Predictors of Burden and Depression Among Caregivers of relapsing-remitting Ms Patients in Spain: Ms Feeling Study

Meca-Lallana, José; Mendibe, Mar; Hernández-Clares, R.; Caminero, Ana B.; Mallada-Frechín, J; Dávila-González, Pablo; Garcés-Redondo, Moisés; Gómez, Montserrat; Millán-Pascual, Jorge; Soriano-Hernández, Gerardo; Amigo-Jorrín, María del Campo

doi:10.2217/nmt-2016-0014

Cited by 9 publications

(10 citation statements)

References 32 publications

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“…It has shown sufficient properties to assess the perceived general state of the family’s support at a given time [28], showing acceptable internal consistency (Cronbach α = 0.84) when tested in the Spanish population [29]. The questionnaire was developed in 1978 by Smilkstein et al [28], and is composed of 5 Likert-type items with a 3-point scale from 0 to 2 and is still in use in Spain in various contexts [30,31,32]. The scores were categorized according to the authors’ recommendations: 7–10 points, normal support; 3–6 points, slightly dysfunctional; and 0–2 points, severely dysfunctional.…”

Section: Methodsmentioning

confidence: 99%

Psychological Distress, Family Support and Employment Status in First-Year University Students in Spain

Torre

Fernández‐Villa

Molina

et al. 2019

IJERPH

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Mental disorders are consistently and closely related to psychological distress. At the start of the university period, the relationship between a student’s psychological distress, family support, and employment status is not well-known. The aims of this study were: To determine the prevalence of psychological distress in first-year university students and to analyze its relationship with family support and the student’s employment status. Data from 4166 first-year university students from nine universities across Spain were considered. The prevalence of psychological distress was obtained using the GHQ-12, a valid and reliable screening tool to detect poor mental health. To analyze the relationship between psychological distress, family support, and employment status, logistic regression models were fitted. Regarding the prevalence found, 46.9% of men and 54.2% of women had psychological distress. In both genders, psychological distress levels increased as family support decreased. Among women, psychological distress was associated with their employment status. The prevalence of psychological distress among first-year university students in Spain is high. In addition, family support, and employment status for women, could be factors to take into account when developing psychological distress prevention strategies at the beginning of the university period.

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Section: Methodsmentioning

confidence: 99%

Psychological Distress, Family Support and Employment Status in First-Year University Students in Spain

Torre

Fernández‐Villa

Molina

et al. 2019

IJERPH

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“…Thirty percent of pwMS usually require caregiving due to disability and >80% of this care is provided by informal caregivers, mainly spouses or other relatives 5–11. Fatigue and impaired mobility are the MS symptoms most often perceived as stressful by caregivers, followed by bladder dysfunction, cognitive impairment, and depression 10–13. More hours per week spent providing assistance and greater restriction on the caregivers’ ability to perform daily activities are additional predictors of burden 9.…”

Section: Introductionmentioning

confidence: 99%

Measuring burden in caregivers of people with multiple sclerosis: psychometric properties of the CSI questionnaire

García-Domínguez¹,

Martínez-Ginés²,

Carmona³

et al. 2019

PPA

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BackgroundUnderstanding caregiver strain may be crucial to determine which interventions are most needed to mitigate the negative impact of caring for people with multiple sclerosis (MS). The Caregiver Strain Index (CSI) is a brief self-assessment tool for measuring the caregivers’ perceived level of burden. Limited information is available on the psychometric performance of the CSI in MS.ObjectiveThe objective of this study was to assess the factor structure and construct validity of the CSI in MS.MethodsA multicenter, cross-sectional study in adults with relapsing-remitting and primary-progressive MS (McDonald 2010 criteria) was conducted. A non-parametric item response theory (IRT) procedure, Mokken analysis, was conducted to assess the dimensional structure of the CSI. A parametric IRT model for dichotomous responses, Rasch model, was conducted to assess item characteristics. Discriminative validity was assessed comparing the distribution of its overall score between people with mild and moderate-severe disability according to the Expanded Disability Status Scale.ResultsA total of 72 MS caregivers were studied. The prevalence of a high level of strain was 23.6% (n=17). Internal reliability was high (Cronbach’s alpha =0.91). According to Mokken analysis, CSI represented a unidimensional construct of caregiver burden although two of the total 13 items (#1 and #13) could not be assigned to any factor by an automatic item selection procedure. Without these items, the scalability moved from a weak (Hi =0.37) to a medium scale (Hi =0.44). However, the item characteristic curve of the Rasch model showed a range of appropriate difficulty and the item and person parameters showed good fit (Andersen likelihood ratio test =18.40, df =11; P-value =0.07; all item values for the infit). The CSI score showed a good discriminative validity between the levels of disability of the care recipient.ConclusionThe CSI questionnaire shows appropriate psychometric characteristics being a useful instrument to assess different aspects of burden in MS caregivers in clinical practice.

