Portraits of People With Dementia

Webster, Gemma; Fels, Deborah I.

doi:10.1177/1533317513488908

Am J Alzheimers Dis Other Demen

2013

DOI: 10.1177/1533317513488908

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Portraits of People With Dementia

Gemma Webster

Deborah I. Fels

Abstract: Communication difficulties associated with late-stage dementia can make it difficult for care staff in residential environments to get to know people with dementia. This lack of knowledge can have a negative effect on the social environment of residential facilities which can have a detrimental effect on the health and well-being of the residents and the job satisfaction of the staff. In this paper we discuss the creation of Portraits of people with dementia to aid care staff in understanding the individual. T… Show more

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Cited by 4 publications

References 20 publications

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Stories about life narrated by people with Alzheimer's disease

Karlsson

Sävenstedt

Axelsson

et al. 2014

Journal of Advanced Nursing

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Aim. To explore how people with Alzheimer's disease present their life story. Background. Life story work is a key concept in a person-centred care. An important aspect in understanding the subjective experience and supporting the identity of people with dementia is to listen to their life stories. Design. A narrative design with interviews was used. Method. Nine participants with Alzheimer's disease were encouraged to tell about their lives from childhood, adult life, to present life and about their thoughts on the future. The interviews were conducted between September 2010-March 2011 in the participants' homes, with their spouses present and were analysed with a method for analysis of narratives. Findings. Contentment, Connectedness, Self-reliance and Personal growth were identified as core dimensions in the participants' life stories and shown like threads throughout life, from childhood, adult life to present life. All participants expressed an overall contentment with life, and connectedness was related to their relation with significant persons and to be included in the local community. Selfreliance was expressed as a strong confidence in the own ability and an overall curiosity throughout life as a sustained quest for personal growth. Conclusions. It is important for healthcare professionals, who work with people with dementia, to understand that people with Alzheimer's disease can maintain an overall trusting and hopeful approach to life. It is also important to use life story work to enhance feelings of being connected to the world and thereby support their identity and sense of self.

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Stories about life narrated by people with Alzheimer's disease

Karlsson

Sävenstedt

Axelsson

et al. 2014

Journal of Advanced Nursing

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Technology for Supporting Care Staff in Residential Homes

Webster

Hanson

2014

ACM Trans. Access. Comput.

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Care staff, those who attend to the day-to-day needs of people in residential facilities, represent an important segment of the health-care provision of those entrusted to their care. The potential use of technology by care staff has not been a focus of researcher attention. The work reported here provides initial steps in addressing that gap, considering both the design requirements for this population and presentation of early work on a software system for use by care staff. We describe the development of a software tool for use by care staff, called Portrait, and report two studies related to factors affecting technology use by this population. The results of this research are promising, with Portrait being very positively received by care managers and care staff. Use of this software in a care home for over a month indicated continued use, with care staff returning to the system throughout the test period. The contributions of this research are the identification of factors important in working with a care staff population, the introduction and evaluation of a novel software tool for care staff in residential homes, and the highlighting of potential benefits of technology in assisting care staff. ACM Reference Format:Webster, G. and Hanson, V. L. 2014. Technology for supporting care staff in residential homes. ACM Trans.

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Enriching Social Sharing for the Dementia Community: Insights from In-Person and Online Social Programs

Dai

Moffatt

2023

ACM Trans. Access. Comput.

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The dementia community faces major challenges in social engagements, which have been further complicated by the prolonged physical distancing measures due to the COVID-19 pandemic. Designing digital tools for in-person social sharing in family and care facility settings has been well explored, but comparatively little HCI work has focused on the design of community-based social technologies for virtual settings. We present our virtual fieldwork on remote social activities explored by one dementia community in response to the impacts of the pandemic. Building upon our previously published on-site fieldwork in this community, we expand on our initial publication by follow-up interviewing caregivers and facilitators and reflecting on a virtual social program. Through thematic analysis and contrasting in-person and online formats of the program, we deepened the understanding of virtual social engagements of the dementia community, examining their efforts to leverage physical objects and environments, enhance open and flexible experiences, and expand collaborative space. We propose to open new design opportunities through holistic approaches, including reimagining community social spaces, rethinking agency in people with dementia and caregivers, and diversifying HCI support across communities and stakeholders.

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Portraits of People With Dementia

Cited by 4 publications

References 20 publications

Stories about life narrated by people with Alzheimer's disease

Stories about life narrated by people with Alzheimer's disease

Technology for Supporting Care Staff in Residential Homes

Enriching Social Sharing for the Dementia Community: Insights from In-Person and Online Social Programs

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