Predictors of parents' adherence to home exercise programs for children with developmental disabilities, regarding both exercise frequency and duration: a survey design

Medina-Mirapeix, Françesc; Lillo-Navarro, Carmen; Montilla-Herrador, Joaquina; Gacto-Sánchez, Mariano; Franco-Sierra, María Ángeles; Escolar-Reina, Pilar

doi:10.23736/s1973-9087.17.04464-1

Cited by 22 publications

(35 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The qualitative data suggest that the main difficulties were about parents’ feeling of confidence during exercises performance, a difficulty level which was perceived as too high, and organizational issues. These findings are in line with the existing literature which identified parents perceived self-efficacy, the children’s functional limitations, and parents’ available timetable to adherence and satisfaction with the similar programs ( Chappell and Williams, 2002 ; Rone-Adams et al, 2004 ; McConnell et al, 2015 ; Medina-Mirapeix et al, 2017 ). The present findings also highlight the need for the conducting therapist to be attuned and identify parents’ difficulties in activities performance.…”

Section: Discussionsupporting

confidence: 90%

Skype Supervised, Individualized, Home-Based Rehabilitation Programs for Individuals With Rett Syndrome and Their Families – Parental Satisfaction and Point of View

Lotan

Ippolito²,

Favetta

et al. 2021

Front. Psychol.

View full text Add to dashboard Cite

Individuals with Rett syndrome (RTT) experience impaired gross motor skills limiting their capacity. Therefore, they need support to participate in physical activities, and it is crucial to work with primary caregivers when developing appropriate strategies, thereby leading to an active lifestyle. There is limited evidence supporting the effectiveness of remotely supported physical activity interventions. This project aimed to evaluate the effects of a skype-based, telehealth-delivered physical activity program carried out by participants’ parents at home. This article will focus on parental points of view. A mixed-methods design evaluating parental satisfaction was conducted. Forty participants with a confirmed genetic diagnosis of RTT and their families were recruited. The intervention included a 12-week individualized daily physical activity program carried out by participants’ parents and bi-weekly supervised by expert therapists. Parents’ impressions and feelings related to the program implementation were collected throughout semi-structured interviews, and an ad hoc developed questionnaire and discussed. The current project results suggest that a remote physical rehabilitation program, supported fortnightly by video calls, represents an effective way of conducting a remote physical therapy intervention for this population and that it can be easily carried out at home by primary caregivers, promoting positive functional changes, without bringing feelings of frustration due to the required workload. The strategies that families have learned during the program to support the motor activities of their daughters represent an easily performed set of tools that they can maintain and use in everyday life even after the cessation of the program.

show abstract

Section: Discussionsupporting

confidence: 90%

Skype Supervised, Individualized, Home-Based Rehabilitation Programs for Individuals With Rett Syndrome and Their Families – Parental Satisfaction and Point of View

Lotan

Ippolito²,

Favetta

et al. 2021

Front. Psychol.

View full text Add to dashboard Cite

show abstract

“…Therefore, the program’s effectiveness relied partially on the mothers’ understanding and compliance [ 22 , 31 , 58 ]. The present study followed strategies known to be helpful to increase parents’ compliance and adherence, such as including the exercises into daily routines, providing written instructions, and demonstrating the activities with the child [ 59 , 60 , 61 , 62 ]. Nevertheless, mothers showed poor compliance with the home program.…”

Section: Discussionmentioning

confidence: 99%

“…The authors reported that paternal mental health was the most common reason for non-attendance [ 63 ]. Another research suggested that parental adherence depends on factors such as self-efficacy, perception of barriers and ability to perform the program [ 59 ]. Those aspects were not considered during the development of the present project, and it might have influenced the results related to parental compliance and, consequently, the effectiveness of the early physiotherapy intervention.…”

