Politique & télévision. Extension du domaine politique

Deliver us from evil: carer burden in Alzheimer's disease

“…In fact, the mother's slow drifting off and falling asleep evokes ‘non pas sa mort, mais sa résurrection’ not her death but her resurrection (p168)24 in Elodie. It is the very privilege of fictional texts to use this religious term in the relevant context, a term which points the reader to a different way of thinking about the patient's hopeless end-of-life situation and liberating death.…”

“…Elodie shows us new ways of tackling the heavy burden of dementia in the nuclear family: in her first-person account, she speaks about her ‘maman’ with respect and love, fighting against the disease together with her mother. Effectively, Devars24 presents Alzheimer's disease as the protagonists' common enemy, their opportunity to come closer, to fully live the love mother and daughter have cherished for each other ever since. The patient's death is—in the first place—presented as the gate to freedom for that patient, albeit Devars does not skip illustrating how Elodie enjoys a happy life after her mother's death.…”

“…Both Christine Devars ( Le Piano Désaccordé )24 and Andrés Barba ( Ahora Tocad Música de Baile )1 centre their story around a mother afflicted by Alzheimer's disease: Devars introduces us to Elodie's 48-year-old mother, at the pinnacle of her career as a world famous pianist when diagnosed with Alzheimer's disease. Twenty-year-old Elodie herself is very close to her mother and revolts not only against the disease and its impact on their love and life but also the way society deals with dementia.…”