Power Up: Patient and public involvement in developing a shared decision-making app for mental health

Edridge, Chloe; Edbrooke‐Childs, Julian; Martin, Kate; Delane, Louise; Averill, Phoebe; Feltham, Amy; Rees, Jessica; Jeremy, Grace; Chapman, Louise; Craven, Michael P.; Wolpert, Miranda

doi:10.21853/jhd.2018.40

Cited by 8 publications

(8 citation statements)

References 10 publications

(15 reference statements)

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“…We aimed to recruit 10 to 12 young people as we expected this would be sufficient for saturation, which was achieved. We report on these interviews in this study and discuss the views of clinicians, parents and carers on the development of Power Up elsewhere [46] and we have reported in detail on teachers’ views and experiences of the implementation of another digital intervention [50].…”

Section: Resultsmentioning

confidence: 99%

“…Power Up was designed to be a transdiagnostic and transtherapeutic intervention. To ensure it was accessible to young people, Power Up was co-designed with young people, carers, and clinicians through patient and public involvement workshops and interviews (see [46] for full details on the development of Power Up). A key topic of the codesign sessions was to ensure Power Up was simple and easy to use requiring minimal cognitive load so it could be used by a range of young people with different language skills, literacy levels, and experience of current distress.…”

Section: Methodsmentioning

confidence: 99%

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A Feasibility Trial of Power Up: Smartphone App to Support Patient Activation and Shared Decision Making for Mental Health in Young People

Edbrooke‐Childs¹,

Edridge²,

Averill³

et al. 2019

JMIR Mhealth Uhealth

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Background Digital tools have the potential to support patient activation and shared decision making in the face of increasing levels of mental health problems in young people. There is a need for feasibility trials of digital interventions to determine the usage and acceptability of interventions. In addition, there is a need to determine the ability to recruit and retain research participants to plan rigorous effectiveness trials and, therefore, develop evidence-based recommendations for practice. Objective This study aimed to determine the feasibility of undertaking a cluster randomized controlled trial to test the effectiveness of a smartphone app, Power Up, co-designed with young people to support patient activation and shared decision making for mental health. Methods Overall, 270 young people were screened for participation and 52.5% (142/270) were recruited and completed baseline measures across 8 specialist child mental health services (n=62, mean age 14.66 (SD 1.99) year; 52% [32/62] female) and 2 mainstream secondary schools (n=80; mean age 16.88 [SD 0.68] years; 46% [37/80] female). Young people received Power Up in addition to management as usual or received management as usual only. Posttrial interviews were conducted with 11 young people from the intervention arms (specialist services n=6; schools n=5). Results Usage data showed that there were an estimated 50 (out of 64) users of Power Up in the intervention arms. Findings from the interviews indicated that young people found Power Up to be acceptable. Young people reported (1) their motivation for use of Power Up, (2) the impact of use, and (3) barriers to use. Out of the 142 recruited participants, 45.0% (64/142) completed follow-up measures, and the approaches to increase retention agreed by the steering group are discussed. Conclusions The findings of this study indicate that the app is acceptable, and it is feasible to examine the effectiveness of Power Up in a prospective cluster randomized controlled trial. Trial Registration ClinicalTrials.gov NCT02552797; https://clinicaltrials.gov/ct2/show/NCT02552797 (Archived by WebCite at http://www.webcitation.org/6td6MINP0)

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Section: Resultsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

A Feasibility Trial of Power Up: Smartphone App to Support Patient Activation and Shared Decision Making for Mental Health in Young People

Edbrooke‐Childs¹,

Edridge²,

Averill³

et al. 2019

JMIR Mhealth Uhealth

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“…The PUfP app is an amended version of the original Power Up app that supports and promotes SDM in CAMH settings. The original Power Up is a mobile app used by YP to empower and encourage them to take an active role in the decision-making process [52,53].…”

Section: Methodsmentioning

confidence: 99%

A Mobile App to Support Parents Making Child Mental Health Decisions: Protocol for a Feasibility Cluster Randomized Controlled Trial