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“…Se estima que la mayor parte de los cuidadores son informales y que en la mitad de los casos esta asistencia la proporcionan familiares que conviven con el paciente [41,42,[45][46][47] . Se ha detectado que el 20,6% de los cuidadores informales presenta síntomas de depresión, el 10,6% percibe su familia como disfuncional y el 9,4% recibe un escaso apoyo social [48] . También se ha observado que el progresivo aumento del déficit cognitivo de los pacientes provoca una mayor incidencia de síntomas depresivos en estos cuidadores, lo que contribuye a un mayor deterioro del entorno familiar [49] .…”

Section: Informe Final [18]unclassified

“…• Se mejoraría el estado emocional en aquellos cuidadores informales de pacientes con EMRR moderada-grave que tengan esta dimensión alterada [48] .…”

Section: Tiempo Personalunclassified

SROI-EM. Impacto clínico, asistencial, económico y social del abordaje ideal de la Esclerosis Múltiple en comparación con el abordaje actual

Merino¹,

Jiménez²,

Gómez-García³

et al. 2018

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Retorno social de la inversión _____________________________________ 7.2.1 Inicios del SROI ________________________________________________________ 7.2.2 Metodología básica del SROI _____________________________________________ 7.3 Otros aspectos metodológicos _________________________________________ 8 Abordaje ideal de la Esclerosis Múltiple _________________________________ 9 Retorno Social de la Inversión del abordaje ideal __________________________ 9.1 Grupos de interés ___________________________________________________ 9.2 Marco general de la inversión y el retorno _______________________________ 9.3 Propuestas del área de Diagnóstico _____________________________________ 9.3.1 Propuesta 1. Formación en EM y sus síntomas tanto a neurología no especialista en EM como a profesionales sanitarios de otras áreas vinculadas a los pacientes con EM. _______ 9.3.2 Propuesta 2. Coordinación entre medicina de atención primaria y neurología, a través de vías de contacto directo. ____________________________________________________ 9.3.3 Propuesta 3. Disminución de las listas de espera en la especialidad de neurología. __ 9.3.4 Propuesta 4. Acceso rápido a la prueba de resonancia magnética por imagen. _____ 9.3.5 Propuesta 5. Visita de resultados de pruebas diagnósticas en máximo 30 días. _____ [Impacto clínico, asistencial, económico y social del abordaje ideal de la Esclerosis Múltiple en comparación con el abordaje actual-Proyecto SROI-EM] INFORME FINAL [6] 9.3.6 Propuesta 6. Visita precoz con neurología tras el diagnóstico. ___________________ 9.3.7 Resumen de la inversión y del retorno en el área de Diagnóstico. ________________ 9.4 Propuestas del área de EM remitente-recidivante _________________________ 9.4.1 Propuesta 7. Coordinación entre medicina de atención primaria y neurología, a través de vías de contacto directo. ____________________________________________________ 9.4.2 Propuesta 8. Protocolo sobre el seguimiento de los pacientes acorde a los criterios de gravedad de la enfermedad. ___________________________________________________ 9.4.3 Propuesta 9. Realización de resonancia magnética una vez al año como mínimo. ___ 9.4.4 Propuesta 10. Acceso universal a las consultas monográficas y/o unidades multidisciplinares de EM en todo el Sistema Nacional de Salud. _______________________ 9.4.5 Propuesta 11. Acceso a tratamiento modificador de la enfermedad para los pacientes con EMRR no tratados en la actualidad. __________________________________________ 9.4.6 Propuesta 12. Educación sobre hábitos saludables a pacientes a través de enfermería hospitalaria especialista en EM. _________________________________________________ 9.4.7 Resumen de la inversión y del retorno en el área de EMRR. ____________________ 9.5 Propuestas del área de EM formas progresivas ____________________________ 9.5.1 Propuesta 13. Coordinación entre medicina de atención primaria y otros especialistas implicados en el seguimiento de la enfermedad, a través de vías de contacto directo. _____ 9.5.2 Propuesta 14. Atención y tratamiento de...

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Predictors of Burden and Depression Among Caregivers of relapsing-remitting Ms Patients in Spain: Ms Feeling Study

Abstract: The factors reported here could help clinicians to identify caregiver groups particularly at risk of burden and depression for timely intervention.

Cited by 9 publications

References 32 publications

Psychological Distress, Family Support and Employment Status in First-Year University Students in Spain

Psychological Distress, Family Support and Employment Status in First-Year University Students in Spain

Measuring burden in caregivers of people with multiple sclerosis: psychometric properties of the CSI questionnaire

SROI-EM. Impacto clínico, asistencial, económico y social del abordaje ideal de la Esclerosis Múltiple en comparación con el abordaje actual

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