Piloting a Family-Centered Intervention to Promote Participation Among Latino Children With Autism Spectrum Disorder: A Comparison of Two Delivery Modes

Mirza, Mansha; Magaña, Sandra; Stoffel, Ashley; Xu, Yue; Kim, Yoonsang

doi:10.3928/24761222-20191018-04

Cited by 6 publications

(4 citation statements)

References 36 publications

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“…This study found that training parents was beneficial in reducing their mental health burden, it significantly decreased anxiety level in the intervention group compared to the control group, not only in the short term but also in the long term as shown at the 6 months follow up which is consistent with the studies of Mirza et al, 2020 andRios et al (2021) (Mirza et al, 2020;Rios et al, 2021).…”

Section: Discussionsupporting

confidence: 88%

“…In published scientific literature, interventions for children with ASD and their families are often well designed for Englishspeaking, middle-class families, which fail to consider other cultures (Al-Khalaf et al, 2014;Lee and Meadan, 2021;Magaña et al, 2020;Mirza et al, 2020). In Arab countries PT is not clearly investigated, there is a shortage of PT programs, with delayed referral of children at risk, possibly due to late identification of needs, or lack of knowledge about PT, acting as barriers to delivering PT services (Alqatarneh et al, 2022).…”

Section: Introductionmentioning

confidence: 99%

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Effectiveness of a training program among parents of preschool children with ASD in Tunisia: a randomized controlled trial

Abid,

Gaddour,

Hmissa

2024

Humanit Soc Sci Commun

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Raising a child with ASD can be overwhelming and challenging for parents, and it poses different needs that require support, guidance, and education. Purpose: The aim of this study was to assess the effectiveness of a psychoeducational intervention developed to support parents of children with ASD in Tunisia. A randomized controlled trial was carried out in three Autism socio-educational centers in Tunisia. The study was conducted among parents of children with ASD aged 3 to 8 years from November 2020 to January 2022 (N = 31) compared to a control sample of parents of children attending the same centers but received no specific parent intervention (n = 31). The “Blue Hope” program includes eight training sessions delivered through a combination of face-to-face and online sessions. Results showed that the program significantly improved communication and reduced behavior problems in preschool children with ASD, with a significant positive difference noted at the 6-month follow-up. The program also had a positive impact on parental anxiety and depression, with significant and positive differences observed in anxiety and depression scores and the total score at follow-up compared to baseline. These findings suggest that the “Blue Hope” program could be a cost-effective and valuable solution for parents of children with ASD in Tunisia and could be the first step in developing and improving training programs for parents in low-income countries.

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Section: Discussionsupporting

confidence: 88%

Section: Introductionmentioning

confidence: 99%

Effectiveness of a training program among parents of preschool children with ASD in Tunisia: a randomized controlled trial

Abid,

Gaddour,

Hmissa

2024

Humanit Soc Sci Commun

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“…7 (1.3) 14.1 (1.3) 13.7 (1.3) 10.4 (1.2) 10.7 (1.3) 12.1 (1.3) 6.07 .004 Have support systems IL c 12.8 (0.8) 13.5 (0.9) 13.4 (0.9) 11.4 (0.8) 13.3 (0.8) 13.7 (0.8) 1.21 0.30 CA c 10.6 (1.2) 13.4 (1.2) 14.1 (1.2) 12.5 (1.2) 12.9 (1.2) 13.0 (1.2) 3.81 0.03 Access community resources IL c 17.9 (0.7) 19.1 (0.7) 19.1 (0.7) 17.9 (0.7) 19.5 (0.7) 20.0 (0. positive outcomes for children with ASD (Green et al, 2010;Kasari et al, 2015;Pickles et al, 2016;Siller et al, 2013). While intervention studies with Latinx families are still in their infancy, pilot studies with this population have also demonstrated increased parental outcomes (Burke et al, 2016;Mirza et al, 2019;Rios et al, 2021). Our study is one of the few to use an RCT with Latinx parents of children with ASD to show efficacy in parental outcomes.…”

