Positive Experiences Associated With Ménière's Disorder

Stephens, Dafydd; Kentala, Erna; Varpa, Kirsi; Pyykkö, Ilmari

doi:10.1097/mao.0b013e318068b2dd

Cited by 28 publications

(18 citation statements)

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“…The questionnaire about the positive experiences associated with M é ni è re ' s disorder comprised 27 questions, eighteen were derived from our earlier qualitative study on M é ni è re ' s disorder (Stephens et al, 2007). This was supplemented by three each on hearing problems, tinnitus, and balance problems derived from the separate studies on those symptoms (Stephens & Kerr, 2003;Kentala et al, 2007).…”

Section: Methodsmentioning

confidence: 99%

“…This was supplemented by three each on hearing problems, tinnitus, and balance problems derived from the separate studies on those symptoms (Stephens & Kerr, 2003;Kentala et al, 2007).…”

Section: Methodsmentioning

confidence: 99%

“…Elsewhere we have identifi ed a range of positive experiences reported by patients with M é ni è re ' s disorder who were members of the Finnish M é ni è re ' s Association (Stephens et al, 2007) using an open-ended questionnaire. The question was worded ' Please list any and all positive experiences you have encountered due to M é ni è re ' s disorder ' .…”

Section: Sumariomentioning

confidence: 99%

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Positive experiences and quality of life in Ménière's disorder

Stephens

Pyykkö²,

Levo³

et al. 2010

International Journal of Audiology

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The objective of this study was to determine the influence of positive experiences on the quality of life of patients with Ménière's disorder. Its deign comprised a cross-sectional investigation of members of a self-help group, using a questionnaire of positive experiences, an oto-neurological questionnaire, EuroQol, and Ménière's impact rating. The study sample was 542 members of the Finnish Ménière Federation. Results showed that the positive questions explained 21% of the variance of the EuroQol TTO, 31% of the EuroQol VAS measure, and 35% of the Ménière's impact. This compared with 40% of the variance explained by symptomatic complaints. When both the symptoms and positive measures were taken together, there was an increase in the proportion of the variance explained for the VAS (42%) and Ménière's rating (50%), but not for the TTO (42%). A perspective on the disorder was the main positive experience associated with the increased variance explained. Positive experiences have a significant impact on self-rated quality of life. The results suggest that encouraging a positive perspective on the condition, in addition to treating the underlying symptoms, could be useful in rehabilitative management.

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Section: Methodsmentioning

confidence: 99%

“…This was supplemented by three each on hearing problems, tinnitus, and balance problems derived from the separate studies on those symptoms (Stephens & Kerr, 2003;Kentala et al, 2007).…”

Section: Methodsmentioning

confidence: 99%

Section: Sumariomentioning

confidence: 99%

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Positive experiences and quality of life in Ménière's disorder

Stephens

Pyykkö²,

Levo³

et al. 2010

International Journal of Audiology

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“…multiple sclerosis, cancer) have been able to identify some positive life and clinical experiences (Phillips & Stuifbergn, 2008;LaFortune, 1995). Our studies suggest that people with hearing and balance disorders are able to identify similar positive experiences as a result of their condition (Stephens & Kerr, 2003;Stephens et al, 2007). Signifi cant others (SOs) of patients with hearing and balance disorders can have a major effect in helping the patients accept and adapt to their condition and seek appropriate help (Manchaiah et al, 2012;Long & Bennett, 2009).…”

mentioning

confidence: 88%

“…interview followed by completion of a questionnaire). In a study on people with chronic M é ni è re ' s disorder conducted in Finland we found that patients were able to identify positive experiences derived from their condition (Stephens et al, 2007). M é ni è re ' s disorder is an idiopathic condition comprising repeated episodes of vertigo, fl uctuant hearing loss, tinnitus, and a sensation of pressure in the ear.…”

Section: Disorder Main Themes Of Positive Experiencesmentioning

confidence: 99%

Significant others of patients with hearing and balance disorders report positive experiences

Pyykkö

Manchaiah

Kentala

et al. 2014

International Journal of Audiology

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What is Menière’s disease? A contemporary re-evaluation of endolymphatic hydrops

et al. 2016

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Menière’s disease is a chronic condition with a prevalence of 200–500 per 100,000 and characterized by episodic attacks of vertigo, fluctuating hearing loss, tinnitus, aural pressure and a progressive loss of audiovestibular functions. Over 150 years ago, Prosper Menière was the first to recognize the inner ear as the site of lesion for this clinical syndrome. Over 75 years ago, endolymphatic hydrops was discovered as the pathologic correlate of Menière’s disease. However, this pathologic finding could be ascertained only in post-mortem histologic studies. Due to this diagnostic dilemma and the variable manifestation of the various audiovestibular symptoms, diagnostic classification systems based on clinical findings have been repeatedly modified and have not been uniformly used in scientific publications on Menière’s disease. Furthermore, the higher level measures of impact on quality of life such as vitality and social participation have been neglected hitherto. Recent developments of high-resolution MR imaging of the inner ear have now enabled us to visualize in vivo endolymphatic hydrops in patients with suspected Menière’s disease. In this review, we summarize the existing knowledge from temporal bone histologic studies and from the emerging evidence on imaging-based evaluation of patients with suspected Menière’s disease. These indicate that endolymphatic hydrops is responsible not only for the full-blown clinical triad of simultaneous attacks of auditory and vestibular dysfunction, but also for other clinical presentations such as “vestibular” and “cochlear Menière’s disease”. As a consequence, we propose a new terminology which is based on symptomatic and imaging characteristics of these clinical entities to clarify and simplify their diagnostic classification.

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Positive Experiences Associated With Ménière's Disorder

Cited by 28 publications

References 0 publications

Positive experiences and quality of life in Ménière's disorder

Positive experiences and quality of life in Ménière's disorder

Significant others of patients with hearing and balance disorders report positive experiences

What is Menière’s disease? A contemporary re-evaluation of endolymphatic hydrops

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