Section: Discussionmentioning

confidence: 99%

Early Physiotherapy Intervention Program for Preterm Infants and Parents: A Randomized, Single-Blind Clinical Trial

et al. 2022

View full text Add to dashboard Cite

Background: The early developmental interventions might be designed with a preventative approach to improving the development of at-risk preterm infants. The present study aimed to evaluate the effectiveness of an early physiotherapy intervention on preterm infants’ motor and global development, and on parents’ stress index. Methods: 48 infants were enrolled and randomized into two groups. Infants allocated to the intervention group received an early physiotherapy intervention, based on parental education sessions and tactile and kinesthetic stimulation during the NICU period, as well as a home-based activity program. The intervention commenced after 32 weeks post-menstrual age and ended at 2 months corrected age. Infants allocated to the control group received the usual care based on the NIDCAP-care. Results: No differences were found between groups on the Alberta Infant Motor Scale at 2- or 8-months corrected age. Infants in the intervention group showed more optimal fine motor, problem-solving, personal-social, and communication development at 1 month corrected age. Conclusions: The results showed no effect on the early physiotherapy intervention. Results might be related to the dose or intensity of the intervention, but also to the poor parental compliance. ClinicalTrials.gov NCT03313427.

show abstract

“…Expecting parents to provide training on a daily basis leads to the need for a quick and positively phrased response of the therapist, especially when parents struggle with providing the training. Previously it has been shown that program adherence increases by twofold when a therapist frequently evaluates caregiver skills and possible difficulties during the training program [ 20 ]. A main challenge parents experienced as a training provider was being creative to come up with various play activities to enhance motivation and enjoyment, especially during the last weeks of the training block.…”

Section: Discussionmentioning

confidence: 99%

“…Therefore, as suggested by others [ 22 ], an in-depth needs inventory prior to the start of the intervention is imperative to identify these possible competing priorities. To fit the program into busy family lives, the training schedule should be individualized, and as also reported previously [ 20 , 23 ]. When the perceived parental load was high, for example on working days, it was difficult to provide an enjoyable training.…”

Section: Discussionmentioning

confidence: 99%

Parents’ experiences with a home-based upper limb training program using a video coaching approach for infants and toddlers with unilateral cerebral palsy: a qualitative interview study

et al. 2022

View full text Add to dashboard Cite

Background Although early home-based upper limb training programs are promising, in-depth understanding of parents’ experiences with these programs is still limited. We developed an early home-based upper limb training program for infants and toddlers (8–36 months) with or at risk of unilateral cerebral palsy using video coaching for parents. The aim of this qualitative study was to evaluate parents’ experiences with the home-based training program using a video coaching approach in order to optimize implementation strategies. Methods We held semi-structured interviews with parents of 13 children with unilateral cerebral palsy, who participated in our program in the period from 2014 – 2017. On average, parents had delivered two training periods of the program at the time of the interviews. Interviews were analyzed using inductive thematic content analysis. Results We identified three overarching interacting themes that shaped the experiences of parents with the program: 1) Parental learning comprising the subthemes parents’ training competencies and the facilitative and reinforcing role of video coaching, 2) Parental load comprising the subthemes flexibility of the program, supportive network, competing demands, and child’s mood and functional capacities, and 3) Parental perseverance comprising the subthemes beliefs and expectancies and seeing child’s functional improvements. Conclusions For successful implementation of an early home-based upper limb training program using video coaching, support in delivering home-training from a therapist or from others within parents’ social network, is needed to relieve parental load. Seeing functional improvements of their child on the videos increased parents’ motivation to continue with the training. Positively phrased feedback from an occupational therapist stimulated parents’ perseverance and training competency.

show abstract

Predictors of parents' adherence to home exercise programs for children with developmental disabilities, regarding both exercise frequency and duration: a survey design

Cited by 22 publications

References 0 publications

Skype Supervised, Individualized, Home-Based Rehabilitation Programs for Individuals With Rett Syndrome and Their Families – Parental Satisfaction and Point of View

Skype Supervised, Individualized, Home-Based Rehabilitation Programs for Individuals With Rett Syndrome and Their Families – Parental Satisfaction and Point of View

Early Physiotherapy Intervention Program for Preterm Infants and Parents: A Randomized, Single-Blind Clinical Trial

Parents’ experiences with a home-based upper limb training program using a video coaching approach for infants and toddlers with unilateral cerebral palsy: a qualitative interview study

Contact Info

Product

Resources

About