Pittsburgh Registry of Infant Multiplets (PRIM)

Strassberg, Melissa; Peters, Katherine; Marazita, Mary L.; Ganger, Jennifer; Watt-Morse, Margaret; Murrelle, Lenn; Tarter, Ralph E.; Vanyukov, Michael

doi:10.1375/twin.5.5.499

Cited by 4 publications

(4 citation statements)

References 3 publications

(2 reference statements)

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“…During this recruitment, we collaborated with individuals at other PA universities in order to increase our recruitment. One such successful collaboration was with the Pittsburgh Registry of Infant Multiples (Strassberg et al, 2002), which recruited families of twins from birth records at a Pittsburgh hospital. In addition, our online registry website and enrollment form enable families to find us via web searches or other means and to complete the enrollment form at any time.…”

Section: Twin Family Recruitmentmentioning

confidence: 99%

The Pennsylvania Longitudinal Study of Parents and Children (PALSPAC) Twin Registry

et al. 2019

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The Pennsylvania Longitudinal Study of Parents and Children Twin Registry was developed to capture a representative sample of multiple births and their parents in the state of Pennsylvania. The registry has two main efforts. The first began in 2012 through recruitment of adolescents in Pennsylvania schools. The second effort began in January 2019 in partnership with the Pennsylvania Department of Health to capture the birth cohort of twins born from 2007 to 2017. Study recruitment, sample demographics, focus and measures are provided, as well as future directions.

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Section: Twin Family Recruitmentmentioning

confidence: 99%

The Pennsylvania Longitudinal Study of Parents and Children (PALSPAC) Twin Registry

et al. 2019

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“…Studies on maternal and child health for families with multiples have a very short history. The majority of twin registries throughout the world seem to have been constructed primarily for genetic studies, as can be seen in the special issue of the Twin Research published in 2002, though several of these registries (Derom et al, 2002;Glinianaia et al, 2002;Strassberg et al, 2002) focus on maternal and child health for families with multiples. It appears to be very difficult to achieve a high participation rate from families with very young children in Japan, particularly if researchers perform only a genetic twin study with no feedback for the participants.…”

mentioning

confidence: 99%

Population-Based Database of Multiples in Childhood of Ishikawa Prefecture, Japan

Ooki¹

2006

Twin Res Hum Genet

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A new type of population-based database of multiples in childhood at the prefecture level was initiated in 2004 in Ishikawa Prefecture, Japan. We conducted an exhaustive search for demographic information concerning families with multiples, family support provided by governmental and medical institutions by mailed questionnaire, and at the same time tried to organize a human network to support such families. This registry aims not only to aid research on human genetics and maternal and child health, but also to contribute to the development of welfare programs for families with multiples.

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“…This article is an update to a previous article that described the Pittsburgh Registry of Infant Multiples (PRIM; Strassberg et al, 2002). PRIM is a research registry, established in 1996, based on multiparous births in Magee-Womens Hospital, an obstetrics center in Pittsburgh, Pennsylvania.…”

mentioning

confidence: 99%