Abstract:Although desire for help with pain and distress increased with respective symptom intensity, many patients indicated they did not want help with these symptoms. Patient reluctance to seek help may constitute a barrier to realising the full potential of screening programs in reducing pain and distress.
“…Because in clinical (non‐research) settings, a patient is referred to definite treatment, the weighted uptake rate of 50.01% for those offered a definite treatment is more likely to be representative of typical clinical care. Even this weighted uptake rate is higher than seen in surveys, which report that between 14 and 41% of cancer patients show a definite interest in psychological support possibly suggesting that the higher uptake rates in the present study are inflated by an altruistic desire to participate in the research. Further, uptake was lower in groups that were selected for higher distress.…”
Objective: Although cancer care guidelines recommend screening for distress among cancer patients and offering psychological support when indicated, many patients decline offers of such support. This study aimed to quantify uptake and adherence to psychological support and to identify predictors of each.Methods: Searches were conducted in Embase, Medline, PsychInfo and Scopus to identify studies reporting uptake or adherence rates for individual psychological interventions targeting distress, anxiety or depression for cancer patients or survivors.Results: Across the 53 included studies reporting uptake and/or adherence rates for 12 323 cancer patients, the uptake and adherence rates were 60.1% and 90.4%, respectively. Patients screened and identified as distressed were less likely to accept intervention than unselected patients (50.3% compared with 66.3%, Q(1) = 4.66, P = 0.031). Uptake of therapy was higher for interventions delivered by telephone rather than face-to-face (71.2% compared with 53.8%, Q(1) = 4.91, P = 0.027) and when therapy was offered prior to medical treatment compared with later (72.9% compared with 56.8%, Q (1) = 5.60, P = 0.018). Patients were more likely to accept intervention from nurses than other allied health professionals (68.3% compared with 50.5%, Q(1) = 5.76, P = 0.016).Conclusions: Patients appeared more receptive to interventions offered near diagnosis, over the telephone and by nurses. Although this suggests higher acceptability of such interventions, evidence of their greater efficacy is lacking, and this merits further investigation. Research is needed to understand barriers to acceptance of psychological support, particularly because uptake rates were lower for distressed patients.
“…Because in clinical (non‐research) settings, a patient is referred to definite treatment, the weighted uptake rate of 50.01% for those offered a definite treatment is more likely to be representative of typical clinical care. Even this weighted uptake rate is higher than seen in surveys, which report that between 14 and 41% of cancer patients show a definite interest in psychological support possibly suggesting that the higher uptake rates in the present study are inflated by an altruistic desire to participate in the research. Further, uptake was lower in groups that were selected for higher distress.…”
Objective: Although cancer care guidelines recommend screening for distress among cancer patients and offering psychological support when indicated, many patients decline offers of such support. This study aimed to quantify uptake and adherence to psychological support and to identify predictors of each.Methods: Searches were conducted in Embase, Medline, PsychInfo and Scopus to identify studies reporting uptake or adherence rates for individual psychological interventions targeting distress, anxiety or depression for cancer patients or survivors.Results: Across the 53 included studies reporting uptake and/or adherence rates for 12 323 cancer patients, the uptake and adherence rates were 60.1% and 90.4%, respectively. Patients screened and identified as distressed were less likely to accept intervention than unselected patients (50.3% compared with 66.3%, Q(1) = 4.66, P = 0.031). Uptake of therapy was higher for interventions delivered by telephone rather than face-to-face (71.2% compared with 53.8%, Q(1) = 4.91, P = 0.027) and when therapy was offered prior to medical treatment compared with later (72.9% compared with 56.8%, Q (1) = 5.60, P = 0.018). Patients were more likely to accept intervention from nurses than other allied health professionals (68.3% compared with 50.5%, Q(1) = 5.76, P = 0.016).Conclusions: Patients appeared more receptive to interventions offered near diagnosis, over the telephone and by nurses. Although this suggests higher acceptability of such interventions, evidence of their greater efficacy is lacking, and this merits further investigation. Research is needed to understand barriers to acceptance of psychological support, particularly because uptake rates were lower for distressed patients.
“…It is encouraging that people did not indicate a nihilistic attitude to help for distress, in that few said they ‘didn't think anything could help’. Although stigma is a known barrier in seeking mental health services more generally, it appears to be less influential in cancer . However, we note that the item representing stigma in this study may not adequately capture this concept and that stigma may be subsumed in the desire to self‐manage.…”
Section: Discussionmentioning
confidence: 73%
“…The relationship between receiving help and younger age and female gender is consistent with previous work. We have previously summarised findings regarding gender differences in desire for help with distress among oncology patients . We found about half the studies reported an association which consistently indicated higher desire for help among women.…”
Two common patient barriers to help with distress are a preference for self-help and a belief that distress is not sufficiently severe to warrant intervention. These beliefs were held by a sizeable proportion of individuals who reported very high levels of distress. Qualitative research and subsequent interventions for overcoming these barriers are required to obtain the most benefit from distress screening programs.
“…Clover et al. found that number to be as high as 71 % . Recently, a similarly high percentage of patients who declined such a program was reported for both outpatients and inpatients at a German SCC .…”
The certification of institutions as SCCs has led to the implementation of personnel, structural, and content requirements relating to psycho-oncological care. The majority of SCCs surveyed reported to be satisfied with the quality of care thus achieved.
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