Post-traumatic growth and death anxiety in caregivers of cancer patients: PHOENIX study

Alkan, Aslı; Köksoy, Elif Berna; Karcı, Ebru; Burgaç, H.; Soğancı, A. Arıkanoğlu; Yaman, Duygu; Şenler, Filiz Çay

doi:10.1093/annonc/mdy296

Cited by 2 publications

(5 citation statements)

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“…If no separate data for an advanced cancer subgroup was available, we reported data for the total sample when at least 50% had advanced cancer. [37][38][39] In the other cases, we reported data for the advanced cancer subgroup. [40][41][42] The included studies were published between 1998 and 2023.…”

Section: Resultsmentioning

confidence: 99%

“…The overall pooled prevalence rate was 30.6%, 95% CI [24.2–37.0]. Prevalence ranged from 8.5% in hopelessness 43 to 73.0% in death anxiety 37 . The pooled prevalence rates for each construct of existential distress are presented in Figure 2.…”

Section: Resultsmentioning

confidence: 99%

“…Table 1 summarizes detailed information and main results for all studies, grouped according to constructs of existential distress. If no separate data for an advanced cancer subgroup was available, we reported data for the total sample when at least 50% had advanced cancer 37–39 . In the other cases, we reported data for the advanced cancer subgroup 40–42 .…”

Section: Resultsmentioning

confidence: 99%

“…Prevalence ranged from 8.5% in hopelessness 43 to 73.0% in death anxiety. 37 The pooled prevalence rates for each construct of existential distress are presented in Figure 2. Meta-analysis showed a pooled prevalence of 57…”

Section: Prevalence Of Existential Distress: Metaanalysismentioning

confidence: 99%

“…Most of the primary studies included in this review identified demographic risk factors of existential distress in family caregivers of patients with advanced cancer (Table 1). Female sex was frequently identified as a risk factor (n = 8) for experiencing death anxiety, 37,44 despair and anger, 45 and pre-loss grief. 20,[46][47][48][49] Results were mixed regarding age.…”

Section: Sociodemographic Factorsmentioning

confidence: 99%

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Existential distress among family caregivers of patients with advanced cancer: A systematic review and meta‐analysis

Walbaum,

Philipp,

Oechsle

et al. 2023

Psycho-Oncology

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ObjectiveCaregiving for a loved one is challenging and requires significant resources. Existential distress in family caregivers may include hopelessness, demoralization, fear of death, pre‐loss grief, or a sense of not being emotionally prepared. The aim of this systematic review is to synthesize the quantitative literature on existential distress among family caregivers of patients with advanced cancer, focusing on its prevalence, association with mental disorders, as well as with sociodemographic, disease, and treatment‐related factors.MethodsWe systematically searched electronic databases for quantitative studies of the above‐described existential distress concepts in family caregivers of patients with advanced cancer. Two independent reviewers extracted data and evaluated study quality. Data were analyzed using random‐effects meta‐analysis.ResultsWe retrieved 17.587 records, of which 31 studies fulfilled inclusion criteria. 63% of the studies (n = 20) provided sufficient data for meta‐analysis for 5558 patients. We found an overall pooled prevalence of 30.6% for existential distress, 95% CI [24.2–37.0]. For existential distress subconcepts, prevalence rates were 57.0%, 95% CI [37.8–76.2], for death anxiety, 13.9%, 95% CI [10.8–17.0], for demoralization, 24.0%, 95% CI [18.0–30.0], for pre‐loss grief, 18.4%, 95% CI [4.0–32.7], for hopelessness, 35.2%, 95% CI [28.2–42.2], for loneliness, and 35.6%, 95% CI [13.0–58.3], for emotional unpreparedness.ConclusionsApproximately one third of the respondents were affected by high levels of existential distress. The review provides evidence for further development of support services that can reduce existential distress, focused on death anxiety, and improve the quality of life for family caregivers of patients with advanced cancer.

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