Physical workload during caregiving activities and related factors among the caregivers of children with cerebral palsy

Eminel, Asuman Gokcin; Kahraman, Turhan; Genç, Arzu

doi:10.1007/s11845-020-02337-w

Cited by 13 publications

(11 citation statements)

References 36 publications

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“…The results showed that the mean BSFC-s score on caregivers of children with cerebral palsy was 23.30 ± 4.40, which is the highest-burden score on caregivers compared to the scores of other disabilities. Similar studies have indicated that physical workload can be an important cause of musculoskeletal disorders in caregivers of children with cerebral palsy (CP), 14 and reduced functioning was associated with lower health-related quality of life among children with cerebral palsy. 27 …”

Section: Discussionmentioning

confidence: 81%

“… 4 According to previous studies that the greater the physical work provided, the greater the physical and psychological burdens may occur among the caregivers. 14 , 18 , 24 …”

Section: Discussionmentioning

confidence: 99%

“…Physically, caregivers of children with disabilities may experience negative physical health 13 due to increasing physical load that causes musculoskeletal disorders, exhaustion, and fatigue. 14 During the pandemic, the level of care for their children has increased which was accompanied by other responsibilities and limited access to health and rehabilitation services. 10 All are contributing factors to physical health consequences and aggregating physical burdens among the caregivers.…”

Section: Introductionmentioning

confidence: 99%

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Challenges Facing Family Caregivers of Children With Disabilities During COVID-19 Pandemic in Palestine

Zahaika

Daraweesh

Shqerat

et al. 2021

J Prim Care Community Health

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Background: COVID-19 has caused great changes in all aspects of life which affected all people especially vulnerable groups such as children with disabilities (CWD) and their families. Objective: This study aimed to examine the challenges facing caregivers of CWD during the pandemic, and to explore these challenges from various physical, social, psychological, and financial aspects. Methods: A cross-sectional design was conducted in Palestine, a total of 130 caregivers of CWD completed a survey consisting of demographic and clinical characteristics questionnaire and the short version of the burden scale for family caregivers (BSFC-s) between March and May 2021. Results: Most of the caregivers were mothers (76.9%), the mean age of the children was (6.09 ± 3.43 years). The majority (88.5%) of the caregivers felt physically exhausted, about (75.4%) had decreased living standards, and (86.2%) indicated that caregiving is taking their strength. A high burden score was recorded, the mean BSFC-s score was 20.17 ± 5.57. Significant differences in BSFC-s scores were recorded based on the type of disability, and child’s ability to take care of oneself, P < .05. The total scores of the BSFC-s were positively correlated with the physical, social, psychological, and financial challenges facing the caregivers ( P < .001). Conclusions: COVID-19 has caused increased burdens on the caregivers of CWD and a negative impact on the child’s mobility accompanying a lack of access to health and rehabilitation services. Vital factors are to be considered in developing strategic health and rehabilitative plans for promoting better care for caregivers and their CWD during lockdown restrictions time.

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Section: Discussionmentioning

confidence: 81%

“… 4 According to previous studies that the greater the physical work provided, the greater the physical and psychological burdens may occur among the caregivers. 14 , 18 , 24 …”

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Challenges Facing Family Caregivers of Children With Disabilities During COVID-19 Pandemic in Palestine

Zahaika

Daraweesh

Shqerat

et al. 2021

J Prim Care Community Health

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“…Children with more severe disabilities require the more support of their caregivers to carry out the activities of daily living. Caregivers will spend more time and physical strength to meet the caregiving demands, 38 48 and the caregiver burden will be heavier. In addition, there was no significant correlation between the age of CP children and the caregiver burden.…”

