Place of death: preferences among cancer patients and their carers

Thomas, Carol; Morris, Sara; Clark, David H.

doi:10.1016/j.socscimed.2003.09.005

Cited by 213 publications

(307 citation statements)

References 20 publications

Supporting

Mentioning

295

Contrasting

Unclassified

Order By: Relevance

“…It is evident that preference for home as a place of death decreases as people get older and as the prospect becomes a more pressing reality. 51,59,[66][67][68][69] Evidence from qualitative studies suggests that terminally ill patients may often feel uncertain about their preferences, which are likely to change throughout the course of illness. Such preferences are often not formulated clearly, especially in the face of uncertainty about what will happen throughout the experience of dying.…”

Section: Preferred Place Of Deathmentioning

confidence: 99%

“…Patients are pragmatic, also, about their options and how these depend on the circumstances that materialise. 6,22,43,50,51,[67][68][69][70][71][72][73] Running like a leitmotif throughout the literature is that patients strongly desire not to impose a burden of care on their family members 5,22,69,[73][74][75][76][77][78][79] and it is evident that most people depend on the availability and willingness of informal carers to support their ability to die at home. 69,73,80 As the population ages, increasing numbers of the very old live alone and may not have carers available to help.…”

Section: Preferred Place Of Deathmentioning

confidence: 99%

“…The findings of qualitative studies question the assumption that 'home is best' in relation to good-quality EOLC. 68,77,86 In the face of conflicting and uncertain evidence, it is important to establish a better understanding of how patients and caregivers develop their preferences, the role of health professionals in shaping these, the salience of choice and the importance patients attach to place of death. 69,74 The initiation of advance care planning Advance care planning involves discussion of difficult issues that may be distressing to all participants.…”

Section: Preferred Place Of Deathmentioning

confidence: 99%

“…179 There is (largely qualitative) evidence that the desire for a home death decreases with age and severity of illness. [67][68][69]179 The current orthodoxy that home is the best, and usually preferred, place of death is coming under challenge. Evidence accumulates about the complex situational factors underlying decisions and the varied preferences which may subsequently be expressed.…”

Section: 132139mentioning

confidence: 99%

See 3 more Smart Citations

Care and communication between health professionals and patients affected by severe or chronic illness in community care settings: a qualitative study of care at the end of life

Pollock

Wilson

2015

Health Serv Deliv Res

View full text Add to dashboard Cite

(2015) Care and communication between health professionals and patients affected by severe or chronic illness in community settings: a qualitative study of care at the end of life. Health Services Delivery and Research, 3 (31). ISSN 2050-4349 Access from the University of Nottingham repository: http://eprints.nottingham.ac.uk/35464/2/FullReport-hsdr03310.pdf Copyright and reuse:The Nottingham ePrints service makes this work by researchers of the University of Nottingham available open access under the following conditions. This article is made available under the Creative Commons Attribution Non-commercial licence and may be reused according to the conditions of the licence. For more details see: http://creativecommons.org/licenses/by-nc/2.5/ A note on versions:The version presented here may differ from the published version or from the version of record. If you wish to cite this item you are advised to consult the publisher's version. Please see the repository url above for details on accessing the published version and note that access may require a subscription.For more information, please contact eprints@nottingham.ac.uk This journal is a member of and subscribes to the principles of the Committee on Publication Ethics (COPE) (www.publicationethics.org/). HEALTH SERVICES AND DELIVERY RESEARCHEditorial contact: nihredit@southampton.ac.ukThe full HS&DR archive is freely available to view online at www.journalslibrary.nihr.ac.uk/hsdr. Print-on-demand copies can be purchased from the report pages of the NIHR Journals Library website: www.journalslibrary.nihr.ac.uk Criteria for inclusion in the Health Services and Delivery Research journalReports are published in Health Services and Delivery Research (HS&DR) if (1) they have resulted from work for the HS&DR programme or programmes which preceded the HS&DR programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors. HS&DR programmeThe Health Services and Delivery Research (HS&DR) programme, part of the National Institute for Health Research (NIHR), was established to fund a broad range of research. It combines the strengths and contributions of two previous NIHR research programmes: the Health Services Research (HSR) programme and the Service Delivery and Organisation (SDO) programme, which were merged in January 2012.The HS&DR programme aims to produce rigorous and relevant evidence on the quality, access and organisation of health services including costs and outcomes, as well as research on implementation. The programme will enhance the strategic focus on research that matters to the NHS and is keen to support ambitious evaluative research to improve health services.For more information about the HS&DR programme please visit the website: http://www.nets.nihr.ac.uk/programmes/hsdr This reportThe research reported in this issue of the journal was funded by the HS&DR programme or one of its preceding programmes as project number 10/2002/23. The contractual start date was in April 2012. The final report began...

show abstract

Section: Preferred Place Of Deathmentioning

confidence: 99%

Section: Preferred Place Of Deathmentioning

confidence: 99%

Section: Preferred Place Of Deathmentioning

confidence: 99%

Section: 132139mentioning

confidence: 99%

See 2 more Smart Citations

Care and communication between health professionals and patients affected by severe or chronic illness in community care settings: a qualitative study of care at the end of life

Pollock

Wilson

2015

Health Serv Deliv Res

View full text Add to dashboard Cite

show abstract

“…4 A recent paper in the BMJ 5 found preferences for place of death to be often poorly formed in patients' minds, and often inferred by health professionals without direct questioning or reaching a definitive answer. The enabling of patients to achieve their preferred place of death is viewed by the authors as a very limited proxy measure for the effectiveness of palliative care delivery.…”

Section: 3mentioning

confidence: 99%