Possibilities and challenges of a large international benchmarking in pediatric diabetology-The SWEET experience

Abstract

Our vision is that the participation in SWEET is encouraging members to deliver increasingly accurate and complete data. Dissemination of results and prospective projects serve as further motivation to improve data reporting. Comparing processes and outcomes will help members identify weaknesses and introduce innovative solutions, resulting in improved and more uniform care for patients with diabetes.

Prevalence of underweight, overweight, and obesity in children and adolescents with type 1 diabetes: Data from the international SWEET registry

“…The analysis was based on data from the SWEET “Better control in Pediatric and Adolescent diabete S : W orking to cr E ate C E n T ers of Reference,” a prospective, multicenter, standardized diabetes patient registry. SWEET is an international consortium of pediatric diabetes centers created with the aim of improving the care of children with T1D through sharing the best practices and the collection of clinical outcome data in large cohorts of patients . Currently, the SWEET network includes 55 pediatric diabetes centers from all continents.…”

“…The BMI was calculated as weight (kilograms) divided by height (meters) squared. BMI‐SDS was calculated using the WHO BMI charts . Children were categorized as UW (BMI‐SDS < −2SD), NW (2SD ≤ BMI‐SDS ≤ +1SD), OW (+1SD < BMI‐SDS ≤ +2SD), and OB (BMI‐SDS > +2SD)…”

The influence of treatment, age at onset, and metabolic control on height in children and adolescents with type 1 diabetes—A SWEET collaborative study

“…SWEET (“Better control in Pediatric and Adolescent diabetes: Working to create centers of reference”) is a multinational initiative that strives to improve diabetes care and outcomes world‐wide . In order to become a participating member of SWEET, each center must meet specific entry criteria demonstrating their pediatric diabetes expertise and compliance with the International Society for Pediatric and Adolescent Diabetes clinical practice guidelines . The SWEET database incorporates data from various sources, including “Diabetes‐Patienten‐verlaufskodumentation” (DPV, https://sweet.zibmt.uni-ulm.de/software.php), DIAMAX, national registries, or local databases.…”

ISPAD Clinical Practice Consensus Guidelines 2018: The delivery of ambulatory diabetes care to children and adolescents with diabetes

“…Adequate data management and statistical analysis capabilities are required to analyze outcome data for quality improvement assessment. Figure represents the minimal dataset from the SWEET collaborative (Better control in Pediatric and Adolescent diabeteS: Working to crEate CEnTers of Reference), with indicators of both processes of care and clinical outcomes important to pediatric diabetes services …”