Physical Symptoms of Children Receiving Pediatric Hospice Care at Home During the Last Week of Life

Abstract

Symptoms experienced by dying children during the last week of life and symptom-management strategies used by pediatric hospice programs to support dying children and their families have not been well described. Additional research is warranted to further identify pediatric symptoms at the end of life and effective symptom-management strategies.

Profit Status and Delivery of Hospice Care for Infants: The Mediating Role of Pediatric Knowledge

“…21,22 It is possible that pediatric experience, on the other hand, may provide increased comfort in working with children of all ages. 23 Future research might explore characteristics of pediatric programs to better understand their components' age group foci, as well as the aspects of pediatric experience that facilitate care for infants.…”

Palliative Care for Children with Brain Tumors

“…The loss of gag refl ex, inability to swallow, and the buildup of oral and tracheal secretions lead to gurgled respirations referred to as the death rattle . This can be particularly diffi cult for family members to observe [ 15 ]. Glycopyrrolate administered SC is used to reduce the production of saliva in unresponsive patients.…”

Determinants of Access to Pediatric Hospice Care

“…59 At the end of life, these children typically experience multiple body function failures that often include uncontrolled pain, shortness of breath, and fatigue. 60 At these times, many families express that they believe their child is suffering and they want to make the suffering stop. 3, 18 Hospice is a care option that specializes in managing pain and other symptoms in complex medical cases such as those with multiple comorbidities.…”