Pilot evaluation of home delivery programme in haemophilia

Megías‐Vericat, Juan Eduardo; Monte-Boquet, Emilio; Martín‐Cerezuela, M.; Cuellar-Monreal, MJ; Tarazona-Casany, MV; Pérez-Huertas, Pablo; Bonanad, Santiago; Poveda-Andrés, JL

doi:10.1111/jcpt.12718

Cited by 6 publications

(14 citation statements)

References 18 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…24 Adherence and TS could be further improved by home-delivery programmes guaranteeing a proper followup of treatments as demonstrated in a study in Spain where patients reported benefits of such a program due to less frequent visits to hospital and reduced time and cost spent on transportation. 42 Adult patient's HRQoL improved from baseline to followup in the total score and the domains 'work' and 'dealing'. This fact might be related to the implementation of the MHOC concept provided to patients with an extra support in social-and work-related issues allowing them to deal better with the circumstances and social consequences of their disease.…”

Section: Discussionmentioning

confidence: 94%

Health-Related Quality of Life, Treatment Satisfaction and Adherence Outcomes of Haemophilia Patients Living in a German Rural Region

et al. 2020

View full text Add to dashboard Cite

In the context of the ‘Mobile Haemophilia Outpatient Care (MHOC)’ project we aimed to gather insights into the health-related quality of life (HRQoL), treatment satisfaction (TS) and adherence of persons with haemophilia (PWHs) who get treated at the Saarland University Hospital Haemophilia Treatment Centre (HTC). PWHs were visited at home at least twice (baseline, follow-up) by trained medical staff. Individual interviews were performed to measure patients' HRQoL and TS with validated questionnaires (Haem-A-QoL/Haemo-QoL and Hemo-SatA/Hemo-SatP). Socio-demographic and clinical data were collected. In total, 79 PWHs were enrolled; 56 adults with a mean age of 37.4 ± 16.4 years (17–78) and 23 children [mean age of 9.8 ± 4.2 years (3–16)]. In total, 62% were severely affected; 48.1% received prophylaxis. Patients reported good HRQoL (adults: 23.1 ± 17.1; kids: 24.3 ± 11.1). Patients (M = 11.2 ± 9.5) and parents (M = 14.3 ± 7.4) were very satisfied with their provided treatment. The majority of study participants were evaluated to have a good treatment adherence. After 1-year follow-up of the MHOC, a significant improvement in HRQoL was seen in adults (p < 0.033) and in proxy ratings of parents (p < 0.0001); TS remained high with no change by MHOC intervention. Patients reported good HRQoL and TS. Most of them were evaluated as having a good treatment adherence. After implementation of the MHOC, adult patients reported a better HRQoL. Such a mobile medical care service is considered beneficial for patients, especially with limited access to a HTC.

show abstract

Section: Discussionmentioning

confidence: 94%

Health-Related Quality of Life, Treatment Satisfaction and Adherence Outcomes of Haemophilia Patients Living in a German Rural Region

et al. 2020

View full text Add to dashboard Cite

show abstract

“…Sixteen studies (51.6%) rated patients' levels of satisfaction with the interventions. 8,21,25,26,28,32,34,38,43,58,62,68,72,74,78,86 In general, these studies used an ad hoc approach to measure satisfaction. Only Van den Bosch et al, 62 applied the Treatment Satisfaction Questionnaire for Medication (TSQM) to assess patient satisfaction.…”

Section: Effect Of Home Care Services or Home Delivery Systems On Adherence To Medication Humanistic (Patient-reported Outcomes) And Econmentioning

confidence: 99%

“…Most of the services assessed involved nurse-led programs (n = 11; 68.8%), 8,21,25,26,28,32,34,38,43,58,62,72 and home medication delivery (n = 5; 31.2%). 25,26,28,62,74,86 Patients with various pathologies expressed their satisfaction with the interventions. Specifically, patients with multiple sclerosis indicated a very high level of satisfaction with home treatment, 8,21 and 98% decided to receive future infusions at home.…”

