Policy analysis in an information-rich environment

Roos, Leslie L.; Menec, Verena; Currie, Robert J.

doi:10.1016/j.socscimed.2003.08.008

Cited by 83 publications

(55 citation statements)

References 48 publications

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“…Data in the MPRDR have been widely used for health research, and the reliability of the databases has been well established. [26][27][28][29][30][31][32][33] The MPRDR contains information for all people eligible or registered for health insurance benefits through the Manitoba Health Insurance Plan. The MPRDR identifies all residents in the province except those insured by the federal government (such as military personnel and federal inmates), who account for less than 0.5% of the provincial population).…”

Section: Data Sourcesmentioning

confidence: 99%

Suicide and suicide attempts among women in the Manitoba Mothers and Fetal Alcohol Spectrum Disorder cohort: a retrospective matched analysis using linked administrative data

et al. 2017

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Background:Women who give birth to children with fetal alcohol spectrum disorder (FASD) may be at increased risk for suicide; however, there are few data in this area. The objective of this study was to compare rates of suicide between women who had given birth to children with FASD and women who had not given birth to children with FASD during critical periods in their lives, including before pregnancy, during pregnancy, during the postpartum period (maternal death) and until the end of the study period. Methods:We conducted a retrospective cohort analysis of women with children born in Manitoba between Apr. 1, 1984, and Mar. 31, 2012 in whom FASD was diagnosed between Apr. 1, 1999, and Mar. 31, 2012, with follow-up until Dec. 1, 2013 (FASD group; n = 702). We generated a comparison group of women who had not given birth to children with FASD (n = 2097), matched up to 1:3 on date of birth of the index child, socioeconomic status and region of residence. We used linked administrative data to investigate suicide attempt and completion rates in the 2 groups. Regression modelling produced relative rates (RRs) adjusted for socioeconomic status and age at birth of the index child and was used to assess suicide risk. Results:The 2799 participants produced 40 390.21 person-years until the end of the study period. Compared to the comparison group, the FASD group had higher rates of suicide completion (adjusted RR 6.20 [95% confidence interval (CI) 2.36-16.31]), a higher number of women who attempted suicide after the postpartum period until the end of the study period ) and a higher number of attempts after the postpartum period until the end of the study period ]).Interpretation: This study identified a group of women with increased rates of social complexities, mental disorders and alcohol use, which places them at risk for suicide. Interventions are needed that screen for suicidal behaviour in women who are at high risk to consume alcohol during pregnancy and have mental disorders. Abstract ResearchResearch CMAJ OPEN CMAJ OPEN, 5(3) E647

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Section: Data Sourcesmentioning

confidence: 99%

Suicide and suicide attempts among women in the Manitoba Mothers and Fetal Alcohol Spectrum Disorder cohort: a retrospective matched analysis using linked administrative data

et al. 2017

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“…The validity of data in the PATHS Data Resource has been well documented. 32,[35][36][37][38][39][40] The initial study population included all mother-infant pairs for Manitoba women who had a live hospital birth from January 1, 2003, through December 31, 2010 (Fig 1); <1% of Manitoba births occur at home. 41 A quasi-experimental retrospective cohort design was used, comparing birth outcomes for infants of women who received (exposed) or did not receive (unexposed) HBPB.…”

Section: Population and Data Sourcementioning

confidence: 99%

Unconditional Prenatal Income Supplement and Birth Outcomes

et al. 2016

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“…It was not surprising, therefore, that the international review by Roos et al described only a handful of information-rich environments worldwide, which have been constructed from the linkage of multiple, large, population-based, administrative data sets. 3 They included the Manitoba Population Health Information System, 4 Oxford Record Linkage Study, 5 Scottish Record Linkage System, 6 Rochester Epidemiology Project, 7 the Centre for Health Services and Policy Research in British Columbia, 8 and the Western Australian Data Linkage System (WADLS). 9 This report describes the strategic design, the steps to full implementation and the outcomes achieved by one of the world' s few comprehensive, population-based data linkage systems, the WADLS, which has linked over 30 health data collections for a population of 2.0 million living in the western one-third of the Australian continent.…”

mentioning

confidence: 99%

A decade of data linkage in Western Australia: strategic design, applications and benefits of the WA data linkage system

Holman

Bass²,

Rosman³

et al. 2008

Aust. Health Review

465

434

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Objectives: The report describes the strategic design, steps to full implementation and outcomes achieved by the Western Australian Data Linkage System (WADLS), instigated in 1995 to link up to 40 years of data from over 30 collections for an historical population of 3.7 million. Staged development has seen its expansion, initially from a linkage key to local health data sets, to encompass links to national and local health and welfare data sets, genealogical links and spatial references for mapping applications. Applications:The WADLS has supported over 400 studies with over 250 journal publications and 35 graduate research degrees. Applications have occurred in health services utilisation and outcomes, aetiologic research, disease surveillance and needs analysis, and in methodologic research. Benefits:Longitudinal studies have become cheaper and more complete; deletion of duplicate records and correction of data artifacts have enhanced the quality of information assets; data linkage has conserved patient privacy; community machinery necessary for organised responses to health and social problems has been exercised; and the commercial return on research infrastructure investment has exceeded 1000%. Most importantly, there have been unbiased contributions to medical knowledge and identifiable advances in population health arising from the research.

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Policy analysis in an information-rich environment

Cited by 83 publications

References 48 publications

Suicide and suicide attempts among women in the Manitoba Mothers and Fetal Alcohol Spectrum Disorder cohort: a retrospective matched analysis using linked administrative data

Suicide and suicide attempts among women in the Manitoba Mothers and Fetal Alcohol Spectrum Disorder cohort: a retrospective matched analysis using linked administrative data

Unconditional Prenatal Income Supplement and Birth Outcomes

A decade of data linkage in Western Australia: strategic design, applications and benefits of the WA data linkage system

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