Section: Discussionmentioning

confidence: 99%

Factors associated with caregiver burden among family caregivers of children with cerebral palsy: a systematic review

et al. 2023

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ObjectivesTo identify caregiver and children factors associated with caregiver burden on primary caregivers of children with cerebral palsy (CP).DesignSystematic reviewData sourcesSeven electronic databases, including PubMed, Cochrane Library, Scopus, PsycINFO, Web of Science, CINAHL and Embase, were systematically searched up to 1 February 2023.Eligibility criteriaOriginal observational studies reporting caregiver burden and related factors among caregivers of children with CP.Data abstraction and synthesisTwo reviewers independently screened results and assessed the quality of studies. Title, abstract, full-text screening and data abstraction were done independently by two reviewers. Risk of bias was assessed using the JBI Critical Appraisal Checklist for Analytical Cross-Sectional Studies. The quality of evidence for factors was rated using the Grading of Recommendations Assessment, Development and Evaluation (GRADE) approach.Results16 articles were included in the review. All studies were cross-sectional and examined caregiver-reported burden measures. The Zarit Burden Interview was the most commonly used questionnaire. Depression of caregiver and severity of illness in children with CP were moderate quality of evidence for factors contributing to caregiver burden.ConclusionsHigher caregiver burden is associated with more depressive feelings and worse life quality of the caregiver, and with more severe physical disability of the children. Future studies should focus on high-quality longitudinal research and appropriate assistance to reduce caregiver burden and improve the quality of caregiving for children with CP.PROSPERO registration numberCRD42021268284.

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“…Although there are assistive devices for aiding in the care of sick individuals with neuromuscular inadequacies and self-care deficit,38 the caregivers in this study had to lift and move their children manually, without such devices, resulting in caregivers’ altered well-being such as aches and pains sometimes requiring medical attention. Meanwhile, the well-being of caregivers is critical, considering that most children with CP depend solely on them for their care 39 40. Therefore, though it might be useful to solicit the support of social networks to assist primary caregivers, it might even be more beneficial for health professionals to assist caregivers in learning manual handling and body mechanics to empower them to safely lift and move children 41 42…”

Section: Discussionmentioning

confidence: 99%

Family caregivers’ experience of care with a child with cerebral palsy: the lived experiences and challenges of caregivers in a resource-limited setting in northern Ghana

Mwinbam,

Suglo,

Agyeman

et al. 2023

bmjpo

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IntroductionCaring for a child with cerebral palsy may be more emotionally and physically exhausting than caring for a typical growing child. The family caregivers’ perspective of this phenomenon needs exploring to facilitate the development of services. Our study explored the challenges family caregivers face with children with cerebral palsy in a resource-limited context in northern Ghana.MethodsWe conducted a qualitative study underpinned by phenomenological principles where it is believed that the reality of a phenomenon is tied to caregivers’ perspectives of their own experiences. In this study, we unearthed caregivers’ experiences/challenges from their own perspectives. The method of data analysis used was to allow the issues to emerge from the data (inductive process) using the content analysis approach. We recruited 13 caregivers of children with cerebral palsy from the physiotherapy unit at Tamale Teaching Hospital, and conducted individual in-depth interviews supported by an open-ended topic guide. Interviews were audio recorded, transcribed, and translated and coded inductively before conducting a content analysis of the data when grouped into themes.ResultsWe have identified barriers to managing a child with cerebral palsy, including sociocultural barriers (values, attitudes and belief systems within society), economic challenges and immediate physical care burdens. Specific barriers included discrimination and isolation, lack of family and societal support, with poor access to health information and formal education. Others were lack of information on the cause and course of cerebral palsy, caregivers’ loss of jobs, increased healthcare expenditure and struggles in lifting and moving children, which resonate with evidence-based multidimensional model of caregiving process and caregiver burden.ConclusionCaregivers have the arduous task of caring for a child with cerebral palsy. Social support interventions and policy initiatives that seek to ameliorate caregivers’ finances and make formal education accessible to this marginalised child population may be beneficial in this context.

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Physical workload during caregiving activities and related factors among the caregivers of children with cerebral palsy

Cited by 13 publications

References 36 publications

Challenges Facing Family Caregivers of Children With Disabilities During COVID-19 Pandemic in Palestine

Challenges Facing Family Caregivers of Children With Disabilities During COVID-19 Pandemic in Palestine

Factors associated with caregiver burden among family caregivers of children with cerebral palsy: a systematic review

Family caregivers’ experience of care with a child with cerebral palsy: the lived experiences and challenges of caregivers in a resource-limited setting in northern Ghana

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