles are resilient and are at little psychological risk from volunteering.

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Predictors of successful relationships in a peer support program for Alzheimer's caregivers

Cited by 29 publications

References 22 publications

Effects of home, outside leisure, social, and peer activity on psychological health among Japanese family caregivers

Effects of home, outside leisure, social, and peer activity on psychological health among Japanese family caregivers

Peer support for family carers of people with dementia, alone or in combination with group reminiscence in a factorial design: study protocol for a randomised controlled trial

The impact of volunteering on the volunteer: findings from a peer support programme for family carers of people with dementia

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