Positive and negative impacts of schizophrenia on family caregivers: a systematic review and qualitative meta-summary

Shiraishi, Nao; Reilly, Jacqueline

doi:10.1007/s00127-018-1617-8

Cited by 98 publications

(121 citation statements)

References 79 publications

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“…For instance, parents, especially mothers, are more likely to be blamed for a child's sickness since they are expected to give birth to healthy children and nurture them through their parenting role (52). A child with schizophrenia may contribute to marriage crisis and family conflict (27,52,53). The mother and father may blame each other for the child's condition, disagree about treatment plans, and argue about caregiving responsibilities.…”

Section: Discussionmentioning

confidence: 99%

“…The mother and father may blame each other for the child's condition, disagree about treatment plans, and argue about caregiving responsibilities. As a result, parents may perceive higher burden when caring for PLWS due to the sense of guilt, blame, and anger that results from their situation (27,52,53). In contrast, spouse caregivers may normalize caregiving as part of their marital role as reflected in their marriage vows, such as "in sickness and in health" or "until death do us part" (54)(55)(56).…”

Section: Discussionmentioning

confidence: 99%

“…Finally, although most of literature has described caregiving as having negative effects, it is increasingly recognized that caregiving may have positive influences on both the caregiver and family (27). Caring for family member with schizophrenia may bring about positive transformation in caregiver's life and can provide caregivers with positive inner feelings, such as improved selfadmiration, self-affirmation, self-confidence, self-satisfaction and personal growth, which may be generally referred to caregiving rewarding feelings (15,28).…”

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confidence: 99%

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Spouse and parent differences in caregiving experiences of people living with schizophrenia in rural China

Yu¹,

Li²,

Li³

et al. 2020

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Background: To comprehensively examine and carefully compare caregiving experiences and impacts between spouse and parent caregivers for people living with schizophrenia in China. Methods:A cross-sectional study was conducted in a sample of 264 community-dwelling primary family caregivers of people living with schizophrenia. Face-to-face interviews were conducted to collect information on caregiving activities, both objective and subjective burden, caregiver psychological distress including depression and anxiety, positive caregiving impact including caregiving rewarding feelings and family functioning between spouse and parent caregivers.Results: Both types of caregivers report engaging in similar caregiving activities and report comparable levels of objective burden. However, parent caregivers report significantly higher subjective burden than spouse caregivers (β=7.93, 95%CI:2.13, 13.73), which is also reflected in significantly higher depression (β =3.60, 95%CI:1.09, 6.12) and anxiety scores (β=2.37, 95%CI: 0.08, 4.65), and reports of lower family functioning (β =-1.61, 95%CI: -2.73, -0.49). Despite these differences, both groups of caregivers report comparable rewarding feelings about caregiving.Conclusions: The findings may be explained by the difference between subjective burden and objective burden, as well as the unique cultural and social characteristics of family caregivers in China. The study discusses implications for future intervention, particularly for parents as family caregivers.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

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Spouse and parent differences in caregiving experiences of people living with schizophrenia in rural China

Yu¹,

Li²,

Li³

et al. 2020

Preprint

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show abstract

“…Although most of literature has described caregiving as having negative effects, it is increasingly recognized that caregiving may have positive influences on both the caregiver and family [18]. Caring for a family member with schizophrenia may bring about a positive transformation in a caregiver's life and can promote positive inner feelings, such as improved self-admiration, self-affirmation, selfconfidence, self-satisfaction and personal growth; referred to as caregiving rewarding feelings [10,19].…”

Section: Introductionmentioning

confidence: 99%

A cross-sectional study on spouse and parent differences in caregiving experiences of people living with schizophrenia in rural China

et al. 2020

Preprint

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Background: Conflicting evidence exists on whether parent or spouse caregivers experience better outcomes when caring for family members with schizophrenia. The current study aims to examine relative caregiving experiences and impacts of spouse and parent caregivers for people living with schizophrenia (PLS) in China. Methods: A cross-sectional study was conducted in a sample of 264 community-dwelling primary family caregivers of PLS. Face-to-face interviews were conducted to collect information on family caregiving activities; objective and subjective burden; caregiver psychological distress, such as depression and anxiety; positive caregiving impact, such as caregiving rewarding feelings; and family functioning for spouse and parent caregivers. Results: Both types of caregivers report engaging in similar caregiving activities and report comparable levels of objective burden. However, parent caregivers report significantly higher subjective burden than spouse caregivers ( b =7.94, 95% CI :2.08, 13.80, P <0.01), which is also reflected in significantly higher depression ( b =3.88, 95% CI :1.35, 6.41, P <0.01) and anxiety ( b =2.53, 95% CI : 0.22, 4.84, P <0.05), and lower family functioning ( b =-1.71, 95% CI : -2.73, -0.49, P <0.01). Despite these differences, both groups of caregivers report comparable rewarding feelings about caregiving. Conclusions: Our findings have implications for family caregivers globally, but especially for countries that adhere to Confusion cultural values, and provide guidance for future family intervention programs. Such programs may do well to incorporate cultural values and beliefs in understanding caregiving and kinship family dynamics so as support family caregivers, and in particular, the specific vulnerabilities of parent caregivers. Keywords: Schizophrenia; family caregivers; caregiver burden; caregiving, parent, spouse

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“…As a result, high therapeutic and non-therapeutic costs are imposed on the family and community, such as losing job due to illness or taking care of the loved ones (3,4). The burden of this disorder has been ranked 11th among 301 diseases and injuries (5,6,7). Families with a schizophrenic patient experience grief and are forced to deal with social stigma and isolation, which lead to feelings of shame or guilt and affect their physical and mental health (8).…”

Section: Introductionmentioning

confidence: 99%

Family Achievements in the Battle with Schizophrenia: :Life Experiences in a Qualitative Content Analysis Study in IRAN

Darban

Mehdipour‐Rabori

Farokhzadian

et al. 2020

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Introduction: The challenges of living with and taking care of a patient with schizophrenia can lead to positive changes depending on the experiences and reactions of the families. Such changes may directly affect the family performance and the patient's recovery stage. Therefore, the aim of this study was to explain the positive experiences reported by families of patients with schizophrenia.Materials and methods: In this qualitative study of content analysis, data were collected using semi-structured and in-depth interviews with 15 family members of patients with schizophrenia who referred to one of the psychiatric hospitals in Zahedan City, Iran. Targeted sampling method was applied and data analysis was conducted using contractual content analysis proposed by Graneheim and Lundman.Results: Data analysis resulted in a theme entitled 'family achievements in the battle with schizophrenia'. This theme included four main categories of: Developing positive personality traits in family members, Strengthening family ties, Developing insight into life, and Social mobility.Conclusion: The findings provided evidences that the experience of taking care of patients with schizophrenia led to positive consequences for the families.Highlights- Caring for a patient with schizophrenia promotes personality traits in caregivers- Participating in patient care strengthens family ties- Living with schizophrenia patients developed their insight into life.- Family members of a schizophrenic patient try to reach their previous social status

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Positive and negative impacts of schizophrenia on family caregivers: a systematic review and qualitative meta-summary

Cited by 98 publications

References 79 publications

Spouse and parent differences in caregiving experiences of people living with schizophrenia in rural China

Spouse and parent differences in caregiving experiences of people living with schizophrenia in rural China

A cross-sectional study on spouse and parent differences in caregiving experiences of people living with schizophrenia in rural China

Family Achievements in the Battle with Schizophrenia: :Life Experiences in a Qualitative Content Analysis Study in IRAN

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