Section: Effect Of Home Care Services or Home Delivery Systems On Adherence To Medication Humanistic (Patient-reported Outcomes) And Econmentioning

confidence: 99%

See 1 more Smart Citation

Impact of Home Care Services on Patient and Economic Outcomes: A Targeted Review

Lizano-Díez

Amaral-Rohter

Pérez–Carbonell

et al. 2021

Home Health Care Management & Practice

View full text Add to dashboard Cite

Patient Support Programs (PSPs) reinforce patients’ care provided by health care professionals with the aim to improve adherence and patient empowerment. PSPs may include interventions such as home-based care, individualized medication counseling, support, training, and home delivery of medicines and/or devices. This study described these services and its impact on patient-reported outcomes and health care savings. We conducted an integrative literature review which was limited to publications from the last 10 years (2009-2019) and focused on diseases that require special support and/or parenteral administration. From 7040 total citations, we identified 64 home-based care services performed worldwide. Among the home-based care services, most were provided by nurses (n = 47/64; 73.4%) and addressed to cancer patients (n = 22/64; 34.4%); 23 out of 64 services (35.9%) incorporated telepharmacy. In general, home-based services and PSPs showed a positive impact on patients’ adherence to medication, patient satisfaction, and health-related quality of life. In addition, 14 (21.9%) services reported economic results, most of which showed that home therapy led to substantial cost savings.

show abstract

“…Otherwise, it could lead to erroneous decisions, such as inappropriately modifying hemostatic treatment or misinterpreting the interactions that the latter might cause in coagulation tests, which could lead to incorrect assessment of the hemorrhagic/thrombotic risk of patients with congenital blood diseases and COVID -19. No different criteria should be established regarding the admission, hospitalization, or intensive care unit admission of patients with hemophilia with respect to the rest of the population, just as there are no contraindications for the use of drugs that are currently being used for COVID-19 treatment [22][23][24][25].…”

Section: Therapeutic Considerationsmentioning

confidence: 99%

What COVID-19 can mean for people with hemophilia beyond the infection risk

Corte‐Rodríguez¹,

Álvarez‐Román²,

Rodríguez-Merchán³

et al. 2020

Expert Review of Hematology

View full text Add to dashboard Cite

Introduction: The coronavirus disease 2019 (COVID-19) pandemic represents an unprecedented global health crisis. To combat its effects, many governments have opted for strategies of social isolation that involve a radical change in people's behavior. Areas covered: For patients with hemophilia, the negative consequences of these measures can be greater, given they modify aspects of health care and lifestyles needed to counteract the adverse effects of hemophilia. The long-term consequences of the pandemic on patients with hemophilia are not well known. The aim of this special report is to show what COVID-19 could mean for this population, beyond the risk of infection. Expert opinion: Considerations of the clinical, care, therapeutic, physical, nutritional, mental health, pain, and disability aspects that might be affected are included. Strategies are also suggested to minimize the effects that these issues can have on patients' lives. Patients, health professionals, and society as a whole must work together to mitigate the effects of the pandemic on people with hemophilia.

show abstract

Pilot evaluation of home delivery programme in haemophilia

Abstract: The home delivery programme guarantees a proper follow-up of treatments with full patient satisfaction. This programme allows OPCU to achieve better pharmaceutical care, traceability of the process and optimization of working times and CF stock management.

Cited by 6 publications

References 18 publications

Health-Related Quality of Life, Treatment Satisfaction and Adherence Outcomes of Haemophilia Patients Living in a German Rural Region

Health-Related Quality of Life, Treatment Satisfaction and Adherence Outcomes of Haemophilia Patients Living in a German Rural Region

Impact of Home Care Services on Patient and Economic Outcomes: A Targeted Review

What COVID-19 can mean for people with hemophilia beyond the infection risk

Contact Info

Product

Resources

About