Predicting psychological distress of informal carers of individuals with major depression or bipolar disorder

Wasley, David; Eden, Samantha

doi:10.1111/inm.12329

Cited by 5 publications

(4 citation statements)

References 62 publications

(106 reference statements)

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“… 4 These caregivers seem to have an emotional overinvolvement similar to that of family members of patients with schizophrenia, 5 , 6 reporting high levels of subjective and objective burden, restrictions in social life, a high risk to develop depressive or anxiety symptoms, financial and working difficulties, general global health problems, and a reduced quality of life. 7 – 12 Moreover, caregivers often report feelings of powerlessness, hopelessness, and inability to change the situation. 13 , 14 …”

Section: Introductionmentioning

confidence: 99%

The effects of psychoeducational family intervention on coping strategies of relatives of patients with bipolar I disorder: results from a controlled, real-world, multicentric study

Sampogna¹,

Luciano²,

Vecchio³

et al. 2018

NDT

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BackgroundPsychoeducational family intervention (PFI) has been proven to be effective in improving the levels of family burden and patients’ personal functioning in schizophrenia and bipolar disorders (BDs). Less is known about the impact of PFI on relatives’ coping strategies in BD.MethodsA multicenter, controlled, outpatient trial funded by the Italian Ministry of Health and coordinated by the Department of Psychiatry of the University of Campania “Luigi Vanvitelli” has been conducted in patients with bipolar I disorder (BD-I) and their key relatives consecutively recruited in 11 randomly selected Italian community mental health centers. We aim to test the hypothesis that PFI improves problem-oriented coping strategies in relatives of BD-I patients compared to the Treatment As Usual (TAU) group.ResultsThe final sample was constituted of 123 patients and 139 relatives. At baseline assessment (T0), the vast majority of relatives already adopted problem-oriented coping strategies more frequently than the emotion-focused ones. At the end of the intervention, relatives receiving PFI reported a higher endorsement of adaptive coping strategies, such as “maintenance of social interests” (odds ratio [OR]=0.309, CI=0.04–0.57; p=0.023), “positive communication with the patient” (OR=0.295, CI=0.13–0.46; p=0.001), and “searching for information” (OR=0.443, CI=0.12–0.76; p=0.007), compared to TAU relatives, after controlling for several confounders. As regards the emotion-focused coping strategies, relatives receiving the experimental intervention less frequently reported to adopt “resignation” (OR=−0.380, CI=−0.68 to −0.08; p=0.014) and “coercion” (OR=−0.268, CI=−0.46 to −0.08; p=0.006) strategies, compared to TAU relatives.ConclusionPFI is effective in improving the adaptive coping strategies of relatives of BD-I patients, but further studies are needed for evaluating the long-term benefits of this intervention.

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Section: Introductionmentioning

confidence: 99%

The effects of psychoeducational family intervention on coping strategies of relatives of patients with bipolar I disorder: results from a controlled, real-world, multicentric study

Sampogna¹,

Luciano²,

Vecchio³

et al. 2018

NDT

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“…Stress process models explain carer outcomes in response to caregiving stress [ 27 ] and propose that social support and coping strategies are important moderators of IC adjustment across carer populations [ 28 – 33 ]. There is evidence of applicability of the model in ICs of people with personality disorders [ 34 ].…”

Section: Introductionmentioning

confidence: 99%

“… 32 , 36 ). Maladaptive coping strategies predicted psychological distress in ICs of people with eating disorders [ 37 ] and affective disorders [ 33 ]. Avoidance coping strategies correlated with burden in ICs of people with schizophrenia and bipolar affective disorder [ 38 ].…”

Section: Introductionmentioning

confidence: 99%

The relationship between social support, coping strategies and psychological distress and positive mental well-being in carers of people with borderline personality disorder

