Portuguese adolescents with cystic fibrosis and their parents: An intervention proposal for nursing clinical practice

Reisinho, Maria da Conceição; Gomes, Bárbara Pereira

doi:10.1016/j.pedn.2021.12.007

Cited by 2 publications

(1 citation statement)

References 6 publications

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“…These findings were highly supported with Reisinho & Gomes (2022), who emphasized in a similar study that, "nurses play a pivotal role in caring for adolescents with CF, so they need extended knowledge to recognize the different phases of the disease and understand how children with CF and their parents/family cope with this health-threatening situation. Nursing clinical practice indicators are a key element to this process, allowing targeted interventions that meet emergent needs".…”

Section: Resultsmentioning

confidence: 53%

Effect of Nursing Intervention on Parents Awareness Regarding Health Problems of their Children Suffering from Cystic Fibrosis

A. Ali,

Ragab Mohamed,

Ali Kunswa

2024

Egyptian Journal of Health Care

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Background: Cystic fibrosis (CF) is an inherited disorder that causes severe damage to the lungs, digestive system and other organs in the body. Aim: The aim was to evaluate the effect of nursing intervention on parents' awareness regarding health problems of their children suffering from cystic fibrosis. Research design: A quasi-experimental study design was used (pre/post). Sampling: A purposive sample involved 50 parents (mothers or fathers) of children suffering from cystic fibrosis Settings: The outpatient department (OPDs) at Children's Hospital and specialized OPD affiliated to Ain Shams University Hospitals. Tools: Data collected through using Tool I: an interviewing questionnaire included parents and children characteristics, parents' knowledge regarding cystic fibrosis, health problems, cystic fibrosis compliance management and reasons for poor cystic fibrosis compliance managements. Tool II: Parents self-reported practice included care of children with CF in relation nebulizer sessions, hand washing, enema care and assessing skin elasticity during dehydration. Results: After implementing the nursing intervention most of the studied parents had satisfactory level of knowledge regarding CF disease and satisfactory level of reported practice regarding care of their children. Conclusion: Nursing intervention had a positive effect on parents having children with CF in relation to improving their knowledge and reported practice, there was negative correlation between parents' total knowledge and total reported practice pre the intervention compared to positive correlation post the intervention. Recommendation: Further studies are needed to assess factors affecting parents' compliance with CF management for their children.

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Section: Resultsmentioning

confidence: 53%

Effect of Nursing Intervention on Parents Awareness Regarding Health Problems of their Children Suffering from Cystic Fibrosis

A. Ali,

Ragab Mohamed,

Ali Kunswa

2024

Egyptian Journal of Health Care

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Current State of Genomics in Nursing: A Scoping Review of Healthcare Provider Oriented (Clinical and Educational) Outcomes (2012–2022)

Thomas,

Keels,

Calzone

et al. 2023

Genes

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In the 20 years since the initial sequencing of the human genome, genomics has become increasingly relevant to nursing. We sought to chart the current state of genomics in nursing by conducting a systematic scoping review of the literature in four databases (2012–2022). The included articles were categorized according to the Cochrane Collaboration outcome domains/sub-domains, and thematic analysis was employed to identify key topical areas to summarize the state of the science. Of 8532 retrieved articles, we identified 232 eligible articles. The articles primarily reported descriptive studies from the United States and other high-income countries (191/232, 82%). More than half (126/232, 54.3%) aligned with the “healthcare provider oriented outcomes” outcome domain. Three times as many articles related to the “knowledge and understanding” sub-domain compared to the “consultation process” subdomain (96 vs. 30). Five key areas of focus were identified, including “nursing practice” (50/126, 40%), “genetic counseling and screening” (29/126, 23%), “specialist nursing” (21/126, 17%), “nurse preparatory education” (17/126, 13%), and “pharmacogenomics” (9/126, 7%). Only 42/126 (33%) articles reported interventional studies. To further integrate genomics into nursing, study findings indicate there is a need to move beyond descriptive work on knowledge and understanding to focus on interventional studies and implementation of genomics into nursing practice.

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Portuguese adolescents with cystic fibrosis and their parents: An intervention proposal for nursing clinical practice

Cited by 2 publications

References 6 publications

Effect of Nursing Intervention on Parents Awareness Regarding Health Problems of their Children Suffering from Cystic Fibrosis

Effect of Nursing Intervention on Parents Awareness Regarding Health Problems of their Children Suffering from Cystic Fibrosis

Current State of Genomics in Nursing: A Scoping Review of Healthcare Provider Oriented (Clinical and Educational) Outcomes (2012–2022)

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