Posttraumatic stress disorder in pediatric patients with implantable cardioverter-defibrillators and their parents

Schneider, Lauren M.; Wong, Jessie J.; Adams, Rebecca N.; Bates, Brady; Chen, Spenser; Ceresnak, Scott R.; Danovsky, Michael B.; Hanisch, Debra; Motonaga, Kara S.; Restrepo, Miguel; Shaw, Richard J.; Sears, Samuel F.; Trela, Anthony; Dubin, Anne M.; Hood, Korey K.

doi:10.1016/j.hrthm.2022.06.025

Cited by 10 publications

(4 citation statements)

References 29 publications

(40 reference statements)

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“…2,17,18 Additional research has shown that a significant portion of pediatric patients with CIEDs meet criteria for posttraumatic stress disorder, even when the device was placed for primary prevention. 19 Physical activity has been shown to be decreased in the pediatric CIED population as well, in part due to concerns about inappropriate shocks as well as damage to their device. [20][21][22] Limited data has also shown an overall lower PA level of CIED patients compared to healthy controls.…”

Section: Discussionmentioning

confidence: 99%

“…Prior research has shown that pediatric and adult patients with pacemakers and ICDs have a lower QoL than the general population, with some evidence showing a strong association with depression as well as ICD high‐voltage discharge (shock)‐related anxiety 2,17,18 . Additional research has shown that a significant portion of pediatric patients with CIEDs meet criteria for posttraumatic stress disorder, even when the device was placed for primary prevention 19 . Physical activity has been shown to be decreased in the pediatric CIED population as well, in part due to concerns about inappropriate shocks as well as damage to their device 20–22 .…”

Section: Discussionmentioning

confidence: 99%

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Quality of life of children and young adults with and without cardiovascular implantable electronic devices during the COVID‐19 pandemic

Needleman

Zhu

Kean

2023

Pacing Clinical Electrophis

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Background: Children with cardiovascular implantable electronic devices (CIEDs) have a lower quality of life (QoL) compared to the general pediatric population. The combined effect of COVID-19 and CIEDs on the QoL and physical activity (PA) both within and between each population is unknown.Methods: Individuals 8-25-year-old with and without CIED's were recruited to complete a phone survey. Data collection included demographics, the Pediatric Quality of Life Inventory (PedsQL), and the (PAQ). PedsQL and PAQ scores range from 0-100 and 1-5, respectively, with higher scores indicating a higher QoL and PA.Results: Of the 190 individuals contacted, 148 participated (CIED n = 76, non-CIED n = 72), for an 81% response rate. Participants with and without CIEDs were similar in age (15.5 vs. 16 years, p = .57), gender (male = 57% vs. 42%, p = .07), and self-identified race (white = 79% vs. 81%, p = .44). CIED participants had a lower QoL (70.8 vs. 83.3, p < .001). Lower total scores were noted in CIED participants with structural heart disease compared to those without (71.6 vs. 83.6, p = .035) and those with a history of non-CIED heart or chest surgery compared to those without (71.3 vs. 83.3, p = .035). PAQ scores were similarly lower for CIED participants (2.17 vs. 2.73, p < .001). Conclusion:The presence of a CIED negatively impacts the QoL and PA of the pediatric population in the setting of the COVID-19 pandemic. Further research is needed to better understand and address the drivers of decreased QoL and PA in the pediatric CIED population in the setting of the COVID-19 Pandemic.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Quality of life of children and young adults with and without cardiovascular implantable electronic devices during the COVID‐19 pandemic

Needleman

Zhu

Kean

2023

Pacing Clinical Electrophis

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“…Similar indicators were arrived at by Ghezzi et al (2023) by diagnosing post-traumatic stress disorder in almost 13% of their study subjects. With regard to paediatric ICD patients, it was established that parents of these patients are more likely to meet the diagnostic criteria for PTSD than the children (Schneider et al, 2022). Versteeg et al (2011) also found that the strongest predictor of PTSD during the first evaluation were the shocks experienced, but type D personality and high levels of anxiety before the procedure also played an important role.…”

Section: Stress and Post-traumatic Stress Disordermentioning

confidence: 99%

New old life of patients after implantation of implantable cardioverter-defibrillator

Paleczna

2023

FetR

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The aim of this article is to provide a detailed description of patients' lives after implantation of an implantable cardioverter defibrillator (ICD). First, the basic function and mechanism of the device as well as the types of experienced shocks, including phantom shocks, are described. Then, the three most important dilemmas faced by patients are discussed: ICD implantation, battery replacement and device deactivation. Subsequently, the scientific literature on psychopathological symptoms in patients is reviewed. The latest results of research on anxiety and depression in patients with ICD are presented, and the relationship between anxiety and depression and experienced shocks is discussed in detail. The results of a few studies on the occurrence of stress and post-traumatic stress disorder in patients are also presented. In addition, the focus was on the perception of the implantation of a cardioverter defibrillator as a traumatic event. The aim of this article was also to discuss the quality of life of patients with a cardioverter defibrillator. The results of studies that indicate a deterioration, improvement or maintenance of the level of quality of life of patients comparable to those of healthy people are presented. In addition, a specific, important from the perspective of people with ICD aspect of the quality of life, which is the health-related quality of life, was discussed. The results of research in this area are also not unambiguous. In addition, predictors of health-related quality of life were indicated. The article also addresses the issue of changing the identity of patients after implantation of a cardioverter defibrillator. The results of research conducted in this field, which were most often of a qualitative nature, were discussed. In the discussion on the identity of people with ICD, changes in self-image were emphasized, but this issue was not a frequent subject of psychological research. Finally, the challenges faced by partners of patients with an implanted cardioverter defibrillator were characterized. Also in this area, most of the research was qualitative, and the data come from interviews with relatives of cardiac patients.

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“…10 The incidence of PTSD in both pediatric patients with an ICDs and their parents is an important and emerging field of study. In this issue of Heart Rhythm Journal, Schneider et al 11 address this understudied yet critical field. The mental health of children and adolescents with ICDs is as essential to understand and address as their physical health and cardiology care.…”

mentioning

confidence: 99%

Potential for shock leads to potential for stress

Freedenberg¹,

Berul²

2022

Heart Rhythm

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Posttraumatic stress disorder in pediatric patients with implantable cardioverter-defibrillators and their parents

Cited by 10 publications

References 29 publications

Quality of life of children and young adults with and without cardiovascular implantable electronic devices during the COVID‐19 pandemic

Quality of life of children and young adults with and without cardiovascular implantable electronic devices during the COVID‐19 pandemic

New old life of patients after implantation of implantable cardioverter-defibrillator

Potential for shock leads to potential for stress

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