Hayes,

Dempsey,

Kells

et al. 2023

bord personal disord emot dysregul

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Background Informal carers of people with BPD experience high levels of burden and psychological distress relative to other populations. There is a scarcity of research evidencing the influence of modifiable factors on carer outcomes to inform interventions. This study aimed to investigate the relationship between social support, coping strategies and psychological distress and positive mental well-being in this carer population. Methods In this cross-sectional study, 1207 carers completed the McLean Screening Instrument for BPD-Carer Version, the Brief COPE, the Multidimensional Scale of Perceived Social Support, the Kessler Psychological Distress scale, the WHO-5 Well-being Index, and the Coronavirus Anxiety Scale. Data for 863 participants who met the inclusion criteria were analysed. Results Carers reported low positive mental well-being and high psychological distress. Perceived social support and several coping strategies were significant unique predictors of psychological distress and positive mental well-being. Perceived social support and positive reframing were the strongest predictors of higher positive mental well-being and lower psychological distress. Self-blame, behavioural disengagement and substance use were the strongest predictors of adverse outcomes. Conclusions The findings evidence modifiable factors that may be used to improve informal carer outcomes and indicate that carer interventions may be improved by focusing on reducing the use of self-blame, behavioural disengagement and substance use, and development of quality social support and skills to positively reframe caregiving situations.

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“…But what is evidenced in this study, and is shown in Table 4, is a long list of participation challenges that have also been identified in the literature (see Chapter 2 herein and, Storm & Edwards, 2012). These challenges identify that implementing participation policy is 'easier said than done' and include competing priorities, managing mental illness risk and safety, high workloads, high demand for services (DoH, 2013); the non-linear path of mental health recovery (Anthony, 1993;Slade, 2009); the capacity to participate; human resource challenges including, managing the consumer workforce in recovery, carers experiencing fluctuating degrees of carer stress (Wingrove & Rickwood, 2019) and carer burden (Wasley & Eden, 2018); and a person's right not to participate. Given these individual, social, structural and systemic challenges, what becomes evident in this study is that a tension exists between participation theory and practice.…”

Section: Participation Practicesmentioning

confidence: 99%

Beyond policy: consumer and carer participation through the lens of public sector mental health managers

Hunt¹

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Contemporary literature on participation indicates that Australian Federal and State governments and mental health consumers and carers, expect mental health services to improve participation practices. This study sought to fill a research gap by exploring the perspectives of Queensland public sector executive level mental health managers with responsibility for implementing national participation standards.Drawing on theoretical ideas of participation, recovery and social citizenship, the study aim and objective was to identify and analyse the knowledge, attitudes, and practices of mental health managers in relation to consumer and carer participation. A qualitative research design using an interpretative approach was applied. The researcher adopted an insider/outsider/in-betweener researcher position based on her lived experience as a carer, a social work mental health advocate and a manager in a public mental health service. Twenty-three executive level mental health managers across nine public mental health services were interviewed. The study findings showed that numerous participation challenges exist for mental health managers including, working within a neo-liberal context of cost efficiency and effectiveness, competing work priorities, staff negative attitudes towards participation, tensions among stakeholders with different ideas about participation and, managing a growing consumer and carer workforce. Despite these challenges, managers in this study were committed to participation. Managers considered that growth in the consumer and carer workforce was evidence of national participation standards being met but that participation is a complex space that is 'easier said than done'. Findings highlighted the need to strengthen participation through building human connections and relationships among consumers, carers, and mental health professionals and, by fostering mutual respect for lived experience and professional expertise. Findings also highlighted the need to increase support for the consumer and carer workforce and, that while the emphasis has been on growing consumer participation, there is a need to foster and grow family and carer participation.

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Predicting psychological distress of informal carers of individuals with major depression or bipolar disorder

Cited by 5 publications

References 62 publications

The effects of psychoeducational family intervention on coping strategies of relatives of patients with bipolar I disorder: results from a controlled, real-world, multicentric study

The effects of psychoeducational family intervention on coping strategies of relatives of patients with bipolar I disorder: results from a controlled, real-world, multicentric study

The relationship between social support, coping strategies and psychological distress and positive mental well-being in carers of people with borderline personality disorder

Beyond policy: consumer and carer participation through the lens of public sector mental health managers

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