Predictors of psychological functioning in mothers and fathers of infants born with severe congenital heart disease

Doherty, Nicola; McCusker, Christopher G.; Molloy, Bernadette; Mulholland, Connor; Rooney, Nichola; Craig, Brian; Sands, Andrew J; Stewart, Moira; Casey, Francis

doi:10.1080/02646830903190920

Cited by 75 publications

(67 citation statements)

References 41 publications

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“…No study-reported findings focused on the differences in parental stress across racial groups, and only one study reported findings focused on differences in parental stress within various socioeconomic groups (Doherty et al, 2009). As can be seen in Table 2, very few of the studies specify the education level of the parent.…”

Section: Characteristics Of the Samplementioning

confidence: 96%

“…For example, several studies utilized one of the more commonly used measures of parental stress, the Parental Stress Index (PSI; Brosig, Mussatto, et al, 2007;Carey, Nicholson, & Fox, 2002;Darke & Goldberg, 1994;Goldberg et al, 1990;Majnemer et al, 2006;Pelchat et al, 1999;Torowicz et al, 2010). Other standardized surveys that were used included the Parental Stressor Scale (Docherty et al, 2002;Miles et al, 1989), the Child Healthy Worry Scales (Docherty et al), the Brief Symptom Inventory (BSI; Brosig, Whitstone, Frommelt, Frisbee, & Leuthner, 2007;Doherty et al, 2009), the General Health Questionnaire (Gardner et al, 1996), the Spielberger Trait/Anxiety Inventory (Hoehn et al, 2004), the Stress Appraisal Measure (Pelchat et al), the Hospital Anxiety and Depression Scale (Rona, Smeeton, Beech, Barnett, & Sharland, 1998), and the Family Inventory of Life Events, which assesses stressful life events for the family (Svavarsdottir & McCubbin, 1996).…”

Section: Research Measuresmentioning

confidence: 99%

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Psychological Distress Experienced by Parents of Young Children With Congenital Heart Defects: A Comprehensive Review of Literature

Soulvie

Desai

Parker

et al. 2012

Journal of Social Service Research

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The purpose of this study was to examine the existing research on the psychological distress experienced by parents whose young children (between the ages of 0 and 5 years old) have a congenital heart defect (CHD). A more detailed understanding of the distress experienced by these parents, including stress associated with the child's age, the severity of the child's diagnosis, and parent characteristics, is vital as it would allow for more targeted and individualized support for this population to enhance parental coping strategies and increase the likelihood of more positive parent-child interactions. This review of 25 studies contributes to the parenting stress literature by focusing on parents of young children and categorizing studies by publication characteristics, research methodology, and findings. The research clearly demonstrates that parents report a great deal of stress throughout the continuum of their child's health care experience. Recommendations for future research and practice implications, such as developing a stress vulnerability model specific to parenting children with CHD, clarifying the role between interdisciplinary team members regarding provision of psychosocial support to parents, and referring parents to specific community-based ongoing social support services, are presented.

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Section: Characteristics Of the Samplementioning

confidence: 96%

Section: Research Measuresmentioning

confidence: 99%

Psychological Distress Experienced by Parents of Young Children With Congenital Heart Defects: A Comprehensive Review of Literature

Soulvie

Desai

Parker

et al. 2012

Journal of Social Service Research

View full text Add to dashboard Cite

show abstract

“…Findings suggest that after a diagnosis of SCII, parents suffer increased psychological distress (Bruce, 2006;Hall et al, 2006;Pai et al, 2007), are at higher risk of developing symptoms of depression and anxiety (Doherty et al, 2009;van Oers et al, 2014), and may be at risk for persisting psychiatric morbidity (Bryant, Creamer, O'Donnell, Silove, & McFarlane, 2012).…”

Section: Introductionmentioning

confidence: 99%

Early Traumatic Stress Responses in Parents Following a Serious Illness in Their Child: A Systematic Review

Woolf

Muscara

Anderson

et al. 2015

J Clin Psychol Med Settings

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A systematic review of the literature investigating the early traumatic stress responses in parents of children diagnosed with a serious illness/injury. A literature review was conducted (September 2013) using Medline, PsycINFO, and CINAHL databases. Twenty-four studies related to parents of children hospitalized due to diagnosis of cancer, type 1 diabetes, meningococcal disease, trauma or serious injury, preterm birth and other serious illnesses requiring admission to intensive care were included. Parents were assessed for early traumatic stress symptoms within 3 months of their child's diagnosis/hospitalization. Prevalence rates of acute stress disorder in parents ranged from 12 to 63%. Prevalence of posttraumatic stress disorder ranged from 8 to 68%. Variability was related to methodological factors including differences in study design, timing of assessments, measurement tools, and scoring protocols. Psychosocial factors rather than medical factors predicted parent distress. This review integrates and compares early traumatic reactions in parents with children suffering a range of serious illnesses. Findings suggest a high prevalence of acute and posttraumatic stress symptoms in parents. Methodological inconsistencies made comparison of early traumatic stress prevalence rates difficult. Risk factors associated with traumatic stress symptoms were identified.

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“…Furthermore, few studies have examined psychological distress reported by mothers and fathers of infants admitted to the NICU for cardiac surgery, or investigated reasons why some parents report higher levels of distress than others,. Such studies have also included children from a wide range of age groups [30][31][32][33]. Elevated levels of psychological distress have been reported in one-third of mothers of infants', and almost one-fifth of fathers with congenital heart disease (CHD) in the first few months following the birth [32].…”

Section: Introductionmentioning

confidence: 99%

Stress and distress in parents of neonates admitted to the neonatal intensive care unit for cardiac surgery

Diffin

Spence

Naranian

et al. 2016

Early Human Development

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Predictors of psychological functioning in mothers and fathers of infants born with severe congenital heart disease

Cited by 75 publications

References 41 publications

Psychological Distress Experienced by Parents of Young Children With Congenital Heart Defects: A Comprehensive Review of Literature

Psychological Distress Experienced by Parents of Young Children With Congenital Heart Defects: A Comprehensive Review of Literature

Early Traumatic Stress Responses in Parents Following a Serious Illness in Their Child: A Systematic Review

Stress and distress in parents of neonates admitted to the neonatal intensive care unit for cardiac surgery

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