Population Health

Itchhaporia, Dipti; Facc,

doi:10.1016/j.jacc.2021.09.001

Cited by 3 publications

(1 citation statement)

References 2 publications

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“…PGHD‐centered research studies could pave the way to addressing skin tone bias in wound care by creating databases of surgical site photos as they heal 6 . Research agendas designed with the integration of PGHD may allow us to scale health equity innovations by virtually bringing large research projects to populations historically underrepresented due to systems‐level barriers 7 . Population health programs designed with interoperability and equity in mind may then provide real‐time access to patient health data in a meaningful, actionable format.…”

Section: We Can't See the Big Picturementioning

confidence: 99%

Designing health outcomes through patient data ownership

Sonin,

Becker,

Nipp

2023

Journal of Hospital Medicine

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A patient's health data is more than the sum of information in their electronic health record. Primary health care is evolving with comprehensive determinants of health and systems medicine models, yet electronic health data remain mostly fragmented and siloed. All data is health data, with an estimated 80%-90% of modifiable contributors to health happening outside the clinical setting. 1 Patient-Generated Health Data (or PGHD) is "healthrelated data created and recorded by or from patients outside of the clinical setting." 2 Clinical data, modifiable contributors, and PGHD, together, build a rich picture of health data. Combined, they become the true picture of an individual's health. 3,4 This picture includes personal circumstances and choices, apps and wearables that log movement, adverse childhood events, zip code of residence, diet, education, salary, dental records, medical device information, stress level, medical conditions, social history, and more. All these data combine to become a true picture of an individual's health. 4,5 OUR HEALTH DATA IS BROKENThis comprehensive picture of one's health data remains broken, however, with fragmented health data existing across siloed systems. These data are in pieces, made of two sides. One side contains health bytes such as biometric measurements, exam notes, or demographic data.The other side is location data-where that health information is documented and stored by different companies. Be it a phone app, office visit or wearable technology, each piece of health data is stored where it's collected (a digital health record, of sorts), by the collector.

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Section: We Can't See the Big Picturementioning

confidence: 99%