Section: Key Findings In Contextmentioning

confidence: 84%

“…These are important findings, as increased use of EB strategies by parents can lead to positive outcomes for children with ASD (Green et al, 2010; Kasari et al, 2015; Pickles et al, 2016; Siller et al, 2013). While intervention studies with Latinx families are still in their infancy, pilot studies with this population have also demonstrated increased parental outcomes (Burke et al, 2016; Mirza et al, 2019; Rios et al, 2021). Our study is one of the few to use an RCT with Latinx parents of children with ASD to show efficacy in parental outcomes.…”

Section: Discussionmentioning

confidence: 99%

Revisiting an RCT study of a parent education program for Latinx parents in the United States: Are treatment effects maintained over time?

Zeng

Magaña

López

et al. 2021

Autism

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This study examined maintenance of treatment effects in a culturally tailored parent education program for Latinx families of children with autism spectrum disorder using a behavior maintenance framework. In a two-site randomized waitlist-control study, we compared differences in parent and child outcomes across three timepoints using linear mixed models to determine whether outcomes observed at 4 months after baseline (Time 2) were maintained for an additional 4-month period (Time 3). Parent outcomes included family empowerment, self-reported confidence in, and frequency of using evidence-based strategies. Child outcomes included parent-reported challenging behaviors, social communication impairments, and the number of services received. Participants were 109 Latina mothers (intervention = 54, control = 55) of children with autism spectrum disorder. Results showed that at Time 3, mothers in the intervention groups reported significantly greater confidence in and frequency of using evidence-based strategies, and that their child received significantly more services. Site-specific treatment differences were found in outcomes such as parent-reported empowerment and child social communication impairments. Findings suggest that the intervention for Latinx parents of children with autism spectrum disorder was efficacious and could be maintained, and that site-specific policy and service differences may need to be examined in future research to inform dissemination and implementation. Lay abstract Background: We conducted a follow-up investigation of a two-site randomized controlled trial in the United States. We examined whether the treatment effects in a culturally tailored parent education program for Latinx families of children with autism spectrum disorder were maintained over time. Methods: Using linear mixed models, we compared differences in parent and child outcomes across three timepoints: baseline, 4 months after baseline (Time 2), and 8 months after baseline (T3). Parent outcomes included family empowerment, self-reported confidence in, and frequency of using evidence-based strategies. Child outcomes included parent-reported challenging behaviors, social communication impairments, and the number of services received. Participants were 109 Latina mothers (intervention = 54, control = 55) of children with autism spectrum disorder. Results: After intervention at both Time 2 and Time 3 in both sites, mothers in the intervention groups reported significantly greater confidence in and frequency of using evidence-based strategies, and that their child received significantly more services. We also found that there were treatment differences across the two study sites in several outcomes. Implications: The intervention for Latinx parents of children with autism spectrum disorder was efficacious and could be maintained, and that site-specific policy and service differences may need to be examined in future research to inform dissemination and implementation.

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Connecting, Serving, and Adapting: Perspectives on the Transition to Adulthood from Latino Young Adults with ASD, Parents, and Providers

Pagán,

Vanderburg,

Loveland

et al. 2024

J Dev Phys Disabil

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Piloting a Family-Centered Intervention to Promote Participation Among Latino Children With Autism Spectrum Disorder: A Comparison of Two Delivery Modes

Cited by 6 publications

References 36 publications

Effectiveness of a training program among parents of preschool children with ASD in Tunisia: a randomized controlled trial

Effectiveness of a training program among parents of preschool children with ASD in Tunisia: a randomized controlled trial

Revisiting an RCT study of a parent education program for Latinx parents in the United States: Are treatment effects maintained over time?

Connecting, Serving, and Adapting: Perspectives on the Transition to Adulthood from Latino Young Adults with ASD, Parents, and Providers

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