Predictors of Self and Surrogate Online Health Information Seeking in Family Caregivers to Cancer Survivors

Oh, Young Sam

doi:10.1080/00981389.2015.1070780

Cited by 47 publications

(38 citation statements)

References 34 publications

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“…This integrative review by Park et al [ 13 ] included studies that do not differentiate between self-seeking and proxy seeking. Research has shown significant differences in characteristics of self-seekers and proxy seekers [ 7 - 9 , 16 ]. OHIS for oneself is typically based on different motives, needs, and circumstances than searching for someone else [ 8 , 16 , 17 ].…”

Section: Introductionmentioning

confidence: 99%

Online Health Information Seeking by Parents for Their Children: Systematic Review and Agenda for Further Research

Kubb¹,

Foran²

2020

J Med Internet Res

112

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Background Parents commonly use the internet to search for information about their child’s health-related symptoms and guide parental health-related decisions. Despite the impact of parental online health seeking on offline health behaviors, this area of research remains understudied. Previous literature has not adequately distinguished searched behaviors when searching for oneself or one`s child. Objective The purpose of this review is to examine prevalences and associated variables of parent-child online health information seeking; investigate parents’ health-related online behavior regarding how they find, use, and evaluate information; and identify barriers and concerns that they experience during the search. Based on this analysis, we develop a conceptual model of potentially important variables of proxy online health information seeking, with a focus on building an agenda for further research. Methods We conducted a comprehensive systematic literature review of the PsycINFO, JMIR, and PubMed electronic databases. Studies between January 1994 and June 2018 were considered. The conceptual model was developed using an inductive mixed methods approach based on the investigated variables in the study sample. Results A total of 33 studies met the inclusion criteria. Findings suggest that parents worldwide are heavy online users of health-related information for their children across highly diverse circumstances. A total of 6 studies found high parental health anxiety, with prevalences ranging from 14% to 52%. Although parents reported wishing for more guidance from their pediatrician on how to find reliable information, they rarely discussed retrieved information from the web. The conceptual model of proxy online health information seeking includes 49 variables. Conclusions This systematic review identifies important gaps regarding the influence of health-related information on parents’ health behavior and outcomes. Follow-up studies are required to offer parents guidance on how to use the web for health purposes in an effective way, as well as solutions to the multifaceted problems during or after online health information seeking for their child. The conceptual model with the number of studies in each model category listed highlights how previous studies have hardly considered relational variables between the parent and child. An agenda for future research is presented.

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Section: Introductionmentioning

confidence: 99%

Online Health Information Seeking by Parents for Their Children: Systematic Review and Agenda for Further Research

Kubb¹,

Foran²

2020

J Med Internet Res

112

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“…These scholars have investigated the relationship between and the effect of demographic characteristic variables, cognitive factors, internal factors, external factors, and OHISB. Specifically, based on a comprehensive model of information seeking, the older the family caregivers are, the less likely they are to conduct OHISB [10]. Several studies argued that self-efficacy is positively associated with OHISB [2,8,9,11,12].…”

Section: Introductionmentioning

confidence: 99%

Exploring the Determinants of Online Health Information-Seeking Behavior Using a Meta-Analytic Approach

2019

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Although key factors of online health information-seeking behavior (OHISB), such as self-efficacy, Internet experience, and perceived ease of use, are analyzed in many studies, the research results are controversial. The purpose of this meta-analysis, based on 27 related empirical studies, is to explore the determinants of OHISB. The determinants of OHISB are classified into four categories: demographic characteristic factors, cognitive factors, internal factors, and external factors. According to the results of the analysis using Stata13.0, our study found a weak effect of perceived cost and health anxiety on the OHISB, while subjective norm, perceived usefulness, and attitude have a strong positive effect on the OHISB. Understanding the determinants of OHISB is beneficial in order to know why users utilize online health applications. The findings of the study can contribute to developing and extending the existing theoretical concepts.

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“…Family members may also have selected information they assumed to be relevant or sought informational or emotional support only for themselves. Thus, information seeking by family members and friends is not always motivated by supportive intentions for the patient but may also be triggered by personal needs or by a mix of both . Further research is needed to understand the nature of the information exchange between surrogate seekers and patients (eg, whether and which information is passed on to the patient) and the motives of family members for contacting CISs.…”

Section: Discussionmentioning

confidence: 99%

“…As reported in the literature, surrogate‐information seeking is quite common . Several studies have presented data on family members and friends who seek health information on behalf of a cancer patient on the Internet or from a CIS . These studies indicated that surrogate seekers represented a distinct demographic group when compared with cancer patients seeking information for themselves .…”

Section: Introductionmentioning

confidence: 94%

“…6 These studies indicated that surrogate seekers represented a distinct demographic group when compared with cancer patients seeking information for themselves. 16 According to the literature, females and middle-aged adults are more likely than males and younger or older adults to seek cancer-related information 10,17 or to contact a CIS on behalf of a cancer patient. 6 Furthermore, surrogate seekers' information needs differ from patients' information and psychological needs.…”

Section: Introductionmentioning

confidence: 99%

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Demographic and cancer‐related differences between self‐seeking patients and supported patients: Analysis of cancer information–service data

et al. 2019

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Objective Surrogate information seeking is quite common, and several studies have presented data on caregivers, family members, and friends who seek health information on the Internet or from a cancer‐information service (CIS) on behalf of cancer patients. However, these studies provide little information about the patients who are supported by surrogate seekers. Therefore, this study analyzed demographic and cancer‐related differences, including diverse informational needs, between self‐seeking patients and patients who benefited from surrogate seekers (ie, caregivers, family, or friends) requesting information on their behalf. Methods We conducted a retrospective audit of phone and e‐mail inquiries to a German CIS between January and December 2016 from self‐seeking patients (n = 13 723) and surrogate information seekers, as well as the corresponding supported patients (n = 6696). Results Supported patients were more likely to be males (P < 0.001), older than self‐seeking patients (P < 0.001), and older than the corresponding surrogate seekers (P < 0.001). They were also more likely to be in the diagnostic or palliative stage (P < 0.001) and were less likely to suffer from breast cancer or prostate cancer (P < 0.001) than self‐seeking patients. There were significant differences in the CIS requests of self‐seekers and surrogate seekers. Conclusions The results point to different support needs of self‐seekers and surrogate seekers. Thus, surrogate seekers and their corresponding supported patients should be seen as a separate target group to self‐seeking patients, with the former requiring informational and emotional support on diverging topics and at different disease stages.

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Predictors of Self and Surrogate Online Health Information Seeking in Family Caregivers to Cancer Survivors

Cited by 47 publications

References 34 publications

Online Health Information Seeking by Parents for Their Children: Systematic Review and Agenda for Further Research

Online Health Information Seeking by Parents for Their Children: Systematic Review and Agenda for Further Research

Exploring the Determinants of Online Health Information-Seeking Behavior Using a Meta-Analytic Approach

Demographic and cancer‐related differences between self‐seeking patients and supported patients: Analysis of cancer information–service data

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