Liverpool¹,

Webber²,

Matthews³

et al. 2019

JMIR Res Protoc

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Background Shared decision making (SDM) is recognized as a person-centered approach to improving health care quality and outcomes. Few digital interventions to improve SDM have been tested in child and adolescent mental health (CAMH) settings. One such intervention is Power Up, a mobile phone app for young people (YP), which has shown some evidence of promise that YP who received Power Up reported greater levels of SDM. However, even though parents play a critical role in CAMH care and treatment, they often feel excluded from services. Objective This protocol is for a pilot trial to determine the feasibility of a large-scale randomized trial to develop and evaluate a Web app called Power Up for Parents (PUfP) to support parents and promote involvement in CAMH decisions. Methods A 2-stage process, consisting of the development stage and pilot-testing stage of the initial PUfP prototype, will be conducted. At the development stage, a qualitative study with parents and clinicians will be conducted. The interviews will aim to capture the experience of making CAMH decisions, preferences for involvement in SDM, and determine situations within which PUfP can be useful. At the pilot-testing stage, up to 90 parents and their clinicians will be invited to participate in the testing of the prototype. Parents will be randomly allocated to receive the intervention or be part of the control group. This study design will allow us to assess the acceptability and usefulness of PUfP in addition to examining the feasibility of a prospective randomized trial. Clinicians’ perceptions of the prototype and how it has influenced parents’ involvement in SDM will also be examined. Results Recruitment began in January 2019 and is scheduled to last for 10 months. Interviews and baseline data collection are currently in progress. To date, 11 CAMH sites have been recruited to take part in the study. It is anticipated that data collection will be completed by October 2019. Conclusions The lack of parents’ involvement in CAMH care and treatment can lead to higher rates of dropout from care and lower adherence to therapeutic interventions. There are significant benefits to be gained globally if digital SDM interventions are adopted by parents and shown to be successful in CAMH settings. Trial Registration ISRCTN Registry ISRCTN39238984; http://www.isrctn.com/ISRCTN39238984 International Registered Report Identifier (IRRID) DERR1-10.2196/14571

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“…Craven et al ,9 as part of a study exploring representations of well-being in adult mental health, reviewed the literature to highlight the range of pictorial scales, symbolic, metaphorical and other sensorial representations of well-being (eg, gestural, textural/tactile or thermal) either in use or suggested by researchers or practitioners. The review also cited coproduction with young people, such as the set of 12 emojis selected and deployed in the Power Up app study 10. Furthermore, the review identified a recent mental health app, MentalSnapp, using video and highlighted the increased availability of tools to create personalised animations in social media such as BitMoji .…”

Section: Introductionmentioning

confidence: 99%

Potential of using visual imagery to revolutionise measurement of emotional health

Herring¹,

Craven

Mughal

et al. 2020

Arch Dis Child

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Appropriate measurement of emotional health by all those working with children and young people is an increasing focus for professional practice. Most of the tools used for assessment or self-assessment of emotional health were designed in the mid-20th century using language and technology derived from pen and paper written texts. However, are they fit for purpose in an age of pervasive computing with increasingly rich audiovisual media devices being in the hands of young people? This thought piece explores how the increased use of visual imagery, especially forms that can be viewed or created on digital devices, might provide a way forward for more effective measuring of emotional health, including smiley faces, other emojis and other potential forms of visual imagery. The authors bring together perspectives from healthcare, counselling, youth advocacy, academic research, primary care and school-based mental health support to explore these issues.

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Power Up: Patient and public involvement in developing a shared decision-making app for mental health

Abstract: Up: Patient and public involvement in developing a shared decision-making app for mental health.

Cited by 8 publications

References 10 publications

A Feasibility Trial of Power Up: Smartphone App to Support Patient Activation and Shared Decision Making for Mental Health in Young People

A Feasibility Trial of Power Up: Smartphone App to Support Patient Activation and Shared Decision Making for Mental Health in Young People

A Mobile App to Support Parents Making Child Mental Health Decisions: Protocol for a Feasibility Cluster Randomized Controlled Trial

Potential of using visual imagery to revolutionise measurement of emotional health

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