Post–High School Service Use Among Young Adults With an Autism Spectrum Disorder

Shattuck, Paul; Wagner, Mary; Narendorf, Sarah C.; Sterzing, Paul R.; Hensley, Melissa

doi:10.1001/archpediatrics.2010.279

Cited by 285 publications

(229 citation statements)

References 20 publications

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“…A recent study found that young adults on the autism spectrum whose parents reported they could perform four activities of daily living independently very well were less likely to receive medical services for diagnosis or evaluation related to disability than those who could not. 62 Our study furthers that finding, highlighting that high educational attainment does not necessarily eliminate the existence of important barriers to quality healthcare. We did not collect data on how often or in what ways participants access the Internet, nor did we collect data from participants without access to the Internet.…”

Section: Discussionsupporting

confidence: 72%

Comparison of Healthcare Experiences in Autistic and Non-Autistic Adults: A Cross-Sectional Online Survey Facilitated by an Academic-Community Partnership

et al. 2012

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Section: Discussionsupporting

confidence: 72%

Comparison of Healthcare Experiences in Autistic and Non-Autistic Adults: A Cross-Sectional Online Survey Facilitated by an Academic-Community Partnership

et al. 2012

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“…In this study we have demonstrated an interactive pathway between mastery, perceived stress, perceived support and physical health. Our findings underscore the importance of providing actual support or respite interventions during periods of high stress (Shattuck, et al, 2011;Nankervis, Rosewarne, & Vassos, 2011) to improve the health of these families. The results also suggest that the mastery may be a key mechanism in shielding parents of children with DD from poor physical health through its influence on stress appraisals.…”

Section: Resultsmentioning

confidence: 57%

Social support and mastery influence the association between stress and poor physical health in parents caring for children with developmental disabilities

Cantwell

Muldoon

Gallagher

2014

Research in Developmental Disabilities

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To date, much of the research linking the stress of caring for children with developmental disabilities (e.g. Autism & Down syndrome) with parental health outcomes have tended to concentrate on mental health with less attention paid to the physical health consequences.Thus, this study sought to explore the psychosocial predictors of poor physical health in these caring parents. One hundred and sixty-four parents (108 caregivers and 58 control parents) completed measures of stress, child problem behaviours, social support, mastery and physical health. Parents of children with developmental disabilities had poorer physical health compared to control parents. Stress and mastery, but not social support and problem behaviours, were significant predictors of poor physical health within caring parents for children with developmental disabilities. However, the association between mastery and physical health was mediated by perceived stress such that those parents who were higher on mastery reported less stress and better physical health; furthermore, the association between stress and physical health was moderated also by social support; those parents high on social support and low in stress had better physical health. These results indicate that the paths between psychosocial factors and poor physical health in the caring parents are working synergistically rather than in isolation. They also underscore the importance of providing multi-component interventions that offer a variety of psychosocial resources to meet the precise needs of the parents.

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“…caregivers to older adults vs controls) on cortisol functioning was found to be mediated by quality of social support (Kim & Knight, 2008), with caregivers reporting lower social support. More importantly however, our findings underscores the importance of providing psychosocial interventions to improve the health of family caregivers (Martire & Schulz, 2007), especially when evidence has found that their social interactions decline over time (Ray & Street, 2006;Shattuck, Wagner, Narendorf, Sterzing, & Hensley, 2011), depriving them of the much needed support. Thus, it could be that the mismatch between the availability of social support and the perceived need for it could result in a lowered perception of social support availability in these parents, leading in turn to increases of blood pressure.…”

Section: Discussionmentioning

confidence: 71%

Social support is associated with blood pressure responses in parents caring for children with developmental disabilities

Gallagher

Whiteley

2012

Research in Developmental Disabilities

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Highlights► Caregiving is associated with high blood pressure in parents.► Caregiving is associated with high stress and low social support in parents.► Social support is associated with blood pressure responses in parents.► The importance of the social support for these families was discussed. AbstractThe present study tested whether parents caring for children with developmental disabilities would have higher blood pressure compared to parents of typically developing children (controls). It also examined the psychosocial factors underlying this observation. Thirty-five parents of children with developmental disability and thirty controls completed standard measures of perceived stress, child challenging behaviours and social support and wore an ambulatory blood pressure (BP) monitor throughout the day, for one day. Relative to controls, parents caring for children with developmental disabilities reported poorer psychosocial functioning and had a higher mean systolic BP. Of the psychosocial predictors, only social support was found to be predictive. Moreover, variations in social support accounted for some of the between group differences with the β for parental group attenuated from .42 to .34 in regressionanalyses. It appears that social support may influence blood pressure responses in parental caregivers. Finally, our findings underscore the importance of providing psychosocial interventions to improve the health of family caregivers.

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Post–High School Service Use Among Young Adults With an Autism Spectrum Disorder

Abstract: Objectives: To produce nationally representative population estimates of rates of service use among young adults with an autism spectrum disorder during their first few years after leaving high school and to examine correlates of use.

Cited by 285 publications

References 20 publications

Comparison of Healthcare Experiences in Autistic and Non-Autistic Adults: A Cross-Sectional Online Survey Facilitated by an Academic-Community Partnership

Comparison of Healthcare Experiences in Autistic and Non-Autistic Adults: A Cross-Sectional Online Survey Facilitated by an Academic-Community Partnership

Social support and mastery influence the association between stress and poor physical health in parents caring for children with developmental disabilities

Social support is associated with blood pressure responses in parents caring for children with developmental